{"id":3886,"date":"2018-07-12T05:26:17","date_gmt":"2018-07-12T05:26:17","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/07\/12\/comienza-el-chapuzon-mas-solidario-del-verano-en-el-silken-al-andalus\/"},"modified":"2018-07-12T05:26:17","modified_gmt":"2018-07-12T05:26:17","slug":"comienza-el-chapuzon-mas-solidario-del-verano-en-el-silken-al-andalus","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/07\/12\/comienza-el-chapuzon-mas-solidario-del-verano-en-el-silken-al-andalus\/","title":{"rendered":"Comienza el chapuz\u00f3n m\u00e1s solidario del verano en el Silken Al-Andalus"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

El sevillano Hotel Silken Al- Andalus se convierte en un ejemplo de apoyo y compromiso en la lucha contra las enfermedades raras a trav\u00e9s de su campa\u00f1a \u201cUn ba\u00f1o de solidaridad\u201d que arranca el verano de la forma m\u00e1s solidaria.<\/p>\n

Esta campa\u00f1a se inici\u00f3 en el 2014 y tiene como objetivo principal ayudar a mejorar la calidad de vida y defender los derechos de aquellos que conviven con una enfermedad poco frecuente o sin diagn\u00f3stico; un colectivo que suma 3 millones de personas en Espa\u00f1a y m\u00e1s de 500.000 en Andaluc\u00eda.<\/p>\n

Se trata de una iniciativa solidaria que tiene como objetivo ayudar en la causa que defiende la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) y va destinada a los hu\u00e9spedes que deseen, por s\u00f3lo un euro, y a cambio de la toalla de piscina y un botell\u00edn de agua, donar parte de esta recaudaci\u00f3n para mejorar la vida de quienes conviven con una enfermedad rara.<\/p>\n

De esta forma, m\u00e1s de 14.000 personas se han sumado ya a este gesto solidario de donar que permite a la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras (FEDER) seguir ayudando a miles de familias y asociaciones de pacientes.<\/p>\n

A trav\u00e9s de esta iniciativa, y durante 5 a\u00f1os consecutivos, el Hotel Silken Al Al-Andalus de Sevilla ha logrado visibilizar las enfermedades raras. De este modo, y gracias a su colaboraci\u00f3n, FEDER sigue luchando por dar a conocer la realidad del colectivo, buscando sensibilizar a la sociedad sobre la importancia de estas patolog\u00edas.<\/p>\n

Su implicaci\u00f3n permite fortalecer una Red de Solidaridad formada por m\u00e1s de 50 empresas, fundaciones e instituciones en todo el pa\u00eds. Por esta raz\u00f3n, la Federaci\u00f3n Espa\u00f1ola de Enfermedades Raras quiere agradecer la valiosa colaboraci\u00f3n, reconocer el trabajo y el compromiso desinteresado de Silken Al-Andalus Palace para ayudar a seguir construyendo un mejor futuro para los pacientes y sus familias.<\/p>\n

M\u00e1s informaci\u00f3n : Gabinete de Comunicaci\u00f3n
Mar\u00eda Donoso. 629 62 50 88<\/p>\n<\/p>\n

Fuente: FEDER Comienza el chapuz\u00f3n m\u00e1s solidario del verano en el Silken Al-Andalus<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El sevillano Hotel Silken Al- Andalus se convierte en un ejemplo de apoyo y compromiso en la lucha contra las enfermedades raras a trav\u00e9s de su campa\u00f1a \u201cUn ba\u00f1o de solidaridad\u201d que arranca el verano de la forma m\u00e1s solidaria. Esta campa\u00f1a se […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3886","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nComienza el chapuz\u00f3n m\u00e1s solidario del verano en el Silken Al-Andalus - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/07\/12\/comienza-el-chapuzon-mas-solidario-del-verano-en-el-silken-al-andalus\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Comienza el chapuz\u00f3n m\u00e1s solidario del verano en el Silken Al-Andalus - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El sevillano Hotel Silken Al- Andalus se convierte en un ejemplo de apoyo y compromiso en la lucha contra las enfermedades raras a trav\u00e9s de su campa\u00f1a \u201cUn ba\u00f1o de solidaridad\u201d que arranca el verano de la forma m\u00e1s solidaria. 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