{"id":4699,"date":"2019-10-07T07:49:11","date_gmt":"2019-10-07T07:49:11","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/10\/07\/conoce-mas-sobre-medicamentos-huerfanos-en-el-world-orphan-drugs-congress-2019\/"},"modified":"2019-10-07T07:49:11","modified_gmt":"2019-10-07T07:49:11","slug":"conoce-mas-sobre-medicamentos-huerfanos-en-el-world-orphan-drugs-congress-2019","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/10\/07\/conoce-mas-sobre-medicamentos-huerfanos-en-el-world-orphan-drugs-congress-2019\/","title":{"rendered":"Conoce m\u00e1s sobre medicamentos hu\u00e9rfanos en el World Orphan Drugs Congress 2019"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

 <\/p>\n

Los d\u00edas 12 y 14 de noviembre se celebrar\u00e1 en el hotel SOFIA de Barcelona el World Orphan Drugs Congress 2019, reconocido como el evento europeo de medicamentos hu\u00e9rfanos m\u00e1s importante en la agenda del colectivo de enfermedades raras y en que el honor de colaborar en este encuentro que ser\u00e1 una oportunidad \u00fanica para conocer la situaci\u00f3n de estos tratamientos.<\/p>\n

Por ello, desde FEDER te animamos a asistir a este congreso donde podr\u00e1s ampliar tus conocimientos acerca de la situaci\u00f3n de los medicamentos hu\u00e9rfanos ya que, ponentes internacionales trasladar\u00e1n su visi\u00f3n, contribuyendo al alcance de necesidades comunes del colectivo de pacientes con enfermedades raras como el tratamiento eficaz. Solamente, si trabajamos de manera global podremos mejorar la calidad de vida de los m\u00e1s de tres millones de personas que conviven en Espa\u00f1a con alguna de estas patolog\u00edas.<\/p>\n

\u00bfQu\u00e9 son los medicamentos hu\u00e9rfanos?<\/span><\/p>\n

A estos medicamentos se les llaman \u00abhu\u00e9rfano\u00bb porque generan un escaso inter\u00e9s, bajo las condiciones normales del mercado, para desarrollar y poner en el mercado productos dirigidos solamente a una peque\u00f1a cantidad de pacientes que sufren de condiciones muy raras.<\/p>\n

Conoce m\u00e1s sobre el World Orphan Drugs Congress 2019<\/span><\/p>\n

En este evento se dar\u00e1n cita profesionales sanitarios, de la industria farmac\u00e9utica y del colectivo de pacientes quienes trasladar\u00e1n sus puntos de vista acerca de los medicamentos hu\u00e9rfanos y quienes ofrecer\u00e1n una visi\u00f3n global de la situaci\u00f3n en la que se encuentran.<\/p>\n

En esta d\u00e9cima edici\u00f3n se abordar\u00e1 aspectos estrat\u00e9gicos y comerciales de llevar nuevos medicamentos a pacientes con enfermedades raras. Adem\u00e1s, este a\u00f1o se ofrecer\u00e1 contenido orientado al desarrollo c\u00ednico de productos, acceso al mercado y precios, fabricaci\u00f3n, medicina de precisi\u00f3n y ciencia y estrategia. Por otro lado, se realizar\u00e1 una conferencia dedicada a la Terapia Celular y Gen\u00e9tica y que reunir\u00e1 a autoridades gubernamentales, industria y grupos de defensa de pacientes.<\/p>\n

\u00bfC\u00f3mo puedo asistir?<\/span><\/p>\n

Si est\u00e1s interesado en asistir a estas conferencias, pincha en la parte superior de esta noticia para conocer toda la informaci\u00f3n acerca de las inscripciones.<\/p>\n

\u00daltima actualizaci\u00f3n 07\/10\/2019<\/p>\n

 <\/p>\n

Fuente: FEDER Conoce m\u00e1s sobre medicamentos hu\u00e9rfanos en el World Orphan Drugs Congress 2019<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra:   Los d\u00edas 12 y 14 de noviembre se celebrar\u00e1 en el hotel SOFIA de Barcelona el World Orphan Drugs Congress 2019, reconocido como el evento europeo de medicamentos hu\u00e9rfanos m\u00e1s importante en la agenda del colectivo de enfermedades raras y en que […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4699","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nConoce m\u00e1s sobre medicamentos hu\u00e9rfanos en el World Orphan Drugs Congress 2019 - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2019\/10\/07\/conoce-mas-sobre-medicamentos-huerfanos-en-el-world-orphan-drugs-congress-2019\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Conoce m\u00e1s sobre medicamentos hu\u00e9rfanos en el World Orphan Drugs Congress 2019 - 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