{"id":6903,"date":"2021-03-08T09:53:24","date_gmt":"2021-03-08T09:53:24","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2021\/03\/08\/celebramos-nuestras-jornadas-de-puertas-abiertas-en-galicia\/"},"modified":"2021-03-08T09:53:24","modified_gmt":"2021-03-08T09:53:24","slug":"celebramos-nuestras-jornadas-de-puertas-abiertas-en-galicia","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2021\/03\/08\/celebramos-nuestras-jornadas-de-puertas-abiertas-en-galicia\/","title":{"rendered":"Celebramos nuestras Jornadas de Puertas Abiertas en Galicia"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

El 9 de marzo, celebraremos de manera virtual, las Jornadas de Puertas Abiertas en Galicia En este encuentro, contamos con la representaci\u00f3n de Manuela Arufe, miembro de la Junta Directiva de FEDER y Juan Carri\u00f3n, Presidente de FEDER y su Fundaci\u00f3n y Luj\u00e1n Echandi, responsable del \u00e1rea de participaci\u00f3n asociativa de FEDER<\/p>\n

A trav\u00e9s de este encuentro, nuestro tejido asociativo en Galicia, compuesto por m\u00e1s de 385 asociaciones, se tendr\u00e1 la oportunidad de conocer m\u00e1s sobre nuestra labor. Adem\u00e1s, podremos compartir experiencias, poniendo la mirada en el futuro para mejorar la calidad de vida de los m\u00e1s de tres millones de personas que conviven en Espa\u00f1a con alguna enfermedad poco frecuente.<\/p>\n

Queremos dar las gracias al Ministerio de Derechos Sociales y Agenda 2030, a la Junta de Andaluc\u00eda, a la Diputaci\u00f3n de Badajoz, al Ayuntmaiento de Madrid, a la Regi\u00f3n de Murcia, al Gobierno Vasco, a la Diputaci\u00f3n Foral de Guip\u00fazcoa, a la Junta de Extremadura, a la Generalitat Valenciana, a Grifols, a Sanofi Genzyme, a Takeda, Boehringer Ingelheim Espa\u00f1a y a la Fundaci\u00f3n Jes\u00fas Serra por hacer posible este encuentro.<\/p>\n

\u00daltima actualizaci\u00f3n 08\/03\/2021<\/p>\n<\/p>\n

Fuente: FEDER Celebramos nuestras Jornadas de Puertas Abiertas en Galicia<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 9 de marzo, celebraremos de manera virtual, las Jornadas de Puertas Abiertas en Galicia En este encuentro, contamos con la representaci\u00f3n de Manuela Arufe, miembro de la Junta Directiva de FEDER y Juan Carri\u00f3n, Presidente de FEDER y su Fundaci\u00f3n y Luj\u00e1n […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-6903","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nCelebramos nuestras Jornadas de Puertas Abiertas en Galicia - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2021\/03\/08\/celebramos-nuestras-jornadas-de-puertas-abiertas-en-galicia\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Celebramos nuestras Jornadas de Puertas Abiertas en Galicia - 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