{"id":6171,"date":"2020-09-23T05:54:00","date_gmt":"2020-09-23T05:54:00","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2020\/09\/23\/se-cumple-un-ano-de-la-declaracion-de-la-onu-sobre-cobertura-sanitaria-universal\/"},"modified":"2020-09-23T05:54:00","modified_gmt":"2020-09-23T05:54:00","slug":"se-cumple-un-ano-de-la-declaracion-de-la-onu-sobre-cobertura-sanitaria-universal","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2020\/09\/23\/se-cumple-un-ano-de-la-declaracion-de-la-onu-sobre-cobertura-sanitaria-universal\/","title":{"rendered":"\u00a1Se cumple un a\u00f1o de la declaraci\u00f3n de la ONU sobre cobertura sanitaria universal!"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>Fuente: <span style=\"text-decoration: underline\"><a href=\"https:\/\/www.rarediseasesinternational.org\/un-member-states-include-rare-diseases-in-political-declaration-on-universal-health-coverage\/\">RDI<\/a><\/span> | Los Estados miembros de la ONU adoptaron hace un a\u00f1o una declaraci\u00f3n pol\u00edtica sobre la Cobertura Universal de la Salud (UHC, por sus siglas en ingl\u00e9s) en la que se incluyen las enfermedades raras; un logro muy significativo para todo el movimiento global de enfermedades raras que supone el primer paso para instar a todos los pa\u00edses a llevar a cabo una estrategia com\u00fan frente a estas patolog\u00edas.<\/p>\n<p>El colectivo estuvo representado en esta cita por Yann Le Cam , Director Ejecutivo de EURORDIS-Rare Diseases Europe, miembro del Consejo de Enfermedades Raras Internacionales (RDI) y miembro del Comit\u00e9 Ejecutivo del Comit\u00e9 de ONG para Enfermedades Raras y Durhane Wong-Rieger , Presidenta del Consejo de RDI, Presidenta de la Organizaci\u00f3n Canadiense para los Trastornos Raros y Miembro de la Junta del Comit\u00e9 de ONG para Enfermedades Raras.<\/p>\n<p>La noticia se produjo, adem\u00e1s, pocos d\u00edas despu\u00e9s de que Juan Carri\u00f3n y Alba Ancochea, Presidente y Directora de nuestra organizaci\u00f3n, se reunieran con Durhane Wong-Rieger en Madrid para definir una hoja de ruta entre alianzas a nivel internacional para as\u00ed, frenar la equidad de las enfermedades raras en todo el mundo.<\/p>\n<p>Con esta perspectiva, EURORDIS-Rare Diseases Europe, RDI y el Comit\u00e9 de ONG para Enfermedades Raras presentaron una declaraci\u00f3n escrita conjunta que describe para incluir a los 300 millones de personas en todo el mundo que viven con una enfermedad rara dentro de la UHC para garantizar que \u201cnadie se quede atr\u00e1s\u201d, como reza el lema de la Agenda 2030.<\/p>\n<p>Un objetivo que Le Cam y Wong-Rieger compartieron ante figuras clave en la pol\u00edtica sanitaria internacional, incluidos el Dr. Tedros, Director General de la Organizaci\u00f3n Mundial de la Salud (OMS), la Sra. Michelle Bachelet, Alta Comisionada de las Naciones Unidas para los Derechos Humanos y el Sr. Keizo Takemi, UHC de la OMS Embajadora de buena voluntad.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 23\/09\/2020.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/14286-%C2%A1logro-las-enfermedades-raras%2C-incluidas-en-la-declaraci%C3%B3n-pol%C3%ADtica-sobre-cobertura-sanitaria-universal-4\" target=\"_blank\" rel=\"noopener noreferrer\">\u00a1Se cumple un a\u00f1o de la declaraci\u00f3n de la ONU sobre cobertura sanitaria universal!<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Fuente: RDI | Los Estados miembros de la ONU adoptaron hace un a\u00f1o una declaraci\u00f3n pol\u00edtica sobre la Cobertura Universal de la Salud (UHC, por sus siglas en ingl\u00e9s) en la que se incluyen las enfermedades raras; un logro muy significativo para todo [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-6171","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00a1Se cumple un a\u00f1o de la declaraci\u00f3n de la ONU sobre cobertura sanitaria universal! 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