{"id":3648,"date":"2018-04-12T06:42:46","date_gmt":"2018-04-12T06:42:46","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/04\/12\/la-comision-europea-se-hace-eco-de-la-importancia-de-investigar-en-er\/"},"modified":"2018-04-12T06:42:46","modified_gmt":"2018-04-12T06:42:46","slug":"la-comision-europea-se-hace-eco-de-la-importancia-de-investigar-en-er","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/04\/12\/la-comision-europea-se-hace-eco-de-la-importancia-de-investigar-en-er\/","title":{"rendered":"La Comisi\u00f3n Europea se hace eco de la importancia de investigar en ER"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Avanzar en la investigaci\u00f3n de las ER ha sido uno de los temas abordados en la Comisi\u00f3n Europea en el marco del D\u00eda Digital 2018 que se celebr\u00f3 el pasado 10 de abril y que dio cita a representantes de todos los pa\u00edses de la Uni\u00f3n, industria, profesionales y sociedad. Este aspecto se abord\u00f3 dentro del objetivo de vincular el acceso a bases de datos de gen\u00f3mica en toda la Uni\u00f3n Europea.<\/p>\n

Junto a esta prioridad del movimiento internacional de pacientes, bandera del recientemente celebrado D\u00eda Mundial de las Enfermedades Raras, entre los aspectos abordados en este espacio, la Comisi\u00f3n Europea tambi\u00e9n apost\u00f3 por compartir datos para personalizar la asistencia sanitaria.<\/p>\n

La noticia, recogida por ConSalud<\/a><\/span>, concluye que la cooperaci\u00f3n entre los Estados miembros contribuye a superar problemas de interoperabilidad e iniciativas conjuntas en el conjunto de la UE<\/p>\n

Una cooperaci\u00f3n reforzada entre los Estados miembros contribuir\u00e1 a superar la falta de interoperabilidad y fragmentaci\u00f3n de las iniciativas en el conjunto de la UE, garantizando al mismo tiempo normas europeas m\u00e1s estrictas en materia de protecci\u00f3n de datos personales.
Dicha cooperaci\u00f3n mantendr\u00e1 a la UE en la vanguardia de la medicina personalizada a nivel mundial, estimulando su contribuci\u00f3n cient\u00edfica y su competitividad industrial.<\/p>\n

Una f\u00f3rmula que responde de forma directa a las dificultades que enfrentan los pacientes con enfermedades poco frecuentes o los que, a\u00fan a d\u00eda de hoy, contin\u00faan sin diagn\u00f3stico. Problemas puesto de relieves por nuestro movimiento y que responden a dos procesos clave: el acceso a diagn\u00f3stico y tratamiento.<\/p>\n

\u00daltima actualizaci\u00f3n: 12\/04\/2018.<\/p>\n<\/p>\n

 <\/p>\n

Fuente: FEDER La Comisi\u00f3n Europea se hace eco de la importancia de investigar en ER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Avanzar en la investigaci\u00f3n de las ER ha sido uno de los temas abordados en la Comisi\u00f3n Europea en el marco del D\u00eda Digital 2018 que se celebr\u00f3 el pasado 10 de abril y que dio cita a representantes de todos los pa\u00edses […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3648","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nLa Comisi\u00f3n Europea se hace eco de la importancia de investigar en ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/04\/12\/la-comision-europea-se-hace-eco-de-la-importancia-de-investigar-en-er\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La Comisi\u00f3n Europea se hace eco de la importancia de investigar en ER - 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