{"id":4221,"date":"2019-02-18T08:32:56","date_gmt":"2019-02-18T08:32:56","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/02\/18\/participa-con-eurordis-en-el-dia-mundial-de-las-enfermedades-raras\/"},"modified":"2019-02-18T08:32:56","modified_gmt":"2019-02-18T08:32:56","slug":"participa-con-eurordis-en-el-dia-mundial-de-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/02\/18\/participa-con-eurordis-en-el-dia-mundial-de-las-enfermedades-raras\/","title":{"rendered":"\u00a1Participa con EURORDIS en el D\u00eda Mundial de las Enfermedades Raras!"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>Queda muy poco para el D\u00eda Mundial de las Enfermedades Raras, pero, a\u00fan est\u00e1s a tiempo de participar. Desde EURORDIS te dan la oportunidad de unirte al D\u00eda Mundial de las Enfermedades Raras.<\/p>\n<p>\u00bfC\u00f3mo unirte a este d\u00eda?<\/p>\n<p>Muy sencillo, puedes <a href=\"https:\/\/www.rarediseaseday.org\/downloads\">descargarte el cartel oficial<\/a> del D\u00eda Mundial de las Enfermedades Raras 2019 y ponerlo tanto en tu casa como en la oficina, de esta forma todos y todas sabr\u00e1n que eres participe de este d\u00eda tan especial. Adem\u00e1s, puedes participar desde tus redes sociales subiendo el marco de Facebook que te ofrecen o puedes mostrar tu apoyo bajo el hashtag #Showyourrare. Por otra parte, puedes hacerte amigo del D\u00eda de las Enfermedades Raras <a href=\"https:\/\/www.rarediseaseday.org\/become-a-friend\/\">pinchando aqu\u00ed<\/a> o tambi\u00e9n, tienes la oportunidad de comprar art\u00edculos del D\u00eda Mundial de las Enfermedades Raras, <a href=\"https:\/\/www.rarediseaseday.org\/shop#!\/\">clickeando aqu\u00ed<\/a>.<\/p>\n<p>Pr\u00f3ximos eventos de EURORDIS<\/p>\n<p>EURORDIS realiza una serie de eventos por este d\u00eda, el pr\u00f3ximo se celebrar\u00e1 el d\u00eda 21 de febrero. Consistir\u00e1 en un evento en materia pol\u00edtica de enfermedades raras en las Naciones Unidas, segundo evento de alto nivel del Comit\u00e9 de ONG para las enfermedades raras. En este evento se reunir\u00e1n cerca de 100 participantes de la comunidad internacional ONG, agencias de la ONU, gobiernos nacionales, internacionales e instituciones acad\u00e9micas y del sector privado.&nbsp; El evento tendr\u00e1 lugar en la sede NU, en Nueva York pero se podr\u00e1 seguir en streaming <a href=\"https:\/\/www.ngocommitteerarediseases.org\/rare-disease-day-policy-event-at-the-united-nations\/\">pinchando aqu\u00ed<\/a>.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n 18\/02\/2019<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/11791-%C2%A1participa-con-eurordis-en-el-d%C3%ADa-mundial-de-las-enfermedades-raras\" target=\"_blank\">\u00a1Participa con EURORDIS en el D\u00eda Mundial de las Enfermedades Raras!<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Queda muy poco para el D\u00eda Mundial de las Enfermedades Raras, pero, a\u00fan est\u00e1s a tiempo de participar. Desde EURORDIS te dan la oportunidad de unirte al D\u00eda Mundial de las Enfermedades Raras. \u00bfC\u00f3mo unirte a este d\u00eda? Muy sencillo, puedes descargarte el [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4221","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00a1Participa con EURORDIS en el D\u00eda Mundial de las Enfermedades Raras! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2019\/02\/18\/participa-con-eurordis-en-el-dia-mundial-de-las-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00a1Participa con EURORDIS en el D\u00eda Mundial de las Enfermedades Raras! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Queda muy poco para el D\u00eda Mundial de las Enfermedades Raras, pero, a\u00fan est\u00e1s a tiempo de participar. 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