{"id":3748,"date":"2018-05-22T05:20:04","date_gmt":"2018-05-22T05:20:04","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/05\/22\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\/"},"modified":"2018-05-22T05:20:04","modified_gmt":"2018-05-22T05:20:04","slug":"palencia-se-pone-en-ruta-por-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/05\/22\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\/","title":{"rendered":"Palencia se pone \u201cEn ruta por las Enfermedades Raras\u201d"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Un grupo de j\u00f3venes y voluntarios solidarios vinculado al convento de San Pablo de Palencia (Castilla y Le\u00f3n), perteneciente a la orden de los Dominicos, organizaron un sorteo solidario cuyo objetivo es contribuir a la campa\u00f1a de crowdfunding que lleva adelante el proyecto \u201cEn Ruta por las Enfermedades Raras\u201d
El sorteo se realiz\u00f3 el pasado 19 de mayo en el marco de la celebraci\u00f3n de la Fiesta de Pentecost\u00e9s, por esta raz\u00f3n; y con el fin de apoyar una buena causa, las personas aportaron su granito de arena a trav\u00e9s de la compra de boletos.<\/p>\n

\u201cEn ruta por las enfermedades raras\u201d es un proyecto que consiste en afrontar diversos desaf\u00edos deportivos relacionados con el senderismo, el monta\u00f1ismo, el ciclismo, entre otros y que a su vez conlleva cierto grado de dificultad conforme avanzan. Su objetivo es promover la investigaci\u00f3n como herramienta primordial para avanzar en torno a la prevenci\u00f3n, diagn\u00f3stico y tratamiento de estas patolog\u00edas y brindar esperanza para todos aquellos que conviven con una enfermedad y sus familias.<\/p>\n

Actualmente, el proyecto ha habilitado una campa\u00f1a de crowdfundig en la plataforma web migranodearena.org, con el fin de apoyar la l\u00ednea de investigaci\u00f3n y conocimiento que, actualmente, llevan adelante FEDER y su Fundaci\u00f3n para apoyar la investigaci\u00f3n de sus entidades asociadas a trav\u00e9s del impulso de ayudas, establecer sinergias con entidades que trabajan en investigaci\u00f3n y recopilar y poner en com\u00fan los resultados para responder a las demandas de la informaci\u00f3n.<\/p>\n

Desde FEDER queremos agradecer a todas las personas que participaron en este sorteo, su gesto no solo contribuye a promover la investigaci\u00f3n sino que tambi\u00e9n brinda esperanza a todas las personas que conviven con una enfermedad rara y sus familias.<\/p>\n

\u00daltima actualizaci\u00f3n: 22 de mayo de 2018. <\/p>\n<\/p>\n

Fuente: FEDER Palencia se pone \u201cEn ruta por las Enfermedades Raras\u201d<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Un grupo de j\u00f3venes y voluntarios solidarios vinculado al convento de San Pablo de Palencia (Castilla y Le\u00f3n), perteneciente a la orden de los Dominicos, organizaron un sorteo solidario cuyo objetivo es contribuir a la campa\u00f1a de crowdfunding que lleva adelante el proyecto […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3748","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nPalencia se pone \u201cEn ruta por las Enfermedades Raras\u201d - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/05\/22\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Palencia se pone \u201cEn ruta por las Enfermedades Raras\u201d - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Un grupo de j\u00f3venes y voluntarios solidarios vinculado al convento de San Pablo de Palencia (Castilla y Le\u00f3n), perteneciente a la orden de los Dominicos, organizaron un sorteo solidario cuyo objetivo es contribuir a la campa\u00f1a de crowdfunding que lleva adelante el proyecto […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2018\/05\/22\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2018-05-22T05:20:04+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/05\\\/22\\\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/05\\\/22\\\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"Palencia se pone \u201cEn ruta por las Enfermedades Raras\u201d\",\"datePublished\":\"2018-05-22T05:20:04+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/05\\\/22\\\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\\\/\"},\"wordCount\":343,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/05\\\/22\\\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/05\\\/22\\\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/05\\\/22\\\/palencia-se-pone-en-ruta-por-las-enfermedades-raras\\\/\",\"name\":\"Palencia se pone \u201cEn ruta por las Enfermedades Raras\u201d - 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