{"id":7144,"date":"2021-05-10T10:13:34","date_gmt":"2021-05-10T10:13:34","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/"},"modified":"2021-05-10T10:13:34","modified_gmt":"2021-05-10T10:13:34","slug":"asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/","title":{"rendered":"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p>El pasado 23 de marzo, estuvimos presentes en el primer encuentro de entidades de pacientes que forma parte de la UDNI, Undiagnosed Diseases Network International, en esta ocasi\u00f3n estuvimos representados por Patricia Arias, responsable del \u00e1rea de Investigaci\u00f3n y Conocimiento de FEDER.<\/p>\n<p>En esta ocasi\u00f3n, trasladamos nuestro apoyo y la visi\u00f3n de los pacientes a la red, as\u00ed como el trabajo de FEDER y las necesidades comunes de nuestro colectivo en Espa\u00f1a.<\/p>\n<p>La UDNI es una red de profesionales cl\u00ednicos de distintas partes del mundo que trabajan de manera coordinada para mejorar el diagn\u00f3stico de los pacientes, incrementar la investigaci\u00f3n cient\u00edfica e impulsar las sinergias entre profesionales vinculados a enfermedades raras.<\/p>\n<p>\u00daltima actualizaci\u00f3n 10\/05\/2021<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/15330-asistimos-a-la-i-reuni%C3%B3n-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\" target=\"_blank\" rel=\"noopener\">Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El pasado 23 de marzo, estuvimos presentes en el primer encuentro de entidades de pacientes que forma parte de la UDNI, Undiagnosed Diseases Network International, en esta ocasi\u00f3n estuvimos representados por Patricia Arias, responsable del \u00e1rea de Investigaci\u00f3n y Conocimiento de FEDER. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-7144","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El pasado 23 de marzo, estuvimos presentes en el primer encuentro de entidades de pacientes que forma parte de la UDNI, Undiagnosed Diseases Network International, en esta ocasi\u00f3n estuvimos representados por Patricia Arias, responsable del \u00e1rea de Investigaci\u00f3n y Conocimiento de FEDER. [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2021-05-10T10:13:34+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2021\\\/05\\\/10\\\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2021\\\/05\\\/10\\\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI\",\"datePublished\":\"2021-05-10T10:13:34+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2021\\\/05\\\/10\\\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\\\/\"},\"wordCount\":168,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2021\\\/05\\\/10\\\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2021\\\/05\\\/10\\\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2021\\\/05\\\/10\\\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\\\/\",\"name\":\"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\"},\"datePublished\":\"2021-05-10T10:13:34+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2021\\\/05\\\/10\\\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2021\\\/05\\\/10\\\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2021\\\/05\\\/10\\\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/sindromecharge.es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/\",\"name\":\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/sindromecharge.es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\",\"name\":\"Charge\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"caption\":\"Charge\"},\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/","og_locale":"es_ES","og_type":"article","og_title":"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","og_description":"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El pasado 23 de marzo, estuvimos presentes en el primer encuentro de entidades de pacientes que forma parte de la UDNI, Undiagnosed Diseases Network International, en esta ocasi\u00f3n estuvimos representados por Patricia Arias, responsable del \u00e1rea de Investigaci\u00f3n y Conocimiento de FEDER. [&hellip;]","og_url":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/","og_site_name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","article_publisher":"https:\/\/www.facebook.com\/asociacionsindromecharge","article_published_time":"2021-05-10T10:13:34+00:00","og_image":[{"width":300,"height":98,"url":"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png","type":"image\/png"}],"author":"Charge","twitter_card":"summary_large_image","twitter_creator":"@sindromecharge","twitter_site":"@sindromecharge","twitter_misc":{"Escrito por":"Charge","Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/#article","isPartOf":{"@id":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/"},"author":{"name":"Charge","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"headline":"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI","datePublished":"2021-05-10T10:13:34+00:00","mainEntityOfPage":{"@id":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/"},"wordCount":168,"commentCount":0,"keywords":["enfermedades raras"],"articleSection":["noticias"],"inLanguage":"es","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/","url":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/","name":"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","isPartOf":{"@id":"https:\/\/sindromecharge.es\/#website"},"datePublished":"2021-05-10T10:13:34+00:00","author":{"@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"breadcrumb":{"@id":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/sindromecharge.es\/index.php\/2021\/05\/10\/asistimos-a-la-i-reunion-de-asociaciones-de-pacientes-que-formamos-parte-de-udni\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/sindromecharge.es\/"},{"@type":"ListItem","position":2,"name":"Asistimos a la I reuni\u00f3n de Asociaciones de pacientes que formamos parte de UDNI"}]},{"@type":"WebSite","@id":"https:\/\/sindromecharge.es\/#website","url":"https:\/\/sindromecharge.es\/","name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/sindromecharge.es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039","name":"Charge","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","url":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","caption":"Charge"},"url":"https:\/\/sindromecharge.es\/index.php\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/7144","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/comments?post=7144"}],"version-history":[{"count":0,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/7144\/revisions"}],"wp:attachment":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/media?parent=7144"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/categories?post=7144"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/tags?post=7144"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}