{"id":3576,"date":"2018-03-01T08:16:22","date_gmt":"2018-03-01T08:16:22","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/"},"modified":"2018-03-01T08:16:22","modified_gmt":"2018-03-01T08:16:22","slug":"la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/","title":{"rendered":"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

El pasado d\u00eda 28 de febrero tuvo lugar la celebraci\u00f3n del D\u00eda Mundial de las enfermedades, un d\u00eda cargado de significado que busca fomentar la investigaci\u00f3n y apoyar y dar visibilidad a los pacientes y sus familias.<\/p>\n

Este a\u00f1o, y bajo el lema \u201cConstruyamos hoy para el ma\u00f1ana\u201d, desde la Federaci\u00f3n Espa\u00f1ola De Enfermedades Raras, se ha querido incidir especialmente en la importancia de la investigaci\u00f3n en red, para lograr un futuro lleno de esperanza para las m\u00e1s de 3 millones de personas afectadas por estas patolog\u00edas.<\/p>\n

En la l\u00ednea de este deseo de crear \u201credes de esperanza\u201d, este a\u00f1o destaca el n\u00famero de eventos de car\u00e1cter internacional en los que FEDER ha participado de la mano de ALIBER y EURORDIS, aunando esfuerzos por seguir avanzando en pos de la mejora de la calidad de vida de las personas afectadas por estas enfermedades.<\/p>\n

FEDER no solo ha participado en m\u00e1s de 200 actos relacionados con el D\u00eda Mundial en nuestro pa\u00eds, sino que tambi\u00e9n ha acudido a actos como la jornada \u201cDemuestre que apoya las Enfermedades Raras, celebrada en Lisboa por la Alian\u00e7a Portuguesa de Associa\u00e7\u00f5es das Doen\u00e7as Raras, o la conferencia \u201cLa Situaci\u00f3n de las enfermedades raras en Espa\u00f1a e Iberoamerica\u201d, que tuvo lugar en Ecuador y a la que acudi\u00f3 el Presidente de FEDER, Juan Carri\u00f3n.<\/p>\n

En esta l\u00ednea y con el objetivo de tejer redes de esperanza m\u00e1s all\u00e1 de nuestras fronteras, Alba Ancochea, Directora de FEDER, acudi\u00f3 este a\u00f1o a los premios EURORDIS, que en esta edici\u00f3n han recogido m\u00e1s de 350 nominaciones, representando a 37 pa\u00edses diferentes en todo el mundo.<\/p>\n

Desde FEDER, creemos que este trabajo en red a nivel internacional nos ayudar\u00e1 a seguir avanzando en favor de las personas con enfermedades de baja prevalencia y alcanzar nuestros objetivos, llevando la esperanza a todos los rincones.<\/p>\n<\/p>\n

Fuente: FEDER La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pasado d\u00eda 28 de febrero tuvo lugar la celebraci\u00f3n del D\u00eda Mundial de las enfermedades, un d\u00eda cargado de significado que busca fomentar la investigaci\u00f3n y apoyar y dar visibilidad a los pacientes y sus familias. Este a\u00f1o, y bajo el lema […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3576","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nLa esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pasado d\u00eda 28 de febrero tuvo lugar la celebraci\u00f3n del D\u00eda Mundial de las enfermedades, un d\u00eda cargado de significado que busca fomentar la investigaci\u00f3n y apoyar y dar visibilidad a los pacientes y sus familias. Este a\u00f1o, y bajo el lema […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/\" \/>\n<meta property=\"og:site_name\" content=\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/asociacionsindromecharge\" \/>\n<meta property=\"article:published_time\" content=\"2018-03-01T08:16:22+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png\" \/>\n\t<meta property=\"og:image:width\" content=\"300\" \/>\n\t<meta property=\"og:image:height\" content=\"98\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Charge\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:site\" content=\"@sindromecharge\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Charge\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/03\\\/01\\\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/03\\\/01\\\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\\\/\"},\"author\":{\"name\":\"Charge\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"headline\":\"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras\",\"datePublished\":\"2018-03-01T08:16:22+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/03\\\/01\\\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\\\/\"},\"wordCount\":370,\"commentCount\":0,\"keywords\":[\"enfermedades raras\"],\"articleSection\":[\"noticias\"],\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/03\\\/01\\\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/03\\\/01\\\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\\\/\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/03\\\/01\\\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\\\/\",\"name\":\"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\"},\"datePublished\":\"2018-03-01T08:16:22+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\"},\"breadcrumb\":{\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/03\\\/01\\\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/03\\\/01\\\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/2018\\\/03\\\/01\\\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\\\/\\\/sindromecharge.es\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#website\",\"url\":\"https:\\\/\\\/sindromecharge.es\\\/\",\"name\":\"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/sindromecharge.es\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/sindromecharge.es\\\/#\\\/schema\\\/person\\\/39a60ebe0a2b4d5a11179701e336b039\",\"name\":\"Charge\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x\",\"caption\":\"Charge\"},\"url\":\"https:\\\/\\\/sindromecharge.es\\\/index.php\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/","og_locale":"es_ES","og_type":"article","og_title":"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","og_description":"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: El pasado d\u00eda 28 de febrero tuvo lugar la celebraci\u00f3n del D\u00eda Mundial de las enfermedades, un d\u00eda cargado de significado que busca fomentar la investigaci\u00f3n y apoyar y dar visibilidad a los pacientes y sus familias. Este a\u00f1o, y bajo el lema […]","og_url":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/","og_site_name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","article_publisher":"https:\/\/www.facebook.com\/asociacionsindromecharge","article_published_time":"2018-03-01T08:16:22+00:00","og_image":[{"width":300,"height":98,"url":"https:\/\/sindromecharge.es\/wp-content\/uploads\/2013\/09\/logodecharge300x98.png","type":"image\/png"}],"author":"Charge","twitter_card":"summary_large_image","twitter_creator":"@sindromecharge","twitter_site":"@sindromecharge","twitter_misc":{"Escrito por":"Charge","Tiempo de lectura":"2 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/#article","isPartOf":{"@id":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/"},"author":{"name":"Charge","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"headline":"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras","datePublished":"2018-03-01T08:16:22+00:00","mainEntityOfPage":{"@id":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/"},"wordCount":370,"commentCount":0,"keywords":["enfermedades raras"],"articleSection":["noticias"],"inLanguage":"es","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/","url":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/","name":"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","isPartOf":{"@id":"https:\/\/sindromecharge.es\/#website"},"datePublished":"2018-03-01T08:16:22+00:00","author":{"@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039"},"breadcrumb":{"@id":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/sindromecharge.es\/index.php\/2018\/03\/01\/la-esperanza-atraviesa-fronteras-en-el-dia-mundial-de-las-enfermedades-raras\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/sindromecharge.es\/"},{"@type":"ListItem","position":2,"name":"La esperanza atraviesa fronteras en el D\u00eda Mundial de las enfermedades raras"}]},{"@type":"WebSite","@id":"https:\/\/sindromecharge.es\/#website","url":"https:\/\/sindromecharge.es\/","name":"Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/sindromecharge.es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/sindromecharge.es\/#\/schema\/person\/39a60ebe0a2b4d5a11179701e336b039","name":"Charge","image":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","url":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c3b46e32a0fc3b093a0873fb767bf3293de856293065e84ef06b7ec7a8acfb98?s=96&d=identicon&r=x","caption":"Charge"},"url":"https:\/\/sindromecharge.es\/index.php\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/3576","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/comments?post=3576"}],"version-history":[{"count":0,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/posts\/3576\/revisions"}],"wp:attachment":[{"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/media?parent=3576"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/categories?post=3576"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/sindromecharge.es\/index.php\/wp-json\/wp\/v2\/tags?post=3576"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}