{"id":6386,"date":"2020-11-12T08:08:21","date_gmt":"2020-11-12T08:08:21","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2020\/11\/12\/abordamos-la-humanizacion-en-enfermedades-raras-en-el-evento-que-organiza-sobi\/"},"modified":"2020-11-12T08:08:21","modified_gmt":"2020-11-12T08:08:21","slug":"abordamos-la-humanizacion-en-enfermedades-raras-en-el-evento-que-organiza-sobi","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2020\/11\/12\/abordamos-la-humanizacion-en-enfermedades-raras-en-el-evento-que-organiza-sobi\/","title":{"rendered":"Abordamos la humanizaci\u00f3n en enfermedades raras en el evento que organiza SOBI"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>La farmace\u00fatica SOBI, con la Asociaci\u00f3n Espa\u00f1ola de Derechos Farmace\u00faticos, organiza la jornada virtual \u00abLa humanizaci\u00f3n enfermedades raras\u00bb en la que un grupo de expertos debatir\u00e1 en la sede de la Real Academia Nacional de Medicina sobre la asistencia sanitaria a los pacientes con enfermedades raras.<\/p>\n<p>A trav\u00e9s de este encuentro, en el que participaremos a trav\u00e9s de la intervenci\u00f3n de Juan Carri\u00f3n, Presidente de FEDER y su Fundaci\u00f3n, quien abordar\u00e1 la humanizaci\u00f3n de las enfermedades raras desde la perspectiva del paciente.<\/p>\n<p>Estos encuentros son fundamentales para mejorar la calidad de vida de nuestro colectivo, ya que, a trav\u00e9s del conocimiento conseguidos dar grandes pasos hacia un futuro de esperanza e ilusi\u00f3n para los m\u00e1s de tres millones de personas con enfermedades raras en Espa\u00f1a.<\/p>\n<p>Por todo ello, desde FEDER aplaudimos la creaci\u00f3n de eventos en donde se posicionan las problem\u00e1ticas a las que se enfrentan nuestro colectivo como son el diagn\u00f3stico tardio y la falta de tratamiento.<\/p>\n<p>\u00daltima actualizaci\u00f3n 12\/11\/2020<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/14492-abordamos-la-humanizaci%C3%B3n-en-enfermedades-raras-en-el-evento-que-organiza-sobi\" target=\"_blank\" rel=\"noopener noreferrer\">Abordamos la humanizaci\u00f3n en enfermedades raras en el evento que organiza SOBI<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La farmace\u00fatica SOBI, con la Asociaci\u00f3n Espa\u00f1ola de Derechos Farmace\u00faticos, organiza la jornada virtual \u00abLa humanizaci\u00f3n enfermedades raras\u00bb en la que un grupo de expertos debatir\u00e1 en la sede de la Real Academia Nacional de Medicina sobre la asistencia sanitaria a los pacientes [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-6386","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - 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