{"id":4151,"date":"2018-12-20T10:31:43","date_gmt":"2018-12-20T10:31:43","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/"},"modified":"2018-12-20T10:31:43","modified_gmt":"2018-12-20T10:31:43","slug":"extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/","title":{"rendered":"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>Fuente: <span style=\"text-decoration: underline\"><a href=\"https:\/\/www.redaccionmedica.com\/autonomias\/extremadura\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019-5332\" target=\"_blank\">Redacci\u00f3n M\u00e9dica<\/a><\/span> | Los trabajos de elaboraci\u00f3n del nuevo Plan Integral de Enfermedades Raras est\u00e1n muy adelantados y el documento podr\u00e1 presentarse durante el primer trimestre de 2019, seg\u00fan ha manifestado el presidente del Consejo Asesor de Enfermedades Raras del Sistema Sanitario P\u00fablico de Extremadura, Luis Tobajas Belv\u00eds.<\/p>\n<p>El director general, que ha hecho estas declaraciones este martes en M\u00e9rida tras la reuni\u00f3n del Consejo Asesor de Enfermedades Raras, ha precisado que la redacci\u00f3n del Plan est\u00e1 ya pr\u00e1cticamente finalizada, pendiente s\u00f3lo de las alegaciones que reciba de las asociaciones de pacientes y familiares que est\u00e1n representadas en ese Consejo.<\/p>\n<p>El documento, que est\u00e1 siendo elaborado por profesionales de distintas disciplinas, prev\u00e9 l\u00edneas de intervenci\u00f3n en diferentes \u00e1mbitos como la informaci\u00f3n sobre este tipo de enfermedades, prevenci\u00f3n primaria y precoz, registro de casos, atenci\u00f3n sanitaria integral, tratamientos, educaci\u00f3n, formaci\u00f3n e investigaci\u00f3n.<\/p>\n<p>En la reuni\u00f3n del Consejo tambi\u00e9n se ha abordado el proyecto para crear una unidad espec\u00edfica de atenci\u00f3n a las enfermedades raras en el Hospital Universitario de Badajoz, para la que ya se han dado algunos pasos como el establecimiento de los criterios de derivaci\u00f3n adecuados para agilizar y mejorar la atenci\u00f3n a este tipo de pacientes.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 20\/12\/2018.<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/11608-extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\" target=\"_blank\">Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Fuente: Redacci\u00f3n M\u00e9dica | Los trabajos de elaboraci\u00f3n del nuevo Plan Integral de Enfermedades Raras est\u00e1n muy adelantados y el documento podr\u00e1 presentarse durante el primer trimestre de 2019, seg\u00fan ha manifestado el presidente del Consejo Asesor de Enfermedades Raras del Sistema Sanitario [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4151","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019 - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019 - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Fuente: Redacci\u00f3n M\u00e9dica | Los trabajos de elaboraci\u00f3n del nuevo Plan Integral de Enfermedades Raras est\u00e1n muy adelantados y el documento podr\u00e1 presentarse durante el primer trimestre de 2019, seg\u00fan ha manifestado el presidente del Consejo Asesor de Enfermedades Raras del Sistema Sanitario [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2018-12-20T10:31:43+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/12\\\/20\\\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/12\\\/20\\\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019\",\"datePublished\":\"2018-12-20T10:31:43+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/12\\\/20\\\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\\\/\"},\"wordCount\":263,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/12\\\/20\\\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/12\\\/20\\\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/12\\\/20\\\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\\\/\",\"name\":\"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019 - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\"},\"datePublished\":\"2018-12-20T10:31:43+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/12\\\/20\\\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/12\\\/20\\\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/12\\\/20\\\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/sindromecharge.es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/\",\"name\":\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/sindromecharge.es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\",\"name\":\"Charge\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"caption\":\"Charge\"},\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019 - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/","og_locale":"es_ES","og_type":"article","og_title":"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019 - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","og_description":"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Fuente: Redacci\u00f3n M\u00e9dica | Los trabajos de elaboraci\u00f3n del nuevo Plan Integral de Enfermedades Raras est\u00e1n muy adelantados y el documento podr\u00e1 presentarse durante el primer trimestre de 2019, seg\u00fan ha manifestado el presidente del Consejo Asesor de Enfermedades Raras del Sistema Sanitario [&hellip;]","og_url":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/","og_site_name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","article_publisher":"https:\/\/www.facebook.com\/asociacionsindromecharge","article_published_time":"2018-12-20T10:31:43+00:00","og_image":[{"width":300,"height":98,"url":"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png","type":"image\/png"}],"author":"Charge","twitter_card":"summary_large_image","twitter_creator":"@sindromecharge","twitter_site":"@sindromecharge","twitter_misc":{"Escrito por":"Charge","Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/#article","isPartOf":{"@id":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/"},"author":{"name":"Charge","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"headline":"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019","datePublished":"2018-12-20T10:31:43+00:00","mainEntityOfPage":{"@id":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/"},"wordCount":263,"commentCount":0,"keywords":["enfermedades raras"],"articleSection":["noticias"],"inLanguage":"es","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/","url":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/","name":"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019 - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","isPartOf":{"@id":"https:\/\/sindromecharge.es\/#website"},"datePublished":"2018-12-20T10:31:43+00:00","author":{"@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"breadcrumb":{"@id":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/sindromecharge.es\/index.php\/2018\/12\/20\/extremadura-anuncia-un-nuevo-plan-de-enfermedades-raras-a-comienzos-de-2019\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/sindromecharge.es\/"},{"@type":"ListItem","position":2,"name":"Extremadura anuncia un nuevo Plan de Enfermedades Raras a comienzos de 2019"}]},{"@type":"WebSite","@id":"https:\/\/sindromecharge.es\/#website","url":"https:\/\/sindromecharge.es\/","name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/sindromecharge.es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039","name":"Charge","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","url":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","caption":"Charge"},"url":"https:\/\/sindromecharge.es\/index.php\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/4151","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/comments?post=4151"}],"version-history":[{"count":0,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/4151\/revisions"}],"wp:attachment":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/media?parent=4151"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/categories?post=4151"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/tags?post=4151"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}