{"id":3727,"date":"2018-05-17T10:07:37","date_gmt":"2018-05-17T10:07:37","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/05\/17\/participamos-en-el-4to-foro-de-entidades-innovando-y-compartiendo\/"},"modified":"2018-05-17T10:07:37","modified_gmt":"2018-05-17T10:07:37","slug":"participamos-en-el-4to-foro-de-entidades-innovando-y-compartiendo","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/05\/17\/participamos-en-el-4to-foro-de-entidades-innovando-y-compartiendo\/","title":{"rendered":"Participamos en el 4to Foro de entidades: Innovando y compartiendo"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p><p>Los pr\u00f3ximos d\u00edas 17 y 18 de mayo participaremos a trav\u00e9s de Jordi Cruz, miembro de nuestra Junta directiva en el 4to Foro de entidades: Innovando y compartiendo organizado por Novartis. Este evento tiene como objetivo principal crear un lugar de encuentro para la formaci\u00f3n, el bate y el compartir de experiencias entre los diferentes l\u00edderes y representantes de pacientes en el \u00e1mbito nacional o local.<\/p>\n<p>En este 4to foro los principales temas que se trabajar\u00e1n ser\u00e1n sobre la Evidencia basada en el paciente y c\u00f3mo conseguir que \u00e9sta se tenga en cuenta en distintos \u00e1mbitos; dando continuidad a lo tratado en los Foros anteriores, Adem\u00e1s se profundizar\u00e1 en la importancia de la sostenibilidad de las entidades de pacientes y c\u00f3mo ponerlo en pr\u00e1ctica. Tambi\u00e9n se tratar\u00e1 el concepto del valor de la salud.<\/p>\n<p>Para finalizar, est\u00e1 previsto que se realice un di\u00e1logo entre pacientes y otros actores en el que el tema principal ser\u00e1 la humanizaci\u00f3n de la sanidad.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 17 de mayo de 2018.<\/p>\n<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/10597-participamos-en-el-4to-foro-de-entidades-innovando-y-compartiendo\" target=\"_blank\">Participamos en el 4to Foro de entidades: Innovando y compartiendo<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Los pr\u00f3ximos d\u00edas 17 y 18 de mayo participaremos a trav\u00e9s de Jordi Cruz, miembro de nuestra Junta directiva en el 4to Foro de entidades: Innovando y compartiendo organizado por Novartis. Este evento tiene como objetivo principal crear un lugar de encuentro para [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3727","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Participamos en el 4to Foro de entidades: Innovando y compartiendo - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/05\/17\/participamos-en-el-4to-foro-de-entidades-innovando-y-compartiendo\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Participamos en el 4to Foro de entidades: Innovando y compartiendo - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Los pr\u00f3ximos d\u00edas 17 y 18 de mayo participaremos a trav\u00e9s de Jordi Cruz, miembro de nuestra Junta directiva en el 4to Foro de entidades: Innovando y compartiendo organizado por Novartis. 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