{"id":4058,"date":"2018-10-24T04:31:14","date_gmt":"2018-10-24T04:31:14","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/10\/24\/el-vall-dhebron-de-barcelona-se-convierte-en-la-sede-de-icord\/"},"modified":"2018-10-24T04:31:14","modified_gmt":"2018-10-24T04:31:14","slug":"el-vall-dhebron-de-barcelona-se-convierte-en-la-sede-de-icord","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/10\/24\/el-vall-dhebron-de-barcelona-se-convierte-en-la-sede-de-icord\/","title":{"rendered":"El Vall d\u2019Hebron de Barcelona se convierte en la sede de ICORD"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: <span style=\"text-decoration: underline\"><a href=\"http:\/\/www.isciii.es\/ISCIII\/es\/contenidos\/fd-el-instituto\/fd-comunicacion\/fd-noticias\/20181018_El_Vall_dHebron_Barcelona_convierte_sede_ICORD.shtml\" target=\"_blank\">ISCIII<\/a><\/span> | A partir de enero de 2019 Vall d&#8217;Hebron Barcelona Hospital Campus toma el relevo como sede y coordinador de la Conference of Rare Diseases and Orphan Drugs (ICORD), una organizaci\u00f3n que engloba actores de diferentes sectores vinculados a las enfermedades raras, desde profesionales cl\u00ednicos, personal de investigaci\u00f3n, representantes de la industria farmac\u00e9utica hasta las asociaciones de pacientes. Desde su fundaci\u00f3n, en 2007, ha sido coordinada por el Instituto Karolinska de Estocolmo.<\/p>\n<p>Al frente estar\u00e1n los doctores Joan X. Comella, director del Vall d&#8217;Hebron Institut de Recerca (VHIR) y Manuel Posada, director del Instituto de Investigaci\u00f3n en Enfermedades Raras (IIER) del Instituto de Salud Carlos III (ISCIII). El Dr. Posada es el actual presidente del Board de ICORD y en la asamblea de Estocolmo se acord\u00f3 que continuara en el cargo, junto con el Board, hasta la pr\u00f3xima asamblea para facilitar la transici\u00f3n del ICORD-Estocolmo al ICORD-Barcelona.<\/p>\n<p>Los objetivos estrat\u00e9gicos de ICORD son promover y difundir el conocimiento, el tratamiento y la investigaci\u00f3n en enfermedades raras en todo el mundo, especialmente en \u00e1reas poco desarrolladas o con poca experiencia en modelos organizativos para el abordaje global de estas patolog\u00edas.<\/p>\n<p>En este sentido, Vall d\u2019Hebron afronta el liderazgo de ICORD siendo ya un referente en organizaci\u00f3n de las enfermedades minoritarias con cerca de 100 profesionales especialistas que se dedican a la atenci\u00f3n de m\u00e1s de 300 enfermedades minoritarias. Aparte de ser el hospital del Estado que trata m\u00e1s enfermedades minoritarias, es uno de los hospitales punteros de Europa en este campo. De hecho, forma parte de 10 redes europeas de referencia, conocidas como ERNs, por sus siglas en ingl\u00e9s. Esto convierte a este hospital en un centro altamente especializado para atender las enfermedades minoritarias, desde el nacimiento hasta la edad adulta del paciente, a trav\u00e9s de un sistema en red que permite compartir recursos y conocimientos con otros hospitales de primer nivel.<\/p>\n<p>Este nivel tan alto de experiencia facilitar\u00e1 sin duda el cumplimiento de los objetivos de ICORD en los pr\u00f3ximos a\u00f1os. De momento, la pr\u00f3xima asamblea se celebrar\u00e1 en septiembre de 2019 en Israel.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 24\/10\/2018.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/11329-el-vall-d%E2%80%99hebron-de-barcelona-se-convierte-en-la-sede-de-icord\" target=\"_blank\">El Vall d\u2019Hebron de Barcelona se convierte en la sede de ICORD<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; Fuente: ISCIII | A partir de enero de 2019 Vall d&#8217;Hebron Barcelona Hospital Campus toma el relevo como sede y coordinador de la Conference of Rare Diseases and Orphan Drugs (ICORD), una organizaci\u00f3n que engloba actores de diferentes sectores vinculados a las [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-4058","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - 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