{"id":4931,"date":"2019-12-02T11:39:46","date_gmt":"2019-12-02T11:39:46","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/12\/02\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\/"},"modified":"2019-12-02T11:39:46","modified_gmt":"2019-12-02T11:39:46","slug":"feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/12\/02\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\/","title":{"rendered":"FEDER en la II Jornada de la Sociedad Extreme\u00f1a de Enfermedades Raras"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

El pr\u00f3ximo 4 de diciembre se celebra en el Ilustre Colegio de M\u00e9dicos de Badajoz la II Jornada de la Sociedad Extreme\u00f1a de Enfermedades Raras (SEDER) en la que estaremos representados por el Miembro de Junta Directiva, Modesto D\u00edez, quien trasladar\u00e1 la voz de los pacientes y del movimiento asociativo.<\/p>\n

En esta jornada se hablar\u00e1 sobre el Humanismo en las Enfermedades Raras, el Screening Neonatal en Extremadura, sobre las nuevas terapias en Enfermedades Raras. Adem\u00e1s, se realizar\u00e1 una mesa de Casos Cl\u00ednicos donde se abordar\u00e1 la mucopolisacaridosis, la Amilodosis por Transareana y de Atrofia muscular espinal.<\/p>\n

A trav\u00e9s de estas jornadas se conseguir\u00e1 abordar las enfermedades raras desde diversos puntos de vista de profesionales procedentes de centros de trabajo de toda Espa\u00f1a, adem\u00e1s se podr\u00e1 profundizar en tres enfermedades poco frecuentes desde varios \u00e1mbitos de la sanidad como la pediatr\u00eda, la cardiolog\u00eda o la neurolog\u00eda.<\/p>\n<\/p>\n

Fuente: FEDER FEDER en la II Jornada de la Sociedad Extreme\u00f1a de Enfermedades Raras<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pr\u00f3ximo 4 de diciembre se celebra en el Ilustre Colegio de M\u00e9dicos de Badajoz la II Jornada de la Sociedad Extreme\u00f1a de Enfermedades Raras (SEDER) en la que estaremos representados por el Miembro de Junta Directiva, Modesto D\u00edez, quien trasladar\u00e1 la voz […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-4931","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nFEDER en la II Jornada de la Sociedad Extreme\u00f1a de Enfermedades Raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2019\/12\/02\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"FEDER en la II Jornada de la Sociedad Extreme\u00f1a de Enfermedades Raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pr\u00f3ximo 4 de diciembre se celebra en el Ilustre Colegio de M\u00e9dicos de Badajoz la II Jornada de la Sociedad Extreme\u00f1a de Enfermedades Raras (SEDER) en la que estaremos representados por el Miembro de Junta Directiva, Modesto D\u00edez, quien trasladar\u00e1 la voz […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2019\/12\/02\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2019-12-02T11:39:46+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/12\\\/02\\\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/12\\\/02\\\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"FEDER en la II Jornada de la Sociedad Extreme\u00f1a de Enfermedades Raras\",\"datePublished\":\"2019-12-02T11:39:46+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/12\\\/02\\\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\\\/\"},\"wordCount\":196,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/12\\\/02\\\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/12\\\/02\\\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/12\\\/02\\\/feder-en-la-ii-jornada-de-la-sociedad-extremena-de-enfermedades-raras\\\/\",\"name\":\"FEDER en la II Jornada de la Sociedad Extreme\u00f1a de Enfermedades Raras - 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