{"id":5274,"date":"2020-02-21T12:13:45","date_gmt":"2020-02-21T12:13:45","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2020\/02\/21\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\/"},"modified":"2020-02-21T12:13:45","modified_gmt":"2020-02-21T12:13:45","slug":"espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2020\/02\/21\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\/","title":{"rendered":"\u00a1Espa\u00f1a se ilumina de verde y morado por el D\u00eda Mundial de las Enfermedades Raras!"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Con motivo del D\u00eda Mundial de las Enfermedades Raras, los d\u00edas 28 y 29 de febrero a las 20:00 horas, se iluminar\u00e1n diversas ciudades para dar visibilidad a las personas que conviven con estas patolog\u00edas. <\/p>\n

A esta iniciativa se han querido sumar y celebrar con nosotros este d\u00eda tan especial las ciudades de Valencia, Zamora, Valladolid, Palma, Sevilla, Pontevedra, Donostia, Granada, A Coru\u00f1a y Bilbao.<\/p>\n

D\u00eda 28 de Febrero a las 20:00<\/span><\/b>
-Estadio de San Mam\u00e9s y el Hospital de Cruces de Bilbao<\/span><\/p>\n

D\u00eda 29 de Febrero a las 20:00<\/b>
-Ayuntamiento de Valencia
-Ayuntamiento de Zamora
-Ayuntamiento de Valladolid
-Ayuntamiento de Donostia
– Ayuntamiento de Granada
-Ayuntamiento de Pontevedra
-Ayuntamiento de Palma
-La C\u00fapula del milenio de Valladolid
-Ayuntamiento de Palma
-Plaza de Espa\u00f1a de Sevilla
-Fuente Cuatro Estaciones de Sevilla
-Parado de San Sebastian de Sevilla
– Entradas del Pol\u00edgono de Bergondo en A Coru\u00f1a<\/p>\n

\u00bfQu\u00e9 es el d\u00eda Mundial de las Enfermedades Raras?<\/b>
La federaci\u00f3n espa\u00f1ola de enfermedades raras celebra en coordinaci\u00f3n con la Organizaci\u00f3n Europea de Enfermedades Raras (EURORDIS) y con la Alianza Iberoamericana de Enfermedades Raras (ALIBER) una Campa\u00f1a de Sensibilizaci\u00f3n enmarcada en el D\u00eda Mundial de las enfermedades raras. La Campa\u00f1a tiene como objetivo concienciar sobre las enfermedades poco frecuentes y situarlas como una prioridad en la agenda social y sanitaria.
FEDER coordina e impulsa en Espa\u00f1a una Red de Solidaridad formada por asociaciones, empresas, fundaciones, sociedades cient\u00edficas y entidades que trasladan el mensaje a trav\u00e9s de numerosas v\u00edas de comunicaci\u00f3n. En total, m\u00e1s de 340 entidades participan en nuestro pa\u00eds en el D\u00eda Mundial de las Enfermedades Raras organizando alrededor de m\u00e1s de 200 actividades por toda Espa\u00f1a.<\/p>\n

 <\/p>\n

 <\/p>\n

Fuente: FEDER \u00a1Espa\u00f1a se ilumina de verde y morado por el D\u00eda Mundial de las Enfermedades Raras!<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Con motivo del D\u00eda Mundial de las Enfermedades Raras, los d\u00edas 28 y 29 de febrero a las 20:00 horas, se iluminar\u00e1n diversas ciudades para dar visibilidad a las personas que conviven con estas patolog\u00edas.  A esta iniciativa se han querido sumar y […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-5274","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\n\u00a1Espa\u00f1a se ilumina de verde y morado por el D\u00eda Mundial de las Enfermedades Raras! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2020\/02\/21\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00a1Espa\u00f1a se ilumina de verde y morado por el D\u00eda Mundial de las Enfermedades Raras! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Con motivo del D\u00eda Mundial de las Enfermedades Raras, los d\u00edas 28 y 29 de febrero a las 20:00 horas, se iluminar\u00e1n diversas ciudades para dar visibilidad a las personas que conviven con estas patolog\u00edas.  A esta iniciativa se han querido sumar y […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2020\/02\/21\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2020-02-21T12:13:45+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2020\\\/02\\\/21\\\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2020\\\/02\\\/21\\\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"\u00a1Espa\u00f1a se ilumina de verde y morado por el D\u00eda Mundial de las Enfermedades Raras!\",\"datePublished\":\"2020-02-21T12:13:45+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2020\\\/02\\\/21\\\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\\\/\"},\"wordCount\":336,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2020\\\/02\\\/21\\\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2020\\\/02\\\/21\\\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2020\\\/02\\\/21\\\/espana-se-ilumina-de-verde-y-morado-por-el-dia-mundial-de-las-enfermedades-raras\\\/\",\"name\":\"\u00a1Espa\u00f1a se ilumina de verde y morado por el D\u00eda Mundial de las Enfermedades Raras! 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