{"id":6399,"date":"2020-11-16T10:22:02","date_gmt":"2020-11-16T10:22:02","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2020\/11\/16\/trasladamos-nuestro-trabajo-por-el-colectivo-al-consell-consultiu-de-pacients\/"},"modified":"2020-11-16T10:22:02","modified_gmt":"2020-11-16T10:22:02","slug":"trasladamos-nuestro-trabajo-por-el-colectivo-al-consell-consultiu-de-pacients","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2020\/11\/16\/trasladamos-nuestro-trabajo-por-el-colectivo-al-consell-consultiu-de-pacients\/","title":{"rendered":"Trasladamos nuestro trabajo por el colectivo al Consell Consultiu de Pacients"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>El pasado 6 de noviembre nos reunimos con el Consell Consultiu de Pacients para trasladar la labor que realiza nuestra Federaci\u00f3n por el colectivo de personas con enfermedades poco frecuentes. En este encuentro, estuvimos representados por Alba Ancochea, Directora de FEDER, Anna Ripoll, Miembro de la Junta Directiva y Caterina Arag\u00f3n, T\u00e9cnico del Servicio de Informaci\u00f3n y Orientaci\u00f3n de FEDER.<\/p>\n<p>En este encuentro con Mireia Plana y Charo Hernando del Consell, quisimos encontrarnos para trasladar los servicios que ofrecemos desde FEDER para garantizar la calidad de vida de pacientes y familiares que conviven con alguna enfermedad poco frecuente.<\/p>\n<p>A trav\u00e9s de encuentros como este, conseguimos posicionar las enfermedades raras y el trabajo de FEDER y su tejido asociativo, el cual, est\u00e1 orientado para velar por el bienestar del colectivo, sobre todo en momentos tan vulnerables para pacientes y familiares como el actual derivado de la crisis sanitaria por la COVID-19<\/p>\n<p>\u00daltima actualizaci\u00f3n 16\/11\/2020<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/14501-trasladamos-nuestro-trabajo-por-el-colectivo-al-consell-consultiu-de-pacients\" target=\"_blank\" rel=\"noopener noreferrer\">Trasladamos nuestro trabajo por el colectivo al Consell Consultiu de Pacients<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pasado 6 de noviembre nos reunimos con el Consell Consultiu de Pacients para trasladar la labor que realiza nuestra Federaci\u00f3n por el colectivo de personas con enfermedades poco frecuentes. En este encuentro, estuvimos representados por Alba Ancochea, Directora de FEDER, Anna Ripoll, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-6399","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Trasladamos nuestro trabajo por el colectivo al Consell Consultiu de Pacients - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2020\/11\/16\/trasladamos-nuestro-trabajo-por-el-colectivo-al-consell-consultiu-de-pacients\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Trasladamos nuestro trabajo por el colectivo al Consell Consultiu de Pacients - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pasado 6 de noviembre nos reunimos con el Consell Consultiu de Pacients para trasladar la labor que realiza nuestra Federaci\u00f3n por el colectivo de personas con enfermedades poco frecuentes. 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