{"id":4172,"date":"2019-01-16T21:23:00","date_gmt":"2019-01-16T21:23:00","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2019\/01\/16\/analizamos-el-presente-y-futuro-de-espana-en-las-redes-europeas-de-referencia\/"},"modified":"2019-01-16T21:23:00","modified_gmt":"2019-01-16T21:23:00","slug":"analizamos-el-presente-y-futuro-de-espana-en-las-redes-europeas-de-referencia","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2019\/01\/16\/analizamos-el-presente-y-futuro-de-espana-en-las-redes-europeas-de-referencia\/","title":{"rendered":"Analizamos el presente y futuro de Espa\u00f1a en las Redes Europeas de Referencia"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>El 30 de enero celebramos en la sede del Ministerio de Sanidad, Consumo y Bienestar Social la jornada \u2018Redes Europeas de Referencia: Un desaf\u00edo integral\u2019 en la que buscamos acercar al movimiento asociativo el estado de situaci\u00f3n de esta iniciativa as\u00ed como trabajar en las oportunidades que nos ofrece.<\/p>\n<p>Las Redes Europeas de Referencia (ERNs) son redes virtuales que re\u00fanen a proveedores de asistencia sanitaria de toda Europa para hacer frente a patolog\u00edas que, como las poco frecuentes, requieren un tratamiento altamente especializado y una gran concentraci\u00f3n de conocimientos y de recursos.<\/p>\n<p>En este espacio, se han inscrito alrededor de 80 asociaciones y entidades de enfermedades poco frecuentes con el objetivo de profundizar en la participaci\u00f3n de nuestro pa\u00eds en este proyecto as\u00ed como en las oportunidades que supone para el movimiento espa\u00f1ol.<\/p>\n<p>En concreto, tal y como se confirm\u00f3 en 2017, m\u00e1s de 40 Centros, Servicios y Unidades de Referencia (CSUR) participan en 17 de las 24 redes que se crearon entonces. Ahora, es el momento de conocer el estado de situaci\u00f3n, analizar el futuro de la participaci\u00f3n de Espa\u00f1a en este proyecto y evaluar los avances logrados en la atenci\u00f3n de los pacientes.<\/p>\n<p style=\"text-align: center\">\u00a1Pronto ampliaremos informaci\u00f3n!<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 08\/01\/2019.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/11631-analizamos-el-presente-y-futuro-de-espa%C3%B1a-en-las-redes-europeas-de-referencia\" target=\"_blank\">Analizamos el presente y futuro de Espa\u00f1a en las Redes Europeas de Referencia<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El 30 de enero celebramos en la sede del Ministerio de Sanidad, Consumo y Bienestar Social la jornada \u2018Redes Europeas de Referencia: Un desaf\u00edo integral\u2019 en la que buscamos acercar al movimiento asociativo el estado de situaci\u00f3n de esta iniciativa as\u00ed como trabajar [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4172","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - 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