{"id":7184,"date":"2021-05-19T09:43:29","date_gmt":"2021-05-19T09:43:29","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/19\/eco-en-el-congreso-de-nuestro-posicionamiento-para-integrar-er-en-la-vacunacion\/"},"modified":"2021-05-19T09:43:29","modified_gmt":"2021-05-19T09:43:29","slug":"eco-en-el-congreso-de-nuestro-posicionamiento-para-integrar-er-en-la-vacunacion","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/19\/eco-en-el-congreso-de-nuestro-posicionamiento-para-integrar-er-en-la-vacunacion\/","title":{"rendered":"Eco en el Congreso de nuestro posicionamiento para integrar ER en la vacunaci\u00f3n"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>El Grupo Parlamentario Plural en el Congreso ha presentado una Proposici\u00f3n no de Ley que aterriza nuestro posicionamiento y datos sobre la Estrategia de Vacunaci\u00f3n frente a COVID-19 en la c\u00e1mara parlamentaria, instando al gobierno a contemplar a las personas con enfermedades raras y sin diagn\u00f3stico que comporten especial vulnerabilidad frente a la COVID-19, especialmente aquellas que conlleven alteraciones significativas de la funci\u00f3n cardiaca y respiratoria.<\/p>\n<p>En concreto, la iniciativa parlamentaria insta al Gobierno a:<\/p>\n<p>1. Priorizar dentro de la Estrategia de vacunaci\u00f3n frente a la COVID-19 del Ministerio de Sanidad a las personas con enfermedades raras y sin diagn\u00f3stico que comporten especial vulnerabilidad frente a la COVID-19, especialmente aquellas que conlleven alteraciones significativas de la funci\u00f3n cardiaca y respiratoria. <\/p>\n<p>2. Realizar un estudio en sinton\u00eda con la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras con el fin de determinar qu\u00e9 patolog\u00edas dentro de las consideradas enfermedades raras, suponen un riesgo a\u00f1adido, ya sea por razones salud o de aislamiento social. <\/p>\n<p>3. Establecer los canales de comunicaci\u00f3n e informaci\u00f3n necesarios para reducir la incertidumbre de las familias, que ya viven en una situaci\u00f3n de aislamiento y desinformaci\u00f3n derivado de la propia enfermedad con la que conviven.<\/p>\n<p>\u00daltima actualizaci\u00f3n: 19\/05\/2021.<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/15388-eco-en-el-congreso-de-nuestro-posicionamiento-para-integrar-er-en-la-vacunaci%C3%B3n\" target=\"_blank\" rel=\"noopener\">Eco en el Congreso de nuestro posicionamiento para integrar ER en la vacunaci\u00f3n<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El Grupo Parlamentario Plural en el Congreso ha presentado una Proposici\u00f3n no de Ley que aterriza nuestro posicionamiento y datos sobre la Estrategia de Vacunaci\u00f3n frente a COVID-19 en la c\u00e1mara parlamentaria, instando al gobierno a contemplar a las personas con enfermedades raras [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-7184","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - 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