{"id":7250,"date":"2021-06-03T06:58:00","date_gmt":"2021-06-03T06:58:00","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2021\/06\/03\/ya-estan-disponibles-los-nuevos-materiales-para-promover-la-primera-resolucion-de-la-onu-sobre-er\/"},"modified":"2021-06-03T06:58:00","modified_gmt":"2021-06-03T06:58:00","slug":"ya-estan-disponibles-los-nuevos-materiales-para-promover-la-primera-resolucion-de-la-onu-sobre-er","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2021\/06\/03\/ya-estan-disponibles-los-nuevos-materiales-para-promover-la-primera-resolucion-de-la-onu-sobre-er\/","title":{"rendered":"Ya est\u00e1n disponibles los nuevos materiales para promover la primera resoluci\u00f3n de la ONU sobre ER"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

EURORDIS, Rare Diseases International (RDI) y el Comit\u00e9 de ONG para las Enfermedades Raras han desarrollado un conjunto de materiales para apoyar la campa\u00f1a global que pide la primera Resoluci\u00f3n de la ONU sobre las personas que viven con una enfermedad rara y sus familias.<\/p>\n

Desde estas entidades y desde FEDER, te invitamos a utilizar estos materiales f\u00e1ciles de descargar, que incluyen un modelo de carta para los responsables pol\u00edticos, mensajes e im\u00e1genes en las redes sociales y otros materiales de apoyo para defender a las personas que viven con una enfermedad rara y crear conciencia entre los responsables pol\u00edticos nacionales y los representantes permanentes en las Naciones Unidas.<\/p>\n

Las herramientas de #Resolution4Rare est\u00e1n dise\u00f1adas para empoderar a las personas que viven con una enfermedad rara, a sus familias, a los grupos de la sociedad civil y a todos los que quieran ayudar a amplificar el llamado global para una resoluci\u00f3n de la ONU en 2021. Se cargar\u00e1n nuevos materiales todos los meses.<\/p>\n

\u00a1Pr\u00f3ximamente en junio, herramientas en m\u00e1s idiomas, nuevas im\u00e1genes de redes sociales y un kit de reuniones en l\u00ednea!<\/p>\n

\u00daltima actualizaci\u00f3n 10\/05\/2021<\/p>\n<\/p>\n

Fuente: FEDER Ya est\u00e1n disponibles los nuevos materiales para promover la primera resoluci\u00f3n de la ONU sobre ER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: EURORDIS, Rare Diseases International (RDI) y el Comit\u00e9 de ONG para las Enfermedades Raras han desarrollado un conjunto de materiales para apoyar la campa\u00f1a global que pide la primera Resoluci\u00f3n de la ONU sobre las personas que viven con una enfermedad rara y […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-7250","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nYa est\u00e1n disponibles los nuevos materiales para promover la primera resoluci\u00f3n de la ONU sobre ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2021\/06\/03\/ya-estan-disponibles-los-nuevos-materiales-para-promover-la-primera-resolucion-de-la-onu-sobre-er\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ya est\u00e1n disponibles los nuevos materiales para promover la primera resoluci\u00f3n de la ONU sobre ER - 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