{"id":6869,"date":"2021-02-26T13:44:17","date_gmt":"2021-02-26T13:44:17","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2021\/02\/26\/feder-posiciona-las-enfermedades-raras-en-radio-nacional-de-espana\/"},"modified":"2021-02-26T13:44:17","modified_gmt":"2021-02-26T13:44:17","slug":"feder-posiciona-las-enfermedades-raras-en-radio-nacional-de-espana","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2021\/02\/26\/feder-posiciona-las-enfermedades-raras-en-radio-nacional-de-espana\/","title":{"rendered":"FEDER posiciona las enfermedades raras en Radio Nacional de Espa\u00f1a"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

El pr\u00f3ximo 28 de febrero, estaremos presentes en Radio Nacional de Espa\u00f1a, ya que, con motivo de la campa\u00f1a del D\u00eda Mundial de las Enfermedades Raras, nuestro miembro de la Junta Directiva, David S\u00e1nchez, estar\u00e1 presente en la tertulia realizada por Carles M\u00e9sa a las 10:00 horas.<\/p>\n

\u00bfQu\u00e9 es el D\u00eda Mundial de las ER?<\/p>\n

La Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) celebra, en coordinaci\u00f3n con la Organizaci\u00f3n Europea de Enfermedades Raras (EURORDIS), con la Alianza Iberoamericana de Enfermedades Raras (ALIBER), y la Red Internacional de Enfermedades Raras (RDI) una campa\u00f1a de sensibilizaci\u00f3n enmarcada en el D\u00eda Mundial de las Enfermedades Raras. La campa\u00f1a tiene como objetivo concienciar sobre las enfermedades poco frecuentes y situarlas como una prioridad en la agenda social y sanitaria.<\/p>\n

\u00daltima actualizaci\u00f3n 26\/02\/2021<\/p>\n<\/p>\n

Fuente: FEDER FEDER posiciona las enfermedades raras en Radio Nacional de Espa\u00f1a<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pr\u00f3ximo 28 de febrero, estaremos presentes en Radio Nacional de Espa\u00f1a, ya que, con motivo de la campa\u00f1a del D\u00eda Mundial de las Enfermedades Raras, nuestro miembro de la Junta Directiva, David S\u00e1nchez, estar\u00e1 presente en la tertulia realizada por Carles M\u00e9sa […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-6869","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nFEDER posiciona las enfermedades raras en Radio Nacional de Espa\u00f1a - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2021\/02\/26\/feder-posiciona-las-enfermedades-raras-en-radio-nacional-de-espana\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"FEDER posiciona las enfermedades raras en Radio Nacional de Espa\u00f1a - 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