{"id":7216,"date":"2021-05-27T04:51:36","date_gmt":"2021-05-27T04:51:36","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/27\/nos-adherimos-al-dia-de-la-concienciacion-de-las-colagenopatias-tipo-ii\/"},"modified":"2021-05-27T04:51:36","modified_gmt":"2021-05-27T04:51:36","slug":"nos-adherimos-al-dia-de-la-concienciacion-de-las-colagenopatias-tipo-ii","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/27\/nos-adherimos-al-dia-de-la-concienciacion-de-las-colagenopatias-tipo-ii\/","title":{"rendered":"Nos adherimos al D\u00eda de la Concienciaci\u00f3n de las Colagenopat\u00edas tipo II"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

La Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) se suma al D\u00eda de la Concienciaci\u00f3n de las Colagenopat\u00edas de tipo II para potenciarla la sensibilizaci\u00f3n social y mejorar, as\u00ed, la calidad de vida de las personas que conviven con alguna de estas patolog\u00edas poco frecuentes.<\/p>\n

Las Colagenopat\u00edas Tipo II se produce por mutaciones en el gen COL2A1, produciendo una serie de des\u00f3rdenes que se caracterizan cl\u00ednicamente por afecciones en el \u00e1mbito ocular, m\u00fasculo-esquel\u00e9tico, oro-facial, y auditivas, dado que el col\u00e1geno tipo II se encuentra en mayor grado en el cart\u00edlago articular, el Humor v\u00edtreo o en el O\u00eddo interno.<\/p>\n

\u201cToda la familia FEDER se une a esta jornada para impulsar la transformaci\u00f3n social y reflejar la realidad de las personas que conviven con alguna Colagenopat\u00eda Tipo II. Adem\u00e1s, en esta jornada, queremos trasladar nuestro apoyo a las familias y a las entidades del movimiento asociativo que trabajan diariamente por el colectivo\u201d a\u00f1ade Juan Carri\u00f3n, presidente de FEDER y su Fundaci\u00f3n.<\/p>\n

Y es que, las asociaciones de pacientes se conviertes en un pilar fundamental para las personas que conviven con alguna enfermedad poco frecuente, en este caso, con Colagenopat\u00edas de Tipo II. Las entidades trabajan para garantizar el bienestar del colectivo, todo ello, difunden informaci\u00f3n sobre la patolog\u00eda, orientan a los pacientes y a las familias, defienden sus derechos o potencian la investigaci\u00f3n cient\u00edfica.<\/p>\n

Todo ello, es gracias a la labor diaria de entidades como Asociaci\u00f3n de Familiares y Afectados por el S\u00edndrome de Stickler, SEDC y otras Colagenopat\u00edas Tipo II (COL2A1) (AFASCOL) y la Asociaci\u00f3n Nacional del S\u00edndrome de Ehlers Danlos, Hiperlaxitud y Colagenopat\u00edas (ANSEDH).<\/p>\n

\u00daltima actualizaci\u00f3n 27\/05\/2021<\/p>\n<\/p>\n

Fuente: FEDER Nos adherimos al D\u00eda de la Concienciaci\u00f3n de las Colagenopat\u00edas tipo II<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) se suma al D\u00eda de la Concienciaci\u00f3n de las Colagenopat\u00edas de tipo II para potenciarla la sensibilizaci\u00f3n social y mejorar, as\u00ed, la calidad de vida de las personas que conviven con alguna de estas patolog\u00edas poco […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-7216","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nNos adherimos al D\u00eda de la Concienciaci\u00f3n de las Colagenopat\u00edas tipo II - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2021\/05\/27\/nos-adherimos-al-dia-de-la-concienciacion-de-las-colagenopatias-tipo-ii\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nos adherimos al D\u00eda de la Concienciaci\u00f3n de las Colagenopat\u00edas tipo II - 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