{"id":4361,"date":"2019-04-25T07:09:01","date_gmt":"2019-04-25T07:09:01","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/04\/25\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\/"},"modified":"2019-04-25T07:09:01","modified_gmt":"2019-04-25T07:09:01","slug":"nos-sumamos-al-dia-nacional-del-sindrome-de-rett","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/04\/25\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\/","title":{"rendered":"Nos sumamos al D\u00eda Nacional del S\u00edndrome de Rett"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>El 25 de abril se celebra el D\u00eda Nacional del S\u00edndrome de Rett, en el que, desde la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras nos queremos sumar a esta jornada y mostrar todo nuestro apoyo a pacientes y familiares.<\/p>\n<p>El S\u00edndrome de Rett es un trastorno neurol\u00f3gico de base gen\u00e9tica que se presenta generalmente y casi en exclusividad en ni\u00f1as, ya que est\u00e1 originado en el cromosoma X que da lugar al sexo femenino. Los pacientes pueden tener los siguientes s\u00edntomas como: Trastorno del sue\u00f1o, desarrollo en el desarrollo del lenguaje, dificultad en el aprendizaje, problemas respiratorios, movimientos repetitivos, etc.<\/p>\n<p>Desde la Federaci\u00f3n queremos reconocer el trabajo incansable que realizan las entidades como la Asociaci\u00f3n Espa\u00f1ola del S\u00edndrome de Rett, la Associaci\u00f3 Catalana de la S\u00edndrome de Rett, la Asociaci\u00f3n Afectados CDKL5, la Asociaci\u00f3n PrincesaRett y la Asociaci\u00f3n Rett Castell\u00f3n que tienen como objetivos comunes ayudar y asesorar a las familias, sensibilizar a la sociedad sobre el s\u00edndrome de Rett, mejorar la calidad de vida de los pacientes y potenciar la investigaci\u00f3n cient\u00edfica para conseguir una cura.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n 25\/04\/2019<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/12173-nos-sumamos-al-d%C3%ADa-nacional-del-s%C3%ADndrome-de-rett\" target=\"_blank\" rel=\"noopener noreferrer\">Nos sumamos al D\u00eda Nacional del S\u00edndrome de Rett<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 25 de abril se celebra el D\u00eda Nacional del S\u00edndrome de Rett, en el que, desde la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras nos queremos sumar a esta jornada y mostrar todo nuestro apoyo a pacientes y familiares. El S\u00edndrome de Rett es [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4361","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Nos sumamos al D\u00eda Nacional del S\u00edndrome de Rett - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2019\/04\/25\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nos sumamos al D\u00eda Nacional del S\u00edndrome de Rett - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 25 de abril se celebra el D\u00eda Nacional del S\u00edndrome de Rett, en el que, desde la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras nos queremos sumar a esta jornada y mostrar todo nuestro apoyo a pacientes y familiares. El S\u00edndrome de Rett es [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2019\/04\/25\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2019-04-25T07:09:01+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/04\\\/25\\\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/04\\\/25\\\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"Nos sumamos al D\u00eda Nacional del S\u00edndrome de Rett\",\"datePublished\":\"2019-04-25T07:09:01+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/04\\\/25\\\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\\\/\"},\"wordCount\":236,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/04\\\/25\\\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/04\\\/25\\\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2019\\\/04\\\/25\\\/nos-sumamos-al-dia-nacional-del-sindrome-de-rett\\\/\",\"name\":\"Nos sumamos al D\u00eda Nacional del S\u00edndrome de Rett - 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