{"id":4109,"date":"2018-11-23T09:24:52","date_gmt":"2018-11-23T09:24:52","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/11\/23\/este-fin-de-semana-muevete-por-las-enfermedades-raras\/"},"modified":"2018-11-23T09:24:52","modified_gmt":"2018-11-23T09:24:52","slug":"este-fin-de-semana-muevete-por-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/11\/23\/este-fin-de-semana-muevete-por-las-enfermedades-raras\/","title":{"rendered":"\u00a1Este fin de semana, mu\u00e9vete por las Enfermedades Raras!"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt;line-height: 11.65pt\"><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">&nbsp;<span style=\"border: 1pt none windowtext;padding: 0cm\">Este fin de semana contamos con diversos actos solidarios con las personas que conviven con enfermedades poco frecuentes, todas ellas impulsadas desde el movimiento asociativo.<\/span><\/span><\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt;line-height: 11.65pt\">&nbsp;<\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt;line-height: 11.65pt\"><strong><span style=\"font-size: 9pt;font-family: Arial, sans-serif;color: purple;border: 1pt none windowtext;padding: 0cm\">\u00bb CATALU\u00d1A<\/span><\/strong><\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt;line-height: 11.65pt\">&nbsp;<\/p>\n<p>23 DE NOVIEMBRE: &nbsp;<span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11112-el-23-de-noviembre-ii-jornadas-m%C3%A9dicas-s%C3%ADndrome-de-kabuki\">II Jornadas m\u00e9dicas S\u00edndrome de Kabuki<\/a><\/span><\/p>\n<p><span style=\"line-height: 11.65pt;font-size: 11.97px\">23 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11440-cena-solidaria-a-favor-del-s%C3%ADndrome-de-rett-en-barcelona\">Cena Solidaria a favor del S\u00edndrome de Rett en Barcelona<\/a><\/span><\/span><\/p>\n<p><span>24 DE NOVIEMBRE:<span style=\"text-decoration: underline\"> <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11439-aefa-kabuki-organiza-taller-de-taller-de-mindfullness\">AEFA-KABUKI organiza Taller de Mindfullness<\/a><\/span><\/span><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p><strong><span style=\"font-size: 9pt;font-family: Arial, sans-serif;color: purple;border: 1pt none windowtext;padding: 0cm\">\u00bb COMUNIDAD DE MADRID<\/span><\/strong><\/p>\n<p><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">23 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11437-asfxm-organiza-su-ii-jornada-sobre-sxf-en-madrid\">ASFXM organiza su II Jornada sobre SXF en Madrid<\/a><\/span><\/span><\/p>\n<p><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">23 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11465-fundaci%C3%B3n-mar%C3%ADa-paz-casado-organiza-ii-gran-rastrillo-solidario-en-casa-de-cantabria-en-madrid\">Fundaci\u00f3n Mar\u00eda Paz Casado organiza II Gran Rastrillo Solidario en Casa de Cantabria en Madrid<\/a><\/span><\/span><\/p>\n<p><span style=\"font-family: Arial, sans-serif;font-size: 9pt;line-height: 1.3\">23 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11471-fchp-organiza-las-ii-jornadas-formativas-e-informativas-para-pacientes-y-familias\">FCHP organiza las II Jornadas formativas e informativas para pacientes y familias<\/a><\/span><\/span><\/p>\n<p><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">24 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11435-aelald-organiza-ii-encuentro-de-familias-con-lal-d\">AELALD organiza II Encuentro de Familias con LAL-D<\/a><\/span><\/span><\/p>\n<p><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">25 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11442-carrera-solidaria-corre-con-samuel-a-beneficio-de-asem-madrid-y-duchenne-parent-project\">Carrera Solidaria \u00abCorre con Samuel\u00bb a beneficio de ASEM Madrid y Duchenne Parent Project<\/a><\/span><\/span><\/p>\n<p>25 DE NOVIEMBRE:&nbsp;<span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11477-retina-madrid-realiza-su-jornada-de-convivencia-este-fin-de-semana\">Retina Madrid realiza su Jornada de Convivencia este fin de semana<\/a><\/span><\/p>\n<p>&nbsp;<\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt;line-height: 11.65pt\"><strong><span style=\"font-size: 9pt;font-family: Arial, sans-serif;color: purple;border: 1pt none windowtext;padding: 0cm\">\u00bb COMUNIDAD VALENCIANA<\/span><\/strong><\/p>\n<p><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">24 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11462-avalus-organiza-la-xxi-jornada-sobre-investigaci%C3%B3n-y-tratamiendo-en-lupus\">AVALUS organiza la XXI Jornada sobre Investigaci\u00f3n y tratamiento en Lupus<\/a><\/span><\/span><\/p>\n<p><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">24 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11421-pheipas-organiza-ii-simposio-europeo-de-pacientes\">PHEiPAS organiza II Simposio Europeo de pacientes<\/a><\/span><\/span><\/p>\n<p><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">25 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11438-nelet-y-conquistando-escalones-unen-fuerzas-para-la-%E2%80%98feria-de-santa-catalina-2018%E2%80%99\">Nelet y Conquistando Escalones unen fuerzas para la \u2018Feria de Santa Catalina 2018\u2019<\/a><\/span><\/span><\/p>\n<p>&nbsp;<\/p>\n<p><strong style=\"line-height: 11.65pt;font-size: 11.97px\"><span style=\"font-size: 9pt;font-family: Arial, sans-serif;color: purple;border: 1pt none windowtext;padding: 0cm\">\u00bb EXTREMADURA<\/span><\/strong><\/p>\n<p><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">25 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/actualidad-movimiento-asociativo\/11474-fmjc-organiza-la-%E2%80%9Cxx-media-marat%C3%B3n-de-monta%C3%B1a-de-la-villa-de-jarandilla%E2%80%9D\">FMJC organiza la \u201cXX Media Marat\u00f3n de Monta\u00f1a de la Villa de Jarandilla\u201d<\/a><\/span><\/span><\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt;line-height: 11.65pt\">&nbsp;<\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt;line-height: 11.65pt\"><strong><span style=\"font-size: 9pt;font-family: Arial, sans-serif;color: purple;border: 1pt none windowtext;padding: 0cm\">\u00bb PA\u00cdS VASCO<\/span><\/strong><\/p>\n<p><span style=\"font-size: 9pt;font-family: Arial, sans-serif\">23 DE NOVIEMBRE: <span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/11441-hablamos-sobre-la-importancia-de-la-escucha-y-las-er-en-pa%C3%ADs-vasco\">Hablamos sobre \u00abLa importancia de la escucha y las ER\u00bb en Pa\u00eds Vasco<\/a><\/span><\/span><\/p>\n<p>&nbsp;<\/p>\n<p style=\"margin: 0cm 0cm 0.0001pt;line-height: 11.65pt\"><span style=\"font-size: 9pt;font-family: Arial, sans-serif;border: 1pt none windowtext;padding: 0cm\">Y la pr\u00f3xima semana&#8230;<\/span><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/eventos\/month.calendar\/2018\/11\/23\/-\"><span style=\"text-decoration: underline\"><span style=\"font-size: 9pt;font-family: Arial, sans-serif;border: 1pt none windowtext;padding: 0cm\">\u00a1mantente informado en nuestro calendario de eventos!<\/span><\/span><\/a><\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/11475-%C2%A1este-fin-de-semana%2C-mu%C3%A9vete-por-las-enfermedades-raras\" target=\"_blank\">\u00a1Este fin de semana, mu\u00e9vete por las Enfermedades Raras!<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; &nbsp;Este fin de semana contamos con diversos actos solidarios con las personas que conviven con enfermedades poco frecuentes, todas ellas impulsadas desde el movimiento asociativo. &nbsp; \u00bb CATALU\u00d1A &nbsp; 23 DE NOVIEMBRE: &nbsp;II Jornadas m\u00e9dicas S\u00edndrome de Kabuki 23 DE NOVIEMBRE: Cena [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4109","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u00a1Este fin de semana, mu\u00e9vete por las Enfermedades Raras! - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/11\/23\/este-fin-de-semana-muevete-por-las-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta 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