{"id":9865,"date":"2024-03-24T07:58:56","date_gmt":"2024-03-24T07:58:56","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/"},"modified":"2024-03-24T07:58:56","modified_gmt":"2024-03-24T07:58:56","slug":"alvaro-villanueva-presidente-fundacion-ava","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/","title":{"rendered":"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: \u00abNuestro objetivo es atender a personas con una gran discapacidad, como mi hijo\u00bb"},"content":{"rendered":"

Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

Su hijo fue la raz\u00f3n y la gran inspiraci\u00f3n que llev\u00f3 a \u00c1lvaro Villanueva a crear la Fundaci\u00f3n AVA<\/a><\/b>, una organizaci\u00f3n sin \u00e1nimo de lucro que naci\u00f3 para apoyar a todas las personas con grandes necesidades de apoyo y sus familias. \u00c1lvaro, que as\u00ed se llama su hijo, tiene dos enfermedades raras de dif\u00edcil tratamiento, esclerosis tuberosa y poliquistosis renal<\/b>. Al ver que no encontraba los recursos adecuados que necesitaban tanto \u00e9l como su familia, decidi\u00f3 crear estos recursos \u00e9l mismo. <\/p>\n

Tras siete a\u00f1os de trabajo incasable, AVA no deja de crecer, atiende a m\u00e1s de 1.000 familias al a\u00f1o<\/b> en hospitales y apoya de manera intensiva a unas 70 con recursos como actividades deportivas y de ocio y respiro. Mientras, preparan el que, sin duda, ser\u00e1 su proyecto m\u00e1s importante hasta la fecha, Casa AVA, un centro residencial y de ocio con el que ayudar a todas las familias que lo necesiten.<\/p>\n

Solo en Madrid hay 3.000 menores de edad con multidiscapacidad y, al margen de las enfermedades que tengan, tienen unas necesidades y tenemos que buscar soluciones<\/h1>\n

Un hijo con problemas conductuales, que no entiende, que duerme mal y que tiene movimiento, requiere una atenci\u00f3n 24 horas, y esto acaba desgastando a la familia<\/h1>\n

La vida de estos chavales vale la pena y pueden ser felices, y nosotros tenemos que luchar por darles esa felicidad<\/h1>\n<\/div>\n

Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5227518\/0\/alvaro-villanueva-presidente-fundacion-ava\/<\/p>\n","protected":false},"excerpt":{"rendered":"

Su hijo fue la raz\u00f3n y la gran inspiraci\u00f3n que llev\u00f3 a \u00c1lvaro Villanueva a crear la Fundaci\u00f3n AVA, una organizaci\u00f3n sin \u00e1nimo de lucro que naci\u00f3 para…<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-9865","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\n\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: "Nuestro objetivo es atender a personas con una gran discapacidad, como mi hijo" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: "Nuestro objetivo es atender a personas con una gran discapacidad, como mi hijo" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Su hijo fue la raz\u00f3n y la gran inspiraci\u00f3n que llev\u00f3 a \u00c1lvaro Villanueva a crear la Fundaci\u00f3n AVA, una organizaci\u00f3n sin \u00e1nimo de lucro que naci\u00f3 para…\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2024-03-24T07:58:56+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/03\\\/24\\\/alvaro-villanueva-presidente-fundacion-ava\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/03\\\/24\\\/alvaro-villanueva-presidente-fundacion-ava\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: \u00abNuestro objetivo es atender a personas con una gran discapacidad, como mi hijo\u00bb\",\"datePublished\":\"2024-03-24T07:58:56+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/03\\\/24\\\/alvaro-villanueva-presidente-fundacion-ava\\\/\"},\"wordCount\":273,\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/03\\\/24\\\/alvaro-villanueva-presidente-fundacion-ava\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/03\\\/24\\\/alvaro-villanueva-presidente-fundacion-ava\\\/\",\"name\":\"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: \\\"Nuestro objetivo es atender a personas con una gran discapacidad, como mi hijo\\\" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\"},\"datePublished\":\"2024-03-24T07:58:56+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/03\\\/24\\\/alvaro-villanueva-presidente-fundacion-ava\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/03\\\/24\\\/alvaro-villanueva-presidente-fundacion-ava\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2024\\\/03\\\/24\\\/alvaro-villanueva-presidente-fundacion-ava\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/sindromecharge.es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: “Nuestro objetivo es atender a personas con una gran discapacidad, como mi hijo”\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/\",\"name\":\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/sindromecharge.es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\",\"name\":\"Charge\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"caption\":\"Charge\"},\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: \"Nuestro objetivo es atender a personas con una gran discapacidad, como mi hijo\" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/","og_locale":"es_ES","og_type":"article","og_title":"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: \"Nuestro objetivo es atender a personas con una gran discapacidad, como mi hijo\" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","og_description":"Su hijo fue la raz\u00f3n y la gran inspiraci\u00f3n que llev\u00f3 a \u00c1lvaro Villanueva a crear la Fundaci\u00f3n AVA, una organizaci\u00f3n sin \u00e1nimo de lucro que naci\u00f3 para…","og_url":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/","og_site_name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","article_publisher":"https:\/\/www.facebook.com\/asociacionsindromecharge","article_published_time":"2024-03-24T07:58:56+00:00","og_image":[{"width":300,"height":98,"url":"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png","type":"image\/png"}],"author":"Charge","twitter_card":"summary_large_image","twitter_creator":"@sindromecharge","twitter_site":"@sindromecharge","twitter_misc":{"Escrito por":"Charge","Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/#article","isPartOf":{"@id":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/"},"author":{"name":"Charge","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"headline":"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: \u00abNuestro objetivo es atender a personas con una gran discapacidad, como mi hijo\u00bb","datePublished":"2024-03-24T07:58:56+00:00","mainEntityOfPage":{"@id":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/"},"wordCount":273,"articleSection":["noticias"],"inLanguage":"es"},{"@type":"WebPage","@id":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/","url":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/","name":"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: \"Nuestro objetivo es atender a personas con una gran discapacidad, como mi hijo\" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","isPartOf":{"@id":"https:\/\/sindromecharge.es\/#website"},"datePublished":"2024-03-24T07:58:56+00:00","author":{"@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"breadcrumb":{"@id":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/sindromecharge.es\/index.php\/2024\/03\/24\/alvaro-villanueva-presidente-fundacion-ava\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/sindromecharge.es\/"},{"@type":"ListItem","position":2,"name":"\u00c1lvaro Villanueva, presidente de Fundaci\u00f3n AVA: “Nuestro objetivo es atender a personas con una gran discapacidad, como mi hijo”"}]},{"@type":"WebSite","@id":"https:\/\/sindromecharge.es\/#website","url":"https:\/\/sindromecharge.es\/","name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/sindromecharge.es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039","name":"Charge","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","url":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","caption":"Charge"},"url":"https:\/\/sindromecharge.es\/index.php\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/9865","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/comments?post=9865"}],"version-history":[{"count":0,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/9865\/revisions"}],"wp:attachment":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/media?parent=9865"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/categories?post=9865"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/tags?post=9865"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}