{"id":6959,"date":"2021-03-25T12:12:20","date_gmt":"2021-03-25T12:12:20","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2021\/03\/25\/nos-reunimos-con-asem-clm-y-conocemos-su-labor-por-el-colectivo\/"},"modified":"2021-03-25T12:12:20","modified_gmt":"2021-03-25T12:12:20","slug":"nos-reunimos-con-asem-clm-y-conocemos-su-labor-por-el-colectivo","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2021\/03\/25\/nos-reunimos-con-asem-clm-y-conocemos-su-labor-por-el-colectivo\/","title":{"rendered":"Nos reunimos con ASEM CLM y conocemos su labor por el colectivo"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

 <\/p>\n

Nuestro presidente, Juan Carri\u00f3n, se ha reunido con la presidenta, Bego\u00f1a Mart\u00edn, presidenta de la Asociaci\u00f3n de Enfermedades Raras Neuromusculares de Castilla-La Mancha (ASEM CLM) para conocer el centro que presta atenci\u00f3n a las personas que conviven con estas patolog\u00edas.<\/p>\n

Adem\u00e1s, pudimos conocer al equipo profesional que trabaja en el centro y vela por el bienestar y la calidad de vida de las personas que conviven con Enfermedades Raras Neuromusculares. Este equipo es multidisciplinar, convirtiendo a la entidad en un referente en la atenci\u00f3n integral al colectivo.<\/p>\n

As\u00ed mismo, la Presidenta de ASEM CLM present\u00f3 a FEDER el proyecto innovador, con el que han colaborado con el Hospital de Talavera de la Reina para implantar un protocolo de atenci\u00f3n en urgencias, dirigido a personas con Enfermedades Raras Neuromusculares, pionero en Espa\u00f1a.<\/p>\n

Aprovechando la ocasi\u00f3n, nuestro presidente les felicit\u00f3 por llevar a cabo esta iniciativa, adem\u00e1s, manifi\u00e9stanos nuestro deseo de poder seguir trabajando para que este tipo de buenas pr\u00e1cticas se puedan implementar en otros hospitales de Espa\u00f1a y que la atenci\u00f3n en los procesos de urgencias al colectivo sea una realidad.<\/p>\n

Conoce m\u00e1s sobre ASEM CLM<\/span><\/p>\n

Asociaci\u00f3n de Enfermedades Neuromusculares de Castilla La Mancha. Una entidad sin \u00e1nimo de lucro de \u00e1mbito regional. Asimismo desde octubre de 2008 ASEM CLM es una entidad declarada de Utilidad P\u00fablica.<\/p>\n

ASEM CLM forma parte de la Federaci\u00f3n Espa\u00f1ola de Enfermos Neuromusculares siguiendo sus metas dentro de nuestro \u00e1mbito territorial.<\/p>\n

Con nuestra asociaci\u00f3n pretendemos proporcionar todo tipo de acciones, actividades, divulgaci\u00f3n, sensibilizaci\u00f3n e informaci\u00f3n destinada a mejorar la calidad de vida, la integraci\u00f3n y el desarrollo de las personas afectadas por enfermedades neuromusculares, cong\u00e9nitas, degenerativas y cr\u00f3nicas, y del sistema nervioso perif\u00e9rico, as\u00ed como la intervenci\u00f3n con sus familias.<\/p>\n

\u00daltima actualizaci\u00f3n 25\/03\/2021<\/p>\n

 <\/p>\n

Fuente: FEDER Nos reunimos con ASEM CLM y conocemos su labor por el colectivo<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra:   Nuestro presidente, Juan Carri\u00f3n, se ha reunido con la presidenta, Bego\u00f1a Mart\u00edn, presidenta de la Asociaci\u00f3n de Enfermedades Raras Neuromusculares de Castilla-La Mancha (ASEM CLM) para conocer el centro que presta atenci\u00f3n a las personas que conviven con estas patolog\u00edas. Adem\u00e1s, pudimos […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-6959","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nNos reunimos con ASEM CLM y conocemos su labor por el colectivo - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2021\/03\/25\/nos-reunimos-con-asem-clm-y-conocemos-su-labor-por-el-colectivo\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nos reunimos con ASEM CLM y conocemos su labor por el colectivo - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra:   Nuestro presidente, Juan Carri\u00f3n, se ha reunido con la presidenta, Bego\u00f1a Mart\u00edn, presidenta de la Asociaci\u00f3n de Enfermedades Raras Neuromusculares de Castilla-La Mancha (ASEM CLM) para conocer el centro que presta atenci\u00f3n a las personas que conviven con estas patolog\u00edas. 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