{"id":4406,"date":"2019-05-17T09:14:31","date_gmt":"2019-05-17T09:14:31","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/"},"modified":"2019-05-17T09:14:31","modified_gmt":"2019-05-17T09:14:31","slug":"te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/","title":{"rendered":"Te invitamos a participar en la \u2018Jornada  de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>La Unidad de Enfermedades Poco Frecuentes del Hospital Universitario de Parc Taul\u00ed en Sabadell organiza la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que tendr\u00e1 lugar el pr\u00f3ximo 13 de junio en la Corporaci\u00f3n Sanitaria Parc Taul\u00ed.<\/p>\n<p>Esta jornada estar\u00e1 dirigida para profesionales que participen en el abordaje de las enfermedades poco frecuentes y para personas interesadas en este \u00e1mbito, as\u00ed como a pacientes, familiares y a la sociedad en general.<\/p>\n<p>El objetivo principal de este encuentro ser\u00e1 actuar como un foro de participaci\u00f3n y debate entre profesionales sanitarios, administraci\u00f3n, industria y pacientes para obtener diferentes puntos de vista, as\u00ed como adquirir m\u00e1s conocimientos.<\/p>\n<p>Durante la jornada, profesionales de distintos \u00e1mbitos y lugares de trabajo como, la Universidad Aut\u00f3noma de Barcelona, del Consorcio de la Corporaci\u00f3n Sanitaria del Parc Taul\u00ed, del Servicio Catal\u00e1n de Salud y del Instituto de Investigaci\u00f3n e Innovaci\u00f3n Sanitaria de Parc Taul\u00ed, quienes abordar\u00e1n asuntos como la importancia del diagn\u00f3stico cl\u00ednico, los tratamientos en las enfermedades raras y la investigaci\u00f3n en este \u00e1mbito. Adem\u00e1s se hablar\u00e1 sobre la participaci\u00f3n social y el papel del movimiento asociativo en estas patolog\u00edas, as\u00ed como la participaci\u00f3n de las familiar. Por otro lado, se recordar\u00e1 la importancia del asesoramiento gen\u00e9tico y del de modelo de atenci\u00f3n sanitario de las enfermedades poco frecuentes.<\/p>\n<p><span style=\"font-size: 12pt\">Inscripci\u00f3n<\/span><\/p>\n<p>La inscripci\u00f3n es totalmente gratuita y los organizadores agradecen que se realice con antelaci\u00f3n <a href=\"https:\/\/www.tauli.cat\/tauli\/docencia\/docencia-de-postgrau\/cursos-docencia-jornades-i-congressos\" target=\"_blank\" rel=\"noopener noreferrer\">a trav\u00e9s de internet.<\/a><\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n 17\/05\/2019<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/12334-te-invitamos-a-participar-en-la-%E2%80%98jornada-de-malalties-minorit%C3%A0ries%E2%80%99-que-se-celebra-en-sabadell\" target=\"_blank\" rel=\"noopener noreferrer\">Te invitamos a participar en la \u2018Jornada  de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Unidad de Enfermedades Poco Frecuentes del Hospital Universitario de Parc Taul\u00ed en Sabadell organiza la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que tendr\u00e1 lugar el pr\u00f3ximo 13 de junio en la Corporaci\u00f3n Sanitaria Parc Taul\u00ed. Esta jornada estar\u00e1 dirigida para profesionales que participen en [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4406","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Unidad de Enfermedades Poco Frecuentes del Hospital Universitario de Parc Taul\u00ed en Sabadell organiza la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que tendr\u00e1 lugar el pr\u00f3ximo 13 de junio en la Corporaci\u00f3n Sanitaria Parc Taul\u00ed. Esta jornada estar\u00e1 dirigida para profesionales que participen en [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2019-05-17T09:14:31+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/05\\\/17\\\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/05\\\/17\\\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell\",\"datePublished\":\"2019-05-17T09:14:31+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/05\\\/17\\\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\\\/\"},\"wordCount\":301,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/05\\\/17\\\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/05\\\/17\\\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/05\\\/17\\\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\\\/\",\"name\":\"Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\"},\"datePublished\":\"2019-05-17T09:14:31+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/05\\\/17\\\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/05\\\/17\\\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/05\\\/17\\\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/sindromecharge.es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/\",\"name\":\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/sindromecharge.es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\",\"name\":\"Charge\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"caption\":\"Charge\"},\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/","og_locale":"es_ES","og_type":"article","og_title":"Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","og_description":"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: La Unidad de Enfermedades Poco Frecuentes del Hospital Universitario de Parc Taul\u00ed en Sabadell organiza la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que tendr\u00e1 lugar el pr\u00f3ximo 13 de junio en la Corporaci\u00f3n Sanitaria Parc Taul\u00ed. Esta jornada estar\u00e1 dirigida para profesionales que participen en [&hellip;]","og_url":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/","og_site_name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","article_publisher":"https:\/\/www.facebook.com\/asociacionsindromecharge","article_published_time":"2019-05-17T09:14:31+00:00","og_image":[{"width":300,"height":98,"url":"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png","type":"image\/png"}],"author":"Charge","twitter_card":"summary_large_image","twitter_creator":"@sindromecharge","twitter_site":"@sindromecharge","twitter_misc":{"Escrito por":"Charge","Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/#article","isPartOf":{"@id":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/"},"author":{"name":"Charge","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"headline":"Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell","datePublished":"2019-05-17T09:14:31+00:00","mainEntityOfPage":{"@id":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/"},"wordCount":301,"commentCount":0,"keywords":["enfermedades raras"],"articleSection":["noticias"],"inLanguage":"es","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/","url":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/","name":"Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","isPartOf":{"@id":"https:\/\/sindromecharge.es\/#website"},"datePublished":"2019-05-17T09:14:31+00:00","author":{"@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"breadcrumb":{"@id":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/sindromecharge.es\/index.php\/2019\/05\/17\/te-invitamos-a-participar-en-la-jornada-de-malalties-minoritaries-que-se-celebra-en-sabadell\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/sindromecharge.es\/"},{"@type":"ListItem","position":2,"name":"Te invitamos a participar en la \u2018Jornada de Malalties Minorit\u00e0ries\u2019 que se celebra en Sabadell"}]},{"@type":"WebSite","@id":"https:\/\/sindromecharge.es\/#website","url":"https:\/\/sindromecharge.es\/","name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/sindromecharge.es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039","name":"Charge","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","url":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","caption":"Charge"},"url":"https:\/\/sindromecharge.es\/index.php\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/4406","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/comments?post=4406"}],"version-history":[{"count":0,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/4406\/revisions"}],"wp:attachment":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/media?parent=4406"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/categories?post=4406"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/tags?post=4406"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}