{"id":9056,"date":"2023-05-30T05:31:33","date_gmt":"2023-05-30T05:31:33","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2023\/05\/30\/bob-pop-vivo-instalado-en-el-presente-continuo-que-intento-que-sea-lo-mas-feliz-posible\/"},"modified":"2023-05-30T05:31:33","modified_gmt":"2023-05-30T05:31:33","slug":"bob-pop-vivo-instalado-en-el-presente-continuo-que-intento-que-sea-lo-mas-feliz-posible","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2023\/05\/30\/bob-pop-vivo-instalado-en-el-presente-continuo-que-intento-que-sea-lo-mas-feliz-posible\/","title":{"rendered":"Bob Pop: \u00abVivo instalado en el presente continuo, que intento que sea lo m\u00e1s feliz posible\u00bb"},"content":{"rendered":"

Leemos en 20MINUTOS.ES – Discapacidad la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

\n

Roberto Enr\u00edquez, conocido por todos como Bob Pop<\/strong>, reconoci\u00f3 p\u00fablicamente hace cuatro a\u00f1os que ten\u00eda esclerosis m\u00faltiple<\/a>, pero la enfermedad ya llevaba con \u00e9l m\u00e1s de 20 a\u00f1os. Durante esas dos d\u00e9cadas, aunque de manera velada, la EM ya marcaba su obra, su personalidad y su manera de vivir.<\/p>\n

Ahora, cuando la enfermedad es m\u00e1s evidente, no solo est\u00e1 a\u00fan m\u00e1s presente, sino que aprovecha lo que \u00e9l llama \u2018un lugar de privilegio\u2019 para visibilizar y hablar sin tapujos de la enfermedad. Siempre sin tapujos, con crudeza, pero tambi\u00e9n con sentido del humor, como lo hace en su nuevo libro, D\u00edas sim\u00e9tricos<\/i>, y en esta entrevista. <\/p>\n

No quiero que no me tomen como referente de su futuro. Que yo est\u00e9 en silla de ruedas no significa que sea la proyecci\u00f3n de futuro de nadie<\/h1>\n

Seg\u00fan ha ido evolucionando la enfermedad, he descubierto que escribir no es solo algo intelectual, sino que tambi\u00e9n es f\u00edsico<\/h1>\n

Yo prefiero el t\u00e9rmino persona con diversidad funcional, pero sobre todo lo que prefiero es una rampa. Ll\u00e1mame como quieras, pero ponme una rampa y un ba\u00f1o adaptado<\/h1>\n<\/div>\n

Fuente: 20MINUTOS.ES – Discapacidad https:\/\/www.20minutos.es\/noticia\/5132578\/0\/bob-pop-vivo-instalado-en-el-presente-continuo-que-intento-que-sea-lo-mas-feliz-posible\/<\/p>\n","protected":false},"excerpt":{"rendered":"

Roberto Enr\u00edquez, conocido por todos como Bob Pop, reconoci\u00f3 p\u00fablicamente hace cuatro a\u00f1os que ten\u00eda esclerosis m\u00faltiple, pero la enfermedad ya llevaba con \u00e9l m\u00e1s de 20 a\u00f1os. Durante esas dos d\u00e9cadas, aunque de manera velada, la EM ya marcaba su obra, su personalidad y su manera de vivir. Ahora, cuando la enfermedad es m\u00e1s […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[],"class_list":["post-9056","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\nBob Pop: "Vivo instalado en el presente continuo, que intento que sea lo m\u00e1s feliz posible" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2023\/05\/30\/bob-pop-vivo-instalado-en-el-presente-continuo-que-intento-que-sea-lo-mas-feliz-posible\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Bob Pop: "Vivo instalado en el presente continuo, que intento que sea lo m\u00e1s feliz posible" - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Roberto Enr\u00edquez, conocido por todos como Bob Pop, reconoci\u00f3 p\u00fablicamente hace cuatro a\u00f1os que ten\u00eda esclerosis m\u00faltiple, pero la enfermedad ya llevaba con \u00e9l m\u00e1s de 20 a\u00f1os. 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