{"id":6214,"date":"2020-10-01T06:24:48","date_gmt":"2020-10-01T06:24:48","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2020\/10\/01\/el-8-de-octubre-dgenes-celebra-un-webinar-sobre-el-sindrome-x-fragil\/"},"modified":"2020-10-01T06:24:48","modified_gmt":"2020-10-01T06:24:48","slug":"el-8-de-octubre-dgenes-celebra-un-webinar-sobre-el-sindrome-x-fragil","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2020\/10\/01\/el-8-de-octubre-dgenes-celebra-un-webinar-sobre-el-sindrome-x-fragil\/","title":{"rendered":"El 8 de octubre, D&#039;genes celebra un webinar sobre el S\u00edndrome X fragil"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>La Asociaci\u00f3n de Enfermedades Raras D\u00b4Genes ha organizado el pr\u00f3ximo 8 de octubre a las 16:30 horas un webinar sobre el S\u00edndrome X Fr\u00e1gil.<\/p>\n<p>La sesi\u00f3n contar\u00e1 con la intervenci\u00f3n del responsable de la Unidad de Gen\u00e9tica Molecular del Centro de Bioqu\u00edmica y Gen\u00e9tica Cl\u00ednica del Hospital Cl\u00ednico Universitario Virgen de la Arrixaca de Murcia, Guillermo Glover L\u00f3pez, que abordar\u00e1 actualizaciones en el S\u00edndrome X Fr\u00e1gil. Asimismo, intervendr\u00e1 la doctora Lidya Rodr\u00edguez Pe\u00f1a, especialista en Gen\u00e9tica Cl\u00ednica, que trabaja en asesoramiento gen\u00e9tico en la Secci\u00f3n de Gen\u00e9tica M\u00e9dica del Hospital Cl\u00ednico Universitario Virgen de la Arrixaca, y hablar\u00e1 durante su intervenci\u00f3n de \u201cFallo ov\u00e1rico precoz en portadoras de premutaci\u00f3n de X Fr\u00e1gil. Asesoramiento gen\u00e9tico y opciones reproductivas\u201d.<\/p>\n<p>Las personas interesadas en participar deben inscribirse hasta las 12:00 horas del 6 de octubre a trav\u00e9s del formulario habilitado en el siguiente enlace: <a href=\"https:\/\/forms.gle\/QpHHFSD6NPiPQyHp7\">https:\/\/forms.gle\/QpHHFSD6NPiPQyHp7<\/a> La inscripci\u00f3n es gratuita.<\/p>\n<p>El webinar se celebrar\u00e1 a trav\u00e9s de la plataforma zoom. Una vez formalizada la inscripci\u00f3n se enviar\u00e1 a la direcci\u00f3n de correo facilitada el enlace para acceder a la sesi\u00f3n. Las plazas para participar son limitadas.<\/p>\n<p>Para m\u00e1s informaci\u00f3n se puede contactar a trav\u00e9s del tel\u00e9fono 675 94 38 30 o el correo <a href=\"mailto:murcia@dgenes.es.\">murcia@dgenes.es.<\/a><\/p>\n<p>\u00daltima actualizaci\u00f3n 01\/10\/2020<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/14326-el-8-de-octubre%2C-d-genes-celebra-un-webinar-sobre-el-s%C3%ADndrome-x-fragil\" target=\"_blank\" rel=\"noopener noreferrer\">El 8 de octubre, D&#039;genes celebra un webinar sobre el S\u00edndrome X fragil<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Asociaci\u00f3n de Enfermedades Raras D\u00b4Genes ha organizado el pr\u00f3ximo 8 de octubre a las 16:30 horas un webinar sobre el S\u00edndrome X Fr\u00e1gil. La sesi\u00f3n contar\u00e1 con la intervenci\u00f3n del responsable de la Unidad de Gen\u00e9tica Molecular del Centro de Bioqu\u00edmica y [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-6214","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>El 8 de octubre, D&#039;genes celebra un webinar sobre el S\u00edndrome X fragil - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2020\/10\/01\/el-8-de-octubre-dgenes-celebra-un-webinar-sobre-el-sindrome-x-fragil\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El 8 de octubre, D&#039;genes celebra un webinar sobre el S\u00edndrome X fragil - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Asociaci\u00f3n de Enfermedades Raras D\u00b4Genes ha organizado el pr\u00f3ximo 8 de octubre a las 16:30 horas un webinar sobre el S\u00edndrome X Fr\u00e1gil. 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