{"id":7183,"date":"2021-05-19T08:57:53","date_gmt":"2021-05-19T08:57:53","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/19\/nos-adherimos-al-dia-internacional-de-la-enfermedad-de-behcet\/"},"modified":"2021-05-19T08:57:53","modified_gmt":"2021-05-19T08:57:53","slug":"nos-adherimos-al-dia-internacional-de-la-enfermedad-de-behcet","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/19\/nos-adherimos-al-dia-internacional-de-la-enfermedad-de-behcet\/","title":{"rendered":"Nos adherimos al D\u00eda Internacional de la Enfermedad de Beh\u00e7et"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

 <\/p>\n

Ma\u00f1ana, 20 de mayo, se celebra el D\u00eda Internacional de la Enfermedad de Beh\u00e7et para concienciar a la sociedad de esta enfermedad poco frecuente. Adem\u00e1s de, recordar la importancia de la investigaci\u00f3n cient\u00edfica para conseguir un tratamiento que mejore la calidad de vida de los pacientes de esta patolog\u00eda, es por ello que, desde la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) se adhieren a esta jornada para solidarizarse con las personas que conviven con esta condici\u00f3n.<\/p>\n

La enfermedad de Beh\u00e7et es una enfermedad multisist\u00e9mica cr\u00f3nica de causa desconocida, caracterizada por un curso recurrente, que evoluciona en brotes y con compromiso inflamatorio de los vasos sangu\u00edneos de todos los calibres. Las manifestaciones m\u00e1s frecuentes son: Aftas orales y genitales, lesiones oculares, cut\u00e1neas, artritis, manifestaciones neurol\u00f3gicas, gastrointestinales, vasculares, nefrourol\u00f3gicas, cardiopulmonares y psiqui\u00e1tricas.<\/p>\n

\u201cDesde la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras nos sumamos a este d\u00eda en el que, la sensibilizaci\u00f3n es la protagonista. Adem\u00e1s, queremos mostrar todo nuestro apoyo a aquellos pacientes con Enfermedad de Beh\u00e7et, as\u00ed como a sus familiares\u201d Afirma Juan Carri\u00f3n, Presidente de FEDER y su Fundaci\u00f3n.<\/p>\n

La Federaci\u00f3n, tambi\u00e9n, desea reconocer y aplaudir la labor que realizan las entidades que forman el movimiento asociativo vinculado a esta enfermedad poco frecuente, ya que, trabajan d\u00eda a d\u00eda para informar a la sociedad sobre la patolog\u00eda, defender los derechos de los pacientes, impulsar la investigaci\u00f3n y facilitar recursos a pacientes y familias. Esto es posible, gracias al esfuerzo de asociaciones como la Asociaci\u00f3n Espa\u00f1ola de la Enfermedad de Beh\u00e7et.<\/p>\n

S\u00famate al Reto de la Cedilla en este D\u00eda Mundial<\/span><\/p>\n

La entidad lanza a lo largo de esta semana el Reto de la Cedilla que consiste en alcanzar 500 fotograf\u00edas con una \u00c7 pintada en alguna parte visible del cuerpo de pacientes, familiares y amigos.
Las personas que quieran colaborar en este reto, pueden enviar su instant\u00e1nea a behcet@behcet.es<\/a> o adjuntarla en el apartado de la noticia del 20 de mayo en su web.<\/p>\n

\u00daltima actualizaci\u00f3n 19\/05\/2021<\/p>\n

 <\/p>\n

 <\/p>\n

Fuente: FEDER Nos adherimos al D\u00eda Internacional de la Enfermedad de Beh\u00e7et<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra:   Ma\u00f1ana, 20 de mayo, se celebra el D\u00eda Internacional de la Enfermedad de Beh\u00e7et para concienciar a la sociedad de esta enfermedad poco frecuente. Adem\u00e1s de, recordar la importancia de la investigaci\u00f3n cient\u00edfica para conseguir un tratamiento que mejore la calidad de […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-7183","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nNos adherimos al D\u00eda Internacional de la Enfermedad de Beh\u00e7et - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2021\/05\/19\/nos-adherimos-al-dia-internacional-de-la-enfermedad-de-behcet\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nos adherimos al D\u00eda Internacional de la Enfermedad de Beh\u00e7et - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra:   Ma\u00f1ana, 20 de mayo, se celebra el D\u00eda Internacional de la Enfermedad de Beh\u00e7et para concienciar a la sociedad de esta enfermedad poco frecuente. 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