{"id":3981,"date":"2018-09-17T09:32:36","date_gmt":"2018-09-17T09:32:36","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/09\/17\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\/"},"modified":"2018-09-17T09:32:36","modified_gmt":"2018-09-17T09:32:36","slug":"violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/09\/17\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\/","title":{"rendered":"Violeta Stoyanova-Beninska, nueva presidenta del Comit\u00e9 de MM.HH de la EMA"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Fuente: Redacci\u00f3n M\u00e9dica<\/a><\/span> | El Comit\u00e9 de Medicamentos Hu\u00e9rfanos de la Agencia Europea de Medicamentos (EMA, por sus siglas en ingl\u00e9s) ha hecho oficial el nombramiento de su nueva presidenta, Violeta Stoyanova-Beninska, para los pr\u00f3ximos tres a\u00f1os, seg\u00fan ha informado el organismo europeo en una nota.<\/p>\n

Stoyanova-Beninska sustituye de esta forma a Bruno Sepodes, su antecesor en el cargo, que estuvo al frente del comit\u00e9 durante dos periodos de tres a\u00f1os, el m\u00e1ximo permitido por la EMA.<\/p>\n

La nueva presidenta del Comit\u00e9 de Medicamentos Hu\u00e9rfanos es una profesional de dilatada trayectoria en las \u00e1reas de Neurolog\u00eda, Psiquiatr\u00eda y tratamientos oftalmol\u00f3gicos, dermatol\u00f3gicos y del dolor. Desde 2007 trabaja en la Junta de Evaluaci\u00f3n de Medicamentos Holandesa como asesora cl\u00ednica y desde 2009 colabora con la EMA como asesora cient\u00edfica. En 2012 pas\u00f3 a ser miembro del comit\u00e9 del que es presidenta desde este jueves.<\/p>\n

\u201cValoro la singular responsabilidad que tiene el Comit\u00e9 de Medicamentos Hu\u00e9rfanos para los pacientes que padecen enfermedades raras. Sobre la base de lo que se ha logrado en los \u00faltimos 18 a\u00f1os, desde que se estableci\u00f3 este comit\u00e9, trabajar\u00e9 con todos sus miembros y expertos para aprovechar su profesionalidad y esp\u00edritu de colaboraci\u00f3n\u201d, ha dicho Stoyanova-Beninska.<\/p>\n

\u201cLos medicamentos hu\u00e9rfanos tienen unos desaf\u00edos espec\u00edficos que vamos a abordar incluyendo a todas las partes interesadas. Como presidenta me gustar\u00eda contribuir a reforzar la interacci\u00f3n u la comunicaci\u00f3n de \u00e9ste con otros comit\u00e9s cient\u00edficos de la EMA y con socios internacionales\u201d, ha continuado.<\/p>\n

El Comit\u00e9 de Medicamentos Hu\u00e9rfanos de la EMA es el \u00f3rgano encargado de evaluar la designaci\u00f3n de los f\u00e1rmacos que se consideran hu\u00e9rfanos. Esta designaci\u00f3n hace referencia a los medicamentos que se desarrollar\u00e1n para el diagn\u00f3stico, prevenci\u00f3n o tratamiento de enfermedades raras, y da acceso a los incentivos ofrecidos por la Uni\u00f3n Europea para alentar a las empresas a investigar y desarrollar estos medicamentos que, de otro modo, no se fabricar\u00edan.<\/p>\n

\u00daltima actualizaci\u00f3n: 17\/09\/2018.<\/p>\n

Fuente: <\/span>Redacci\u00f3n M\u00e9dica<\/a>.<\/span><\/p>\n

 <\/p>\n

Fuente: FEDER Violeta Stoyanova-Beninska, nueva presidenta del Comit\u00e9 de MM.HH de la EMA<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Fuente: Redacci\u00f3n M\u00e9dica | El Comit\u00e9 de Medicamentos Hu\u00e9rfanos de la Agencia Europea de Medicamentos (EMA, por sus siglas en ingl\u00e9s) ha hecho oficial el nombramiento de su nueva presidenta, Violeta Stoyanova-Beninska, para los pr\u00f3ximos tres a\u00f1os, seg\u00fan ha informado el organismo europeo en […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-3981","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nVioleta Stoyanova-Beninska, nueva presidenta del Comit\u00e9 de MM.HH de la EMA - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/09\/17\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Violeta Stoyanova-Beninska, nueva presidenta del Comit\u00e9 de MM.HH de la EMA - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Fuente: Redacci\u00f3n M\u00e9dica | El Comit\u00e9 de Medicamentos Hu\u00e9rfanos de la Agencia Europea de Medicamentos (EMA, por sus siglas en ingl\u00e9s) ha hecho oficial el nombramiento de su nueva presidenta, Violeta Stoyanova-Beninska, para los pr\u00f3ximos tres a\u00f1os, seg\u00fan ha informado el organismo europeo en […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2018\/09\/17\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2018-09-17T09:32:36+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/09\\\/17\\\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/09\\\/17\\\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"Violeta Stoyanova-Beninska, nueva presidenta del Comit\u00e9 de MM.HH de la EMA\",\"datePublished\":\"2018-09-17T09:32:36+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/09\\\/17\\\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\\\/\"},\"wordCount\":397,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/09\\\/17\\\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/09\\\/17\\\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/09\\\/17\\\/violeta-stoyanova-beninska-nueva-presidenta-del-comite-de-mm-hh-de-la-ema\\\/\",\"name\":\"Violeta Stoyanova-Beninska, nueva presidenta del Comit\u00e9 de MM.HH de la EMA - 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