{"id":3696,"date":"2018-05-03T08:56:11","date_gmt":"2018-05-03T08:56:11","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/05\/03\/la-microtia-protagonista-en-el-programa-de-radio-madrid-sin-fronteras\/"},"modified":"2018-05-03T08:56:11","modified_gmt":"2018-05-03T08:56:11","slug":"la-microtia-protagonista-en-el-programa-de-radio-madrid-sin-fronteras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/05\/03\/la-microtia-protagonista-en-el-programa-de-radio-madrid-sin-fronteras\/","title":{"rendered":"La Microtia, protagonista en el programa de radio Madrid Sin Fronteras"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

 El mi\u00e9rcoles 2 de mayo, el programa \u00abMadrid Sin Fronteras\u00bb realiz\u00f3 un programa monogr\u00e1fico dedicado a la enfermedad Microtia y a las acciones que realiza la Asociaci\u00f3n Microtia Espa\u00f1a en beneficio de las personas que conviven con esta enfermedad. En este programa estuvo presente <\/span>su presidente, David Pedrerol y Mar\u00eda \u00c1ngeles Altozano, responsable de comunicaci\u00f3n.<\/span><\/span><\/p>\n

El programa estuvo orientado a tratar sobre la microtia y los diferentes desaf\u00edos que deben afrontar los pacientes y familias que conviven con esta enfermedad. La microtia es una enfermedad que provoca que el o\u00eddo no se desarrolle correctamente y da lugar a una oreja peque\u00f1a o a la ausencia total de ella, est\u00e1 considerada como enfermedad rara. En el programa se trataron temas de relevancia en torno a la enfermedad as\u00ed como la importancia la investigaci\u00f3n como una herramienta para avanzar en diagn\u00f3stico y tratamiento de las enfermedades raras.<\/span><\/span><\/p>\n

FEDER estuvo presente en este segmento, gracias a la participaci\u00f3n de nuestra compa\u00f1era Miriam Torregrosa, T\u00e9cnico del Servicio de Informaci\u00f3n y Orientaci\u00f3n en nuestra Delegaci\u00f3n de Madrid.<\/span><\/p>\n

Sobre la Microtia<\/span><\/p>\n

La microtia es una malformaci\u00f3n cong\u00e9nita del o\u00eddo externo que se produce espor\u00e1dicamente o es heredado y que se caracteriza por aur\u00edculas peque\u00f1as y de forma anormal unilaterales (79-93% de los casos, 60% de los cuales afecta a la oreja derecha) o bilaterales.<\/p>\n

A menudo se asocia con atresia o estenosis del conducto auditivo, trastornos de d\u00e9ficit de atenci\u00f3n y retraso en el desarrollo del lenguaje. La variaci\u00f3n del tama\u00f1o de la aur\u00edcula oscila desde el grado I, donde la aur\u00edcula es ligeramente m\u00e1s peque\u00f1a de lo normal, al grado IV, tambi\u00e9n conocido como anotia, donde hay una ausencia completa del o\u00eddo externo y del conducto auditivo.<\/p>\n

\u00daltima actualizaci\u00f3n: 03 de mayo de 2018.<\/p>\n

 <\/p>\n

Fuente: FEDER La Microtia, protagonista en el programa de radio Madrid Sin Fronteras<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra:  El mi\u00e9rcoles 2 de mayo, el programa \u00abMadrid Sin Fronteras\u00bb realiz\u00f3 un programa monogr\u00e1fico dedicado a la enfermedad Microtia y a las acciones que realiza la Asociaci\u00f3n Microtia Espa\u00f1a en beneficio de las personas que conviven con esta enfermedad. En este programa estuvo […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3696","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nLa Microtia, protagonista en el programa de radio Madrid Sin Fronteras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/05\/03\/la-microtia-protagonista-en-el-programa-de-radio-madrid-sin-fronteras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La Microtia, protagonista en el programa de radio Madrid Sin Fronteras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra:  El mi\u00e9rcoles 2 de mayo, el programa \u00abMadrid Sin Fronteras\u00bb realiz\u00f3 un programa monogr\u00e1fico dedicado a la enfermedad Microtia y a las acciones que realiza la Asociaci\u00f3n Microtia Espa\u00f1a en beneficio de las personas que conviven con esta enfermedad. 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