Leemos en Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n
\n
La Fibrodisplasia Osificante Progresiva<\/b> (FOP) es una enfermedad extremadamente rara y poco comprendida que afecta, de media, a una de cada dos millones de personas<\/b> en todo el mundo. Esta condici\u00f3n gen\u00e9tica se caracteriza por la formaci\u00f3n progresiva de hueso en m\u00fasculos, tendones y tejidos blandos, lo que lleva a una rigidez progresiva y a la p\u00e9rdida gradual de movimiento en las articulaciones<\/b>. Lo que hace que la FOP sea a\u00fan m\u00e1s desafiante es su naturaleza altamente impredecible<\/b> y la falta de tratamientos efectivos. Una ecuaci\u00f3n que la convierte en una enfermedad altamente incapacitante<\/b>.<\/p>\n
A pesar de su devastador impacto en la calidad de vida de quienes la padecen, la FOP sigue siendo en gran medida desconocida tanto para el p\u00fablico en general como para muchos profesionales de la salud<\/b>. La rareza de la enfermedad y su complejidad diagn\u00f3stica contribuyen a la falta de conciencia y comprensi\u00f3n en la comunidad m\u00e9dica y la sociedad en general, lo que a menudo resulta en retrasos en el diagn\u00f3stico<\/b> y en la falta de acceso a los cuidados adecuados.<\/p>\n
Para conocer todos los detalles sobre esta enfermedad rara hablamos con el doctor Javier Bachiller Corral<\/b>, Jefe de Secci\u00f3n del Servicio de Reumatolog\u00eda en el Hospital Universitario Ram\u00f3n y Cajal<\/b>.<\/p>\nCon frecuencia en la tercera y cuarta d\u00e9cada de la vida los pacientes est\u00e1n encamados permanentemente, con movilidad muy reducida.<\/h1>\nA pesar de todo, creo que podemos ser optimistas. Despu\u00e9s de 30 a\u00f1os atendiendo y acompa\u00f1ando a estos enfermos, ahora disponemos de algunos f\u00e1rmacos con resultados prometedores<\/h1>\n<\/div>\n
Fuente: Discapacidad https:\/\/www.20minutos.es\/noticia\/5222028\/0\/doctor-javier-bachiller-sobre-ultrarra-fop-fibrodisplasia-osificante-progresiva-es-cruel\/<\/p>\n","protected":false},"excerpt":{"rendered":"
La Fibrodisplasia Osificante Progresiva (FOP) es una enfermedad extremadamente rara y poco comprendida que afecta, de media, a una de cada dos millones de personas…<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-9797","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\n
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