{"id":9866,"date":"2024-03-25T06:00:58","date_gmt":"2024-03-25T06:00:58","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/25\/milan-epicentro-de-las-cardiopatias-congenitas\/"},"modified":"2024-03-25T06:00:58","modified_gmt":"2024-03-25T06:00:58","slug":"milan-epicentro-de-las-cardiopatias-congenitas","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/25\/milan-epicentro-de-las-cardiopatias-congenitas\/","title":{"rendered":"Mil\u00e1n, epicentro de las cardiopat\u00edas cong\u00e9nitas"},"content":{"rendered":"

Leemos en Menudos Corazones la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n
\n

Menudos Corazones<\/b> particip\u00f3, del 13 al 15 de marzo, en la Reuni\u00f3n Bianual del Grupo de Trabajo en Neurodesarrollo y Atenci\u00f3n Psicosocial desde el Feto hasta el Adulto,<\/a> un encuentro organizado por la Asociaci\u00f3n Europea de Cardiolog\u00eda Pedi\u00e1trica<\/a> (AEPC) en Mil\u00e1n (Italia).<\/p>\n<\/div>\n

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La conferencia congreg\u00f3 a profesionales sanitarios<\/b> (de cardiolog\u00eda, pediatr\u00eda, cirug\u00eda cardiaca, neurolog\u00eda, psicolog\u00eda, enfermer\u00eda, neonatolog\u00eda, entre otros) y del \u00e1mbito social,<\/b> as\u00ed como organizaciones de pacientes<\/b> con cardiopat\u00edas cong\u00e9nitas.<\/p>\n<\/div>\n

\n
\"\"
De izq. a dcha.: Ana Bel\u00e9n Hern\u00e1ndez, psic\u00f3loga de Menudos Corazones, y Julia del Corral, trabajadora social de la Fundaci\u00f3n, en la Reuni\u00f3n Bianual del Grupo de Trabajo en Neurodesarrollo y Atenci\u00f3n Psicosocial desde el Feto hasta el Adulto, en Mil\u00e1n.<\/figcaption><\/figure>\n

Ana Bel\u00e9n Hern\u00e1ndez,<\/b> psic\u00f3loga de Menudos Corazones, present\u00f3, el viernes 15, una conferencia centrada en el estudio sobre la relaci\u00f3n entre las cardiopat\u00edas cong\u00e9nitas y la dependencia, la atenci\u00f3n temprana y la discapacidad, desarrollado por Menudos Corazones a lo largo de 2023.<\/a> En la Reuni\u00f3n, estuvo tambi\u00e9n Julia del Corral,<\/b> trabajadora social de la Fundaci\u00f3n.<\/p>\n<\/div>\n

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El impacto de ciertas cardiopat\u00edas cong\u00e9nitas en el desarrollo del cerebro, debido a d\u00e9ficit de oxigenaci\u00f3n; las problem\u00e1ticas que enfrentan poblaciones con bajas tasas de intervenciones; las dificultades psicomotoras, de lenguaje o de aprendizaje que pueden surgir en el entorno escolar; la escasez de estudios sobre las cardiopat\u00edas cong\u00e9nitas en la adolescencia<\/b>; o c\u00f3mo afrontar el diagn\u00f3stico prenatal fueron algunos de los temas desarrollados en las charlas.<\/p>\n

\"\"
Nuestra psic\u00f3loga durante la ponencia que present\u00f3 Menudos Corazones en la Reuni\u00f3n.<\/figcaption><\/figure>\n<\/div>\n
\n

Asimismo, se destac\u00f3 la importancia de la salud mental y el bienestar<\/b> de quienes nacen con cardiopat\u00edas cong\u00e9nitas, a lo que contribuyen de manera decisiva diferentes actores: personal sanitario, profesorado, entidades de pacientes\u2026<\/p>\n<\/div>\n

\n

\u201cIniciativas de este tipo, de car\u00e1cter multidisciplinar, permiten a Menudos Corazones obtener nuevos conocimientos que redundan en beneficio de las personas con cardiopat\u00edas cong\u00e9nitas y sus familias, adem\u00e1s de facilitar el intercambio de experiencias,<\/b> las buenas pr\u00e1cticas y las perspectivas de futuro entre quienes trabajamos por mejorar sus vidas\u201d, nos contaron Ana Bel\u00e9n y Julia a su regreso de la conferencia.<\/p>\n

\"\"
En Mil\u00e1n, trabajamos en red e intercambiamos conocimientos y experiencias con otras organizaciones de cardiopat\u00edas cong\u00e9nitas.<\/figcaption><\/figure>\n<\/div>\n
\n

Asamblea General del ECHDO<\/b><\/p>\n<\/div>\n

\n

En Mil\u00e1n, coincidiendo con las fechas de la Reuni\u00f3n Bianual, se celebr\u00f3 la Asamblea General de ECHDO<\/b> (European Congenital Heart Disease Organisation<\/a>), la Organizaci\u00f3n Europea de Cardiopat\u00edas Cong\u00e9nitas.<\/p>\n<\/div>\n

\n

Como entidad miembro,<\/b> Menudos Corazones particip\u00f3 en este acto, en el que se abordaron aspectos de inter\u00e9s para las entidades del continente, afianzando la relaci\u00f3n con organizaciones de otros pa\u00edses, como Finlandia, Islandia, Reino Unido, Bulgaria, Chipre o Italia, entre otros.<\/p>\n<\/div>\n

\n

El campamento europeo<\/b> para adolescentes con cardiopat\u00edas cong\u00e9nitas, a celebrarse este a\u00f1o en Islandia, y al que Menudos Corazones asistir\u00e1, con un grupo de 10 chicas y chicos, fue uno de los asuntos tratados.<\/p>\n<\/div>\n

\n

Entre las novedades de la Asamblea, en la que nuestra Fundaci\u00f3n estuvo representada igualmente por Ana Bel\u00e9n Hern\u00e1ndez y Julia del Corral, estuvo la renovaci\u00f3n de la junta directiva de ECHDO<\/strong>\u00a0y la incorporaci\u00f3n de Bulgaria<\/b> como nuevo pa\u00eds miembro.<\/p>\n<\/div>\n

La entrada Mil\u00e1n, epicentro de las cardiopat\u00edas cong\u00e9nitas<\/a> aparece primero en Menudos Corazones<\/a>.<\/p>\n<\/div>\n

Fuente: Menudos Corazones https:\/\/www.menudoscorazones.org\/2024\/milan-epicentro-de-las-cardiopatias-congenitas\/<\/p>\n","protected":false},"excerpt":{"rendered":"

Menudos Corazones particip\u00f3 en la Reuni\u00f3n Bianual del Grupo de Trabajo en Neurodesarrollo y Atenci\u00f3n Psicosocial desde el Feto hasta el Adulto, un encuentro organizado por la Asociaci\u00f3n Europea de Cardiolog\u00eda Pedi\u00e1trica en Mil\u00e1n (Italia). La entrada Mil\u00e1n, epicentro de las cardiopat\u00edas cong\u00e9nitas aparece primero en Menudos Corazones.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-9866","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\nMil\u00e1n, epicentro de las cardiopat\u00edas cong\u00e9nitas - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2024\/03\/25\/milan-epicentro-de-las-cardiopatias-congenitas\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Mil\u00e1n, epicentro de las cardiopat\u00edas cong\u00e9nitas - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Menudos Corazones particip\u00f3 en la Reuni\u00f3n Bianual del Grupo de Trabajo en Neurodesarrollo y Atenci\u00f3n Psicosocial desde el Feto hasta el Adulto, un encuentro organizado por la Asociaci\u00f3n Europea de Cardiolog\u00eda Pedi\u00e1trica en Mil\u00e1n (Italia). 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