{"id":4428,"date":"2019-05-24T05:43:09","date_gmt":"2019-05-24T05:43:09","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/24\/dia-reafirma-su-compromiso-con-las-enfermedades-raras\/"},"modified":"2019-05-24T05:43:09","modified_gmt":"2019-05-24T05:43:09","slug":"dia-reafirma-su-compromiso-con-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/24\/dia-reafirma-su-compromiso-con-las-enfermedades-raras\/","title":{"rendered":"DIA reafirma su compromiso con las enfermedades raras"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>DIA reafirma un a\u00f1o m\u00e1s su compromiso con las enfermedades raras a trav\u00e9s de su apoyo a proyectos que la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) lleva a cabo para mejorar la realidad de los m\u00e1s de tres millones de personas que conviven con enfermedades poco frecuentes en nuestro pa\u00eds.<\/p>\n<p>Entre las iniciativas que DIA apoya se encuentran las carreras por la esperanza de las enfermedades raras. En concreto, este a\u00f1o se ha celebrado la X edici\u00f3n de esta carrera en Madrid contando con la participaci\u00f3n de m\u00e1s de 3000 personas que han creado una marea de solidaridad en la Casa de Campo.<\/p>\n<p>Del mismo modo, el pr\u00f3ximo 26 de Mayo tendr\u00e1 lugar la II Carrera por la esperanza de las enfermedades raras en la ciudad de Sevilla, la cual busca reunir a cientos de personas para sensibilizar sobre estas patolog\u00edas y que tambi\u00e9n contar\u00e1 con el apoyo de DIA.<\/p>\n<p>Adem\u00e1s de estas iniciativas deportivas, a\u00f1o tras a\u00f1o DIA apoya la campa\u00f1a de FEDER por el D\u00eda Mundial de las Enfermedades Raras. En concreto, este a\u00f1o la campa\u00f1a ha adquirido un car\u00e1cter m\u00e1s internacional haciendo referencia a la importancia de abordar estas patolog\u00edas de manera m\u00e1s coordinada.<\/p>\n<p>De esta forma, la Federaci\u00f3n propone que frente a problemas globales, como el acceso a diagn\u00f3stico y tratamiento se lleven a cabo soluciones globales como la creaci\u00f3n de un marco com\u00fan que garantice la cobertura universal a la salud.<\/p>\n<p>Por todo ello, es de gran importancia el trabajo coordinado entre los distintos agentes relacionados con estas patolog\u00edas, pero tambi\u00e9n entre todos los pa\u00edses para avanzar en la realidad del colectivo.<\/p>\n<p>Hacer visible toda esta realidad, ha sido posible gracias a DIA y las m\u00e1s de 50 entidades que han colaborado con la campa\u00f1a de la Federaci\u00f3n; una campa\u00f1a que ha aterrizado en toda la geograf\u00eda nacional a trav\u00e9s de m\u00e1s de 200 actividades de sensibilizaci\u00f3n.<\/p>\n<p>Adem\u00e1s, entre el compromiso de DIA con el colectivo, se encuentra su apoyo a actividades de sensibilizaci\u00f3n que la Federaci\u00f3n lleva a cabo como el Ibilaldi Solidario o la Degustaci\u00f3n que se desarrollan en Pa\u00eds Vasco.<\/p>\n<p>\u201cDesde FEDER queremos agradecer a DIA su compromiso con las enfermedades raras, acompa\u00f1\u00e1ndonos desde hace a\u00f1os para hacer posible nuestra labor en favor del colectivo alcanzando nuevas metas\u201d afirma Juan Carri\u00f3n, Presidente de FEDER y su Fundaci\u00f3n<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/12377-dia-reafirma-su-compromiso-con-las-enfermedades-raras\" target=\"_blank\" rel=\"noopener noreferrer\">DIA reafirma su compromiso con las enfermedades raras<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: DIA reafirma un a\u00f1o m\u00e1s su compromiso con las enfermedades raras a trav\u00e9s de su apoyo a proyectos que la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) lleva a cabo para mejorar la realidad de los m\u00e1s de tres millones de personas que conviven [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4428","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - 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