{"id":4262,"date":"2019-03-07T10:21:07","date_gmt":"2019-03-07T10:21:07","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/03\/07\/el-programa-saber-y-ganar-visibiliza-las-enfermedades-poco-frecuentes-en-el-dia-mundial-de-las-er\/"},"modified":"2019-03-07T10:21:07","modified_gmt":"2019-03-07T10:21:07","slug":"el-programa-saber-y-ganar-visibiliza-las-enfermedades-poco-frecuentes-en-el-dia-mundial-de-las-er","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/03\/07\/el-programa-saber-y-ganar-visibiliza-las-enfermedades-poco-frecuentes-en-el-dia-mundial-de-las-er\/","title":{"rendered":"El programa \u2018Saber y Ganar\u2019 visibiliza las enfermedades poco frecuentes en el D\u00eda Mundial de las ER"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>Con motivo del D\u00eda Mundial de las Enfermedades Raras que celebramos el 28 de febrero, los principales medios de comunicaci\u00f3n se hicieron eco de esta campa\u00f1a. En concreto, Televisi\u00f3n Espa\u00f1ola con su concurso \u2018Saber y Ganar\u2019 que se emite en La 2. Durante la emisi\u00f3n del concurso, el presentador Jordi Hurtado hizo una menci\u00f3n hacia esta iniciativa con un objetivo, visibilizar las enfermedades poco frecuentes.<\/p>\n<p>En concreto, durante la emisi\u00f3n del d\u00eda 28, el conductor del programa realiz\u00f3 un par\u00e9ntesis e inform\u00f3 a la audiencia acerca de la realidad de estas patolog\u00edas. Adem\u00e1s, durante esos instantes, el concurso modific\u00f3 de manera notable su formato ya que, los participantes, en esta ocasi\u00f3n, eran quienes ten\u00edan que realizar las preguntas al \u201csabio\u201d, Juanjo Cardenal.<\/p>\n<p>De esta forma, se resolvieron cuestiones como, \u201c\u00bfQu\u00e9 es una enfermedad rara?\u201d o \u201c\u00bfCu\u00e1ntas enfermedades poco frecuentes hay reconocidas en la actualidad?\u201d. Gracias a esta acci\u00f3n, desde \u2018Saber y Ganar\u2019 se gener\u00f3 un momento donde se pudo conocer m\u00e1s acerca de la realidad de 3 millones de personas, en Espa\u00f1a, que conviven con alguna patolog\u00eda poco frecuente.<\/p>\n<p>Te animamos a ver el programa que, desde La 2 se ha subido el concurso a&nbsp;su secci\u00f3n de \u2018A la carta\u2019 y la menci\u00f3n comienza en el minuto 32:27. <a href=\"http:\/\/www.rtve.es\/alacarta\/videos\/saber-y-ganar\/saber-ganar-28-02-19\/5022568\/\" target=\"_blank\" rel=\"noopener noreferrer\">Pincha aqu\u00ed <\/a>para poder disfrutar del concurso.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n 07\/03\/2019<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/11914-el-programa-%E2%80%98saber-y-ganar%E2%80%99-visibiliza-las-enfermedades-poco-frecuentes-en-el-d%C3%ADa-mundial-de-las-er\" target=\"_blank\" rel=\"noopener noreferrer\">El programa \u2018Saber y Ganar\u2019 visibiliza las enfermedades poco frecuentes en el D\u00eda Mundial de las ER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Con motivo del D\u00eda Mundial de las Enfermedades Raras que celebramos el 28 de febrero, los principales medios de comunicaci\u00f3n se hicieron eco de esta campa\u00f1a. En concreto, Televisi\u00f3n Espa\u00f1ola con su concurso \u2018Saber y Ganar\u2019 que se emite en La 2. Durante [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4262","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>El programa \u2018Saber y Ganar\u2019 visibiliza las enfermedades poco frecuentes en el D\u00eda Mundial de las ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2019\/03\/07\/el-programa-saber-y-ganar-visibiliza-las-enfermedades-poco-frecuentes-en-el-dia-mundial-de-las-er\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El programa \u2018Saber y Ganar\u2019 visibiliza las enfermedades poco frecuentes en el D\u00eda Mundial de las ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Con motivo del D\u00eda Mundial de las Enfermedades Raras que celebramos el 28 de febrero, los principales medios de comunicaci\u00f3n se hicieron eco de esta campa\u00f1a. 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