{"id":3604,"date":"2018-03-09T11:50:03","date_gmt":"2018-03-09T11:50:03","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/09\/su-majestad-la-reina-clausura-el-acto-oficial-por-el-dia-mundial-de-las-enfermedades-raras\/"},"modified":"2018-03-09T11:50:03","modified_gmt":"2018-03-09T11:50:03","slug":"su-majestad-la-reina-clausura-el-acto-oficial-por-el-dia-mundial-de-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/09\/su-majestad-la-reina-clausura-el-acto-oficial-por-el-dia-mundial-de-las-enfermedades-raras\/","title":{"rendered":"Su Majestad la Reina clausura el Acto Oficial por el D\u00eda Mundial de las Enfermedades Raras"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Su Majestad la Reina ha clausurado el Acto Oficial por el D\u00eda Mundial de las Enfermedades Raras que FEDER ha celebrado el 13 de marzo en el Teatro Goya de Madrid con una propuesta muy concreta: impulsar la investigaci\u00f3n en enfermedades poco frecuentes bajo el paradigma del trabajo en red.<\/p>\n

Bajo el lema \u2018Construyamos HOY para el MA\u00d1ANA\u2019, FEDER tambi\u00e9n ha querido contar en este encuentro con autoridades implicadas en el abordaje de las enfermedades de baja prevalencia como Alfonso Dastis Quecedo, Ministro de Asuntos Exteriores y Cooperaci\u00f3n. Junto a \u00e9l, tambi\u00e9n ha intervenido Jos\u00e9 Javier Castrodeza, Secretario de Sanidad y Consumo. Ministerio de Sanidad, Servicios Sociales e Igualdad.<\/p>\n

Y es que la campa\u00f1a de FEDER adquiere este a\u00f1o una dimensi\u00f3n m\u00e1s internacional si cabe con el objetivo de integrar la investigaci\u00f3n en enfermedades poco frecuentes dentro de la agenda pol\u00edtica de la Organizaci\u00f3n Mundial de la Salud (OMS), formando parte de su plan de acci\u00f3n.<\/p>\n

La investigaci\u00f3n como desaf\u00edo internacional ha sidoel eje vertebrador de este acto que ha estado conducido por Antonio Calvo Roy, presidente de la Asociaci\u00f3n Espa\u00f1ola de Comunicaci\u00f3n Cient\u00edfica. Con \u00e9l, se busca poner de manifiesto que lo que hagamos hoy en el impulso del conocimiento cient\u00edfico se transformar\u00e1 ma\u00f1ana en prevenci\u00f3n, diagn\u00f3stico y tratamiento.<\/p>\n

 <\/h3>\n

Fuente: FEDER Su Majestad la Reina clausura el Acto Oficial por el D\u00eda Mundial de las Enfermedades Raras<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Su Majestad la Reina ha clausurado el Acto Oficial por el D\u00eda Mundial de las Enfermedades Raras que FEDER ha celebrado el 13 de marzo en el Teatro Goya de Madrid con una propuesta muy concreta: impulsar la investigaci\u00f3n en enfermedades poco frecuentes […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3604","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nSu Majestad la Reina clausura el Acto Oficial por el D\u00eda Mundial de las Enfermedades Raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/03\/09\/su-majestad-la-reina-clausura-el-acto-oficial-por-el-dia-mundial-de-las-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Su Majestad la Reina clausura el Acto Oficial por el D\u00eda Mundial de las Enfermedades Raras - 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