{"id":6163,"date":"2020-09-22T06:15:56","date_gmt":"2020-09-22T06:15:56","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2020\/09\/22\/formamos-parte-de-la-iv-jornada-de-enfermedades-pulmonares-intersticiales-para-pacientes\/"},"modified":"2020-09-22T06:15:56","modified_gmt":"2020-09-22T06:15:56","slug":"formamos-parte-de-la-iv-jornada-de-enfermedades-pulmonares-intersticiales-para-pacientes","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2020\/09\/22\/formamos-parte-de-la-iv-jornada-de-enfermedades-pulmonares-intersticiales-para-pacientes\/","title":{"rendered":"Formamos parte de la IV Jornada de Enfermedades Pulmonares Intersticiales para pacientes"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>El pasado 17 de septiembre, desde FEDER participamos a trav\u00e9s de la representaci\u00f3n de Anna Ripoll, Vocal de la Junta Directiva de FEDER, en la IV Jornada de Enfermedades Pulmonares Intersticiales para pacientes que organiz\u00f3 el Grupo de Trabajo de estas patolog\u00edas del Hospital Clinic y en el que hemos trasladado el labor de nuestra Federaci\u00f3n y la de nuestro movimiento Asociativo, la cual es fundamental para garantizar el bienestar de nuestro colectivo.<\/p>\n<p>En esta jornada participaron expertos en enfermer\u00eda y neumolog\u00eda del Hospital Clinic y del Vall d&#8217;hebron, los cuales trataron temas como el S\u00edndrome de Fatiga Muscular, la Neumonitis por hipersensibilidad, las necesidades en educaci\u00f3n terape\u00fatica, la investigaci\u00f3n en EPID.<\/p>\n<p>Los pacientes tuvieron un espacio en el que trasladar sus experiencias y dudas. Adem\u00e1s, tambi\u00e9n se di\u00f3 voz a las asociaciones de pacientes y por ello, entidades como la Asociaci\u00f3n Espa\u00f1ola de Fibrosis Pulmonar Idiop\u00e1tica, la Associaci\u00f3 Catalana de Pacients amb Malaltia Respirat\u00f2ria avan\u00e7ada i Trasplantament Pulmonar, la Asociaci\u00f3n Nacional de Enfermos de Sarcoidosis y la Federaci\u00f3n Espa\u00f1ola de Asociaciones de Pacientes Al\u00e9rgicos y con Enfermedades Respiratorias tomaron la palabra al finalizar el encuentro.<\/p>\n<p>\u00daltima actualizaci\u00f3n 22\/09\/2020<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/14278-formamos-parte-de-la-iv-jornada-de-enfermedades-pulmonares-intersticiales-para-pacientes\" target=\"_blank\" rel=\"noopener noreferrer\">Formamos parte de la IV Jornada de Enfermedades Pulmonares Intersticiales para pacientes<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pasado 17 de septiembre, desde FEDER participamos a trav\u00e9s de la representaci\u00f3n de Anna Ripoll, Vocal de la Junta Directiva de FEDER, en la IV Jornada de Enfermedades Pulmonares Intersticiales para pacientes que organiz\u00f3 el Grupo de Trabajo de estas patolog\u00edas del [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-6163","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - 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