{"id":4781,"date":"2019-11-04T12:31:21","date_gmt":"2019-11-04T12:31:21","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/11\/04\/nos-adherimos-al-dia-del-sindrome-de-sudeck\/"},"modified":"2019-11-04T12:31:21","modified_gmt":"2019-11-04T12:31:21","slug":"nos-adherimos-al-dia-del-sindrome-de-sudeck","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/11\/04\/nos-adherimos-al-dia-del-sindrome-de-sudeck\/","title":{"rendered":"Nos adherimos al D\u00eda del S\u00edndrome de Sudeck"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Hoy se celebra el d\u00eda del S\u00edndrome de Sudeck o Distrofia Simp\u00e1tico Refleja, una enfermedad poco frecuente. Por ello, desde FEDER nos queremos unir a esta jornada para apoyar a los pacientes y a las familias que conviven con esta patolog\u00eda, adem\u00e1s de apoyar la visibilizaci\u00f3n de este d\u00eda.<\/p>\n

Esta enfermedad afecta al sistema nervioso simp\u00e1tico y se caracteriza por dolor intenso, rigidez, inflamaci\u00f3n, cambios de coloraci\u00f3n y temperatura en la extremidad afectada. Esta enfermedad no tiene cura a d\u00eda de hoy, pero s\u00ed se dispone de recursos para paliar el dolor.<\/p>\n

\u201cDesde la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras queremos transmitir nuestra fuerza a las personas que tiene S\u00edndrome de Sudeck o Distrofia Simp\u00e1tico Refleja, quienes cada d\u00eda se enfrentan a los desaf\u00edos que esta patolog\u00eda poco frecuente les plantea en su d\u00eda a d\u00eda\u201d afirma Juan Carri\u00f3n, Presidente de FEDER y su Fundaci\u00f3n.<\/p>\n

Las entidades son un pilar fundamental para pacientes y familiares pues trabajan para mejorar la calidad de vida de todos ellos, informando a las personas que tienen S\u00edndrome de Sudeck sobre la patolog\u00eda, impulsando la investigaci\u00f3n cient\u00edfica o visibilizando las enfermedades poco frecuentes a trav\u00e9s de actos de sensibilizaci\u00f3n. Todo ello es gracias al compromiso de asociaciones como ALER Asociaci\u00f3n Leonesa de Enfermedades Raras y sin diagn\u00f3stico.<\/p>\n<\/p>\n

Fuente: FEDER Nos adherimos al D\u00eda del S\u00edndrome de Sudeck<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Hoy se celebra el d\u00eda del S\u00edndrome de Sudeck o Distrofia Simp\u00e1tico Refleja, una enfermedad poco frecuente. Por ello, desde FEDER nos queremos unir a esta jornada para apoyar a los pacientes y a las familias que conviven con esta patolog\u00eda, adem\u00e1s de […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4781","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nNos adherimos al D\u00eda del S\u00edndrome de Sudeck - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2019\/11\/04\/nos-adherimos-al-dia-del-sindrome-de-sudeck\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nos adherimos al D\u00eda del S\u00edndrome de Sudeck - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Hoy se celebra el d\u00eda del S\u00edndrome de Sudeck o Distrofia Simp\u00e1tico Refleja, una enfermedad poco frecuente. 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