{"id":4839,"date":"2019-11-15T08:33:27","date_gmt":"2019-11-15T08:33:27","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/11\/15\/ya-esta-disponible-el-video-de-la-marato-de-la-tv3-minories-que-fan-una-majoria\/"},"modified":"2019-11-15T08:33:27","modified_gmt":"2019-11-15T08:33:27","slug":"ya-esta-disponible-el-video-de-la-marato-de-la-tv3-minories-que-fan-una-majoria","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/11\/15\/ya-esta-disponible-el-video-de-la-marato-de-la-tv3-minories-que-fan-una-majoria\/","title":{"rendered":"\u00a1Ya est\u00e1 disponible el v\u00eddeo de La Marat\u00f3 de la TV3: Minories que fan una majoria!"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>La Marat\u00f3 de Tv3 ha estrenado el spot para la Marat\u00f3 2019 que lleva como lema \u2018Minories que fan una majoria\u2019, un v\u00eddeo publicitario que por primera vez ha estado abierto a la participaci\u00f3n ciudadana. En FEDER, no perdimos la oportunidad y estuvimos presentes sumando nuestro granito de arena.<\/p>\n<p>La protagonista del v\u00eddeo fue Alba Parejo, una joven actriz de 18 a\u00f1os que tiene Nevus Cong\u00e9nito Gigante, que fue arropada por gente de todas las edades, familiares, entidades y agrupaciones de Castellers. Gracias a este v\u00eddeo, se conseguir\u00e1 transmitir la ilusi\u00f3n y la esperanza con la que trabajan las asociaciones de enfermedades raras, quienes se esfuerzan para mejorar la calidad de vida de pacientes y familiares.<\/p>\n<p>La uni\u00f3n hace la fuerza y esta frase c\u00e9lebre se refleja en el v\u00eddeo, pues una marea humana se muestra comprometida con las patolog\u00edas poco frecuentes. Miles de voluntarios realizaron un abrazo multitudinario para transmitir la fuerza con la que se enfrentan las personas con estas patolog\u00edas a los desaf\u00edos diarios.<\/p>\n<p><span style=\"font-size: 12pt\">M\u00e1s sobre La Marat\u00f3 2019<\/span><\/p>\n<p>Esta edici\u00f3n est\u00e1 centrada en la visibilizaci\u00f3n de las enfermedades poco frecuentes, con el objetivo de obtener fondos para impulsar la investigaci\u00f3n en este grupo de patolog\u00edas, de baja incidencia y gran complejidad cl\u00ednica y as\u00ed, fomentar los estudios en cuanto a diagn\u00f3stico y tratamientos eficaces y seguros, un aspecto esencial para la vida de los pacientes.<\/p>\n<p>Esta no es la primera vez que TV3 colabora con esta causa, en el 2009, llevaron a cabo una potente campa\u00f1a de sensibilizaci\u00f3n sobre este grupo de patolog\u00edas. En esa edici\u00f3n, \u2018La Marat\u00f3\u2019 consigui\u00f3 recaudar m\u00e1s de 5 millones de euros, que se destinaron al estudio e investigaci\u00f3n de las enfermedades raras.<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/13231-%C2%A1ya-est%C3%A1-disponible-el-v%C3%ADdeo-de-la-marat%C3%B3-de-la-tv3-minories-que-fan-una-majoria\" target=\"_blank\" rel=\"noopener noreferrer\">\u00a1Ya est\u00e1 disponible el v\u00eddeo de La Marat\u00f3 de la TV3: Minories que fan una majoria!<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Marat\u00f3 de Tv3 ha estrenado el spot para la Marat\u00f3 2019 que lleva como lema \u2018Minories que fan una majoria\u2019, un v\u00eddeo publicitario que por primera vez ha estado abierto a la participaci\u00f3n ciudadana. En FEDER, no perdimos la oportunidad y estuvimos [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-4839","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00a1Ya est\u00e1 disponible el v\u00eddeo de La Marat\u00f3 de la TV3: Minories que fan una majoria! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2019\/11\/15\/ya-esta-disponible-el-video-de-la-marato-de-la-tv3-minories-que-fan-una-majoria\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00a1Ya est\u00e1 disponible el v\u00eddeo de La Marat\u00f3 de la TV3: Minories que fan una majoria! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Marat\u00f3 de Tv3 ha estrenado el spot para la Marat\u00f3 2019 que lleva como lema \u2018Minories que fan una majoria\u2019, un v\u00eddeo publicitario que por primera vez ha estado abierto a la participaci\u00f3n ciudadana. 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