{"id":6883,"date":"2021-03-03T06:11:38","date_gmt":"2021-03-03T06:11:38","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2021\/03\/03\/silencio-y-gota-a-gota-ganadoras-del-primer-concurso-ciberer-de-fotografia-sobre-investigacion-en-er\/"},"modified":"2021-03-03T06:11:38","modified_gmt":"2021-03-03T06:11:38","slug":"silencio-y-gota-a-gota-ganadoras-del-primer-concurso-ciberer-de-fotografia-sobre-investigacion-en-er","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2021\/03\/03\/silencio-y-gota-a-gota-ganadoras-del-primer-concurso-ciberer-de-fotografia-sobre-investigacion-en-er\/","title":{"rendered":"\u2018Silencio\u2019 y \u2018Gota a gota\u2019, ganadoras del primer Concurso CIBERER de Fotograf\u00eda sobre Investigaci\u00f3n en ER"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>Fuente: CIBERER. La Jornada \u201cInvestigar es Avanzar\u201d, celebrada el domingo 28 de febrero en el marco del D\u00eda Mundial de las Enfermedades Raras, ha acogido el acto de entrega de primer Concurso CIBERER de Fotograf\u00eda sobre Investigaci\u00f3n en Enfermedades Raras, una iniciativa que ha obtenido un gran \u00e9xito, por las 28 fotograf\u00edas de gran diversidad y calidad que se han presentado y las m\u00e1s de 2.200 personas que han participado en la votaci\u00f3n.<\/p>\n<p>La fotograf\u00eda ganadora del Premio del P\u00fablico ha sido \u201cGota a Gota\u201d de Cristina N\u00fa\u00f1ez de Arenas, investigadora de la U713 CIBERER que lidera Jos\u00e9 Manuel Cuezva. Esta imagen, que ha recibido 697 votos, muestra la punta de impresi\u00f3n piezoel\u00e9ctrica que ha escrito, con gotas de 170pl, el nombre de la plataforma de arrays de prote\u00ednas PROTEOmAb. Esta metodolog\u00eda est\u00e1 especialmente indicada para estudios de cohortes en enfermedades raras.<\/p>\n<p>El Premio del Jurado, integrado por los miembros del Consejo Asesor de Pacientes (CAP) del CIBERER, ha reca\u00eddo en la foto \u201cSilencio\u201d de Jos\u00e9 Mar\u00eda Berm\u00fadez, investigador de la U761 CIBERER que lidera Isabel Varela-Nieto. Esta imagen muestra un fragmento del \u00f3rgano de Corti de rat\u00f3n que ilustra la p\u00e9rdida irremplazable de c\u00e9lulas sensoriales marcadas en verde y de fibras nerviosas aferentes en rojo. Su muerte es la principal causa de sordera asociada a varios s\u00edndromes y enfermedades raras.<\/p>\n<p>Con las 28 fotograf\u00edas recibidas, se ha editado un v\u00eddeo divulgativo que ilustra la actividad desarrollada por los investigadores del CIBERER y que pod\u00e9is ver en este enlace que adjuntamos en la parte superior de la noticia.<\/p>\n<p>El Premio del P\u00fablico ha sido entregado por Llu\u00eds Montoliu, investigador de la U756 CIBERER y moderador de la Jornada \u201cInvestigar es Avanzar\u201d, y el del jurado por Manuel Rego, presidente de Federaci\u00f3n ASEM y del CAP del CIBERER. Cada uno de los premios est\u00e1 dotado con 500 euros.<\/p>\n<p>Tambi\u00e9n pod\u00e9is ver las 28 fotograf\u00edas con sus autores y explicaci\u00f3n <a href=\"https:\/\/forms.office.com\/Pages\/ResponsePage.aspx?id=sm6WoMJUm0mybwgwwlMfrzpkyRMj3SVBlxxXrn4LaclUODhVS0NJWlRHMk5QRFZGNDVUR0tWOE9ZNi4u\" target=\"_blank\" rel=\"noopener\">en este enlac<\/a>e.<\/p>\n<p>\u00daltima actualizaci\u00f3n 03\/03\/2021<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/15002-%E2%80%98silencio%E2%80%99-y-%E2%80%98gota-a-gota%E2%80%99%2C-ganadoras-del-primer-concurso-ciberer-de-fotograf%C3%ADa-sobre-investigaci%C3%B3n-en-er\" target=\"_blank\" rel=\"noopener\">\u2018Silencio\u2019 y \u2018Gota a gota\u2019, ganadoras del primer Concurso CIBERER de Fotograf\u00eda sobre Investigaci\u00f3n en ER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Fuente: CIBERER. La Jornada \u201cInvestigar es Avanzar\u201d, celebrada el domingo 28 de febrero en el marco del D\u00eda Mundial de las Enfermedades Raras, ha acogido el acto de entrega de primer Concurso CIBERER de Fotograf\u00eda sobre Investigaci\u00f3n en Enfermedades Raras, una iniciativa que [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-6883","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u2018Silencio\u2019 y \u2018Gota a gota\u2019, ganadoras del primer Concurso CIBERER de Fotograf\u00eda sobre Investigaci\u00f3n en ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2021\/03\/03\/silencio-y-gota-a-gota-ganadoras-del-primer-concurso-ciberer-de-fotografia-sobre-investigacion-en-er\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u2018Silencio\u2019 y \u2018Gota a gota\u2019, ganadoras del primer Concurso CIBERER de Fotograf\u00eda sobre Investigaci\u00f3n en ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Fuente: CIBERER. 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