{"id":6280,"date":"2020-10-20T07:46:16","date_gmt":"2020-10-20T07:46:16","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2020\/10\/20\/trasladamos-la-importancia-del-papel-del-paciente-en-la-investigacion-en-el-cafe-cientifico-sobre-er\/"},"modified":"2020-10-20T07:46:16","modified_gmt":"2020-10-20T07:46:16","slug":"trasladamos-la-importancia-del-papel-del-paciente-en-la-investigacion-en-el-cafe-cientifico-sobre-er","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2020\/10\/20\/trasladamos-la-importancia-del-papel-del-paciente-en-la-investigacion-en-el-cafe-cientifico-sobre-er\/","title":{"rendered":"Trasladamos la importancia del papel del paciente en la investigaci\u00f3n en el Caf\u00e9 Cient\u00edfico sobre ER"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>El 21 de octubre a las 19:00 participamos, a trav\u00e9s de la representaci\u00f3n de Alba Ancochea, Directora de FEDER, en el Caf\u00e9 Cient\u00edfico sobre Ciencia, Medicina y Pacientes: Un trabajo en equipo para tratar las enfermedades raras.<\/p>\n<p>A trav\u00e9s de la realizaci\u00f3n de estos Caf\u00e9s Cient\u00edficos se consigue crear un espacio de di\u00e1logo entre expertos en un tema de actualidad de base cient\u00edfica y el p\u00fablico general, fomentando el esp\u00edritu cr\u00edtico y el enriquecimiento mutuo de cient\u00edficos y ciudadanos, as\u00ed como el intercambio de visiones y reflexiones.<\/p>\n<p>En este encuentro online, expertos sobre el abordaje de las enfermedades raras hablar\u00e1n sobre c\u00f3mo contribuye la investigaci\u00f3n biom\u00e9dica al diagn\u00f3stico de las enfermedades raras, cual es la informaci\u00f3n m\u00e1s \u00fatil para los m\u00e9dicos, la importancia de la investigaci\u00f3n cient\u00edfica y el papel de los pacientes. Este evento se retransmitir\u00e1 en directo a trav\u00e9s de su cuenta de Facebook Live, Periscope o Youtube.<\/p>\n<p>Se dar\u00e1n cita virtual Leslie Matalonga, Genetista Cl\u00ednica al Centro Nacional de An\u00e1lisis Gen\u00f3mico &#8211; Centro de Regulaci\u00f3n Gen\u00f3mica (CNAG-CRG), Luis Alberto P\u00e9rez, Jefe de la Unidad de Gen\u00e9tica del Hospital del Mar, Catedr\u00e1tico de gen\u00e9tica de la Universitat Pompeu Fabra, pediatria, genetista y coordinador del grupo de gen\u00e9tica del Instituto del Hospital del Mar de Investigaciones M\u00e9dica y nuestra Directora, Alba Ancochea.<\/p>\n<p>Desde FEDER trasldaremos c\u00f3mo contribuyen las personas que conviven con alguna enfermedad poco frecuente en la investigaci\u00f3n y las necesidades espec\u00edficas en el diagn\u00f3stico y en el tratamiento.<\/p>\n<p>Toda esta sesi\u00f3n estar\u00e1 moderada por Omar Jamshed y Marta Sol\u00eds, Divulgadores Cient\u00edficos del Departamento de Comunicaci\u00f3n del Centro de Regulaci\u00f3n Gen\u00f3mica.<\/p>\n<p>\u00daltima actualizaci\u00f3n 20\/10\/2020<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/14404-trasladamos-la-importancia-del-papel-del-paciente-en-la-investigaci%C3%B3n-en-el-caf%C3%A9-cient%C3%ADfico-sobre-er\" target=\"_blank\" rel=\"noopener noreferrer\">Trasladamos la importancia del papel del paciente en la investigaci\u00f3n en el Caf\u00e9 Cient\u00edfico sobre ER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 21 de octubre a las 19:00 participamos, a trav\u00e9s de la representaci\u00f3n de Alba Ancochea, Directora de FEDER, en el Caf\u00e9 Cient\u00edfico sobre Ciencia, Medicina y Pacientes: Un trabajo en equipo para tratar las enfermedades raras. A trav\u00e9s de la realizaci\u00f3n de [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-6280","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Trasladamos la importancia del papel del paciente en la investigaci\u00f3n en el Caf\u00e9 Cient\u00edfico sobre ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2020\/10\/20\/trasladamos-la-importancia-del-papel-del-paciente-en-la-investigacion-en-el-cafe-cientifico-sobre-er\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Trasladamos la importancia del papel del paciente en la investigaci\u00f3n en el Caf\u00e9 Cient\u00edfico sobre ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 21 de octubre a las 19:00 participamos, a trav\u00e9s de la representaci\u00f3n de Alba Ancochea, Directora de FEDER, en el Caf\u00e9 Cient\u00edfico sobre Ciencia, Medicina y Pacientes: Un trabajo en equipo para tratar las enfermedades raras. 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