{"id":5997,"date":"2020-08-04T05:08:26","date_gmt":"2020-08-04T05:08:26","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2020\/08\/04\/te-sumas-al-reto-yorespiroporlafpi-descubre-como-puedes-hacerlo\/"},"modified":"2020-08-04T05:08:26","modified_gmt":"2020-08-04T05:08:26","slug":"te-sumas-al-reto-yorespiroporlafpi-descubre-como-puedes-hacerlo","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2020\/08\/04\/te-sumas-al-reto-yorespiroporlafpi-descubre-como-puedes-hacerlo\/","title":{"rendered":"\u00bfTe sumas al reto #YoRespiroPorLaFPI? Descubre c\u00f3mo puedes hacerlo"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>La entidad Boehringer Ingelheim, de la mano de la Sociedad Espa\u00f1ola de Neumolog\u00eda y Cirug\u00eda Tor\u00e1cica (SEPAR), la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) y la Asociaci\u00f3n de Familiares y Enfermos de Fibrosis Pulmonar Idiop\u00e1tica (AFEFPI), impulsa un nuevo reto que lleva como lema #YoRespiroPorLaFPI para as\u00ed, concienciar sobre la Fibrosis Pulmonar Idiop\u00e1tica.<\/p>\n<p><span style=\"text-decoration: underline\">\u00bfQu\u00e9 es la Fibrosis Pulmonar Idiop\u00e1tica?<\/span><\/p>\n<p>Es una enfermedad rara progresiva que provoca la acumulaci\u00f3n de tejido cicatricial en los pulmones.<\/p>\n<p>Cuando una persona presenta FPI, el tejido pulmonar, o los pulmones, se cicatrizan, se engrosan y se vuelven r\u00edgidos.<\/p>\n<p><span style=\"text-decoration: underline\">\u00bfC\u00f3mo puedo participar en el reto #YoRespiroPorLaFPI?<\/span><\/p>\n<p>T\u00fa tambi\u00e9n puedes colaborar en este reto, simplemente tendr\u00e1s que compartir tu foto con mascarilla en redes sociales utilizando el hashtag de la campa\u00f1a y as\u00ed, se contribuir\u00e1 a la visibilizaci\u00f3n de esta patolog\u00eda que tiene una incidencia de 10-60 personas por cada 100.000.<\/p>\n<p>Adem\u00e1s, tambi\u00e9n podr\u00e1s contribuir a la difusi\u00f3n de la importancia de un diagn\u00f3stico ya que, en Espa\u00f1a, la mitad de las personas que conviven con una enfermedad poco freucnete ha sufrido un retraso en su diagn\u00f3stico.<\/p>\n<p style=\"text-align: center\"><span style=\"font-size: 12pt\">\u00a1AN\u00cdMATE Y PARTICIPA!<\/span><\/p>\n<p>\u00daltima actualizaci\u00f3n 04\/08\/2020<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/14153-%C2%BFte-sumas-al-reto-yorespiroporlafpi-descubre-c%C3%B3mo-puedes-hacerlo\" target=\"_blank\" rel=\"noopener noreferrer\">\u00bfTe sumas al reto #YoRespiroPorLaFPI? Descubre c\u00f3mo puedes hacerlo<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La entidad Boehringer Ingelheim, de la mano de la Sociedad Espa\u00f1ola de Neumolog\u00eda y Cirug\u00eda Tor\u00e1cica (SEPAR), la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) y la Asociaci\u00f3n de Familiares y Enfermos de Fibrosis Pulmonar Idiop\u00e1tica (AFEFPI), impulsa un nuevo reto que lleva como [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-5997","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00bfTe sumas al reto #YoRespiroPorLaFPI? 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