{"id":5053,"date":"2020-01-08T08:56:00","date_gmt":"2020-01-08T08:56:00","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2020\/01\/08\/concurso-fotografico-eres-arte-animate-y-participa\/"},"modified":"2020-01-08T08:56:00","modified_gmt":"2020-01-08T08:56:00","slug":"concurso-fotografico-eres-arte-animate-y-participa","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2020\/01\/08\/concurso-fotografico-eres-arte-animate-y-participa\/","title":{"rendered":"Concurso Fotogr\u00e1fico ERes Arte \u00a1An\u00edmate y Participa!"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Ya puedes enviar tu fotograf\u00eda al concurso de ERes Arte de la Federaci\u00f3n Espa\u00f1ola de Enfermedades raras (FEDER) en colaboraci\u00f3n con Sanofi Genzyme.<\/p>\n

ERes Arte pretende que los participantes representen en una fotograf\u00eda original el optimismo que rodea a la comunidad de pacientes con Enfermedades Raras y el compromiso de estos mismos y sus m\u00e1s allegados con la causa, desde los m\u00e9dicos hasta sus familiares. Se dice que una imagen vale m\u00e1s que mil palabras y a trav\u00e9s de estas fotograf\u00edas se busca mostrar un valor ya sea de superaci\u00f3n, esperanza o uni\u00f3n. La imagen vendr\u00e1 acompa\u00f1ada de una peque\u00f1a descripci\u00f3n de lo que se pretende transmitir con ella.<\/p>\n

Si tienes 18 a\u00f1os, resides en Espa\u00f1a y tienes una historia que contar a trav\u00e9s del arte, hasta el d\u00eda 29 de Febrero puedes enviar tu instant\u00e1nea. El junio de 2020 el jurado elegir\u00e1 29 fotograf\u00edas ganadoras que se difundir\u00e1n por redes sociales y con ellas se realizar\u00e1 una exposici\u00f3n a nivel nacional.<\/p>\n

 <\/p>\n

Sobre las enfermedades raras<\/i><\/p>\n

Las enfermedades raras son aquellas que tienen una baja prevalencia en la poblaci\u00f3n. Para entrar en esa categor\u00eda deben sufrirla menos de 5 personas por cada 10.000 habitantes. La mayor\u00eda de afectados suelen tardar m\u00e1s de 5 a\u00f1os en poner nombre a su enfermedad. Debido a su particularidad y exclusividad estas enfermedades son muy dif\u00edcil de diagnosticar y de tratar, algo que supone un obst\u00e1culo para los profesionales de la salud. En Espa\u00f1a se calcula que puede haber 3 millones de personas con una.<\/p>\n

M\u00e1s informaci\u00f3n sobre el concurso<\/a><\/p>\n

 <\/p>\n

 <\/p>\n

Fuente: FEDER Concurso Fotogr\u00e1fico ERes Arte \u00a1An\u00edmate y Participa!<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Ya puedes enviar tu fotograf\u00eda al concurso de ERes Arte de la Federaci\u00f3n Espa\u00f1ola de Enfermedades raras (FEDER) en colaboraci\u00f3n con Sanofi Genzyme. ERes Arte pretende que los participantes representen en una fotograf\u00eda original el optimismo que rodea a la comunidad de pacientes […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-5053","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nConcurso Fotogr\u00e1fico ERes Arte \u00a1An\u00edmate y Participa! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2020\/01\/08\/concurso-fotografico-eres-arte-animate-y-participa\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Concurso Fotogr\u00e1fico ERes Arte \u00a1An\u00edmate y Participa! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Ya puedes enviar tu fotograf\u00eda al concurso de ERes Arte de la Federaci\u00f3n Espa\u00f1ola de Enfermedades raras (FEDER) en colaboraci\u00f3n con Sanofi Genzyme. 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