{"id":3555,"date":"2018-02-22T10:57:00","date_gmt":"2018-02-22T10:57:00","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/02\/22\/el-hospital-universitario-de-elche-acoge-jornada-internacional-de-er\/"},"modified":"2018-02-22T10:57:00","modified_gmt":"2018-02-22T10:57:00","slug":"el-hospital-universitario-de-elche-acoge-jornada-internacional-de-er","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/02\/22\/el-hospital-universitario-de-elche-acoge-jornada-internacional-de-er\/","title":{"rendered":"El Hospital Universitario de Elche acoge Jornada Internacional de ER"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p>En el marco de la celebraci\u00f3n del D\u00eda Mundial de las Enfermedades Raras, que se celebra el 28 de febrero, la Unidad de Enfermedades Minoritarias y Sist\u00e9micas del Hospital General Universitario de Elche organiza la Jornada Internacional de las Enfermedades Raras 2018. El evento se realizar\u00e1 el 28 de febrero en Sal\u00f3n de Actos del Hospital General Universitario de Elche a partir de las 12:00 h.<\/p>\n<p>Durante la jornada se abordar\u00e1n temas como: la definici\u00f3n de enfermedad rara, la etiopatogenia, diagn\u00f3stico temprano, m\u00e9todos diagn\u00f3sticos, gen\u00e9tica, tratamientos espec\u00edficos con inicio o cese de los mismos, cribados poblacionales, la necesidad de otros tratamientos de soporte. Adem\u00e1s se tratar\u00e1 la importancia de la colaboraci\u00f3n, entre los diferentes agentes y personal sanitario para facilitar y optimizar la atenci\u00f3n de los pacientes que conviven con una enfermedad rara.<\/p>\n<p>Los asistentes participar\u00e1n de una tertulia informativa a trav\u00e9s de la cual; pacientes, familiares, personal sanitario, farmac\u00f3logos, investigadores y personal de la administraci\u00f3n podr\u00e1n debatir acerca de las mejorar en los circuitos de atenci\u00f3n integral a estos pacientes.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 22 de febrero de 2018<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/10129-el-hospital-universitario-de-elche-acoge-jornada-internacional-de-er\" target=\"_blank\">El Hospital Universitario de Elche acoge Jornada Internacional de ER<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; En el marco de la celebraci\u00f3n del D\u00eda Mundial de las Enfermedades Raras, que se celebra el 28 de febrero, la Unidad de Enfermedades Minoritarias y Sist\u00e9micas del Hospital General Universitario de Elche organiza la Jornada Internacional de las Enfermedades Raras 2018. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3555","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>El Hospital Universitario de Elche acoge Jornada Internacional de ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/02\/22\/el-hospital-universitario-de-elche-acoge-jornada-internacional-de-er\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El Hospital Universitario de Elche acoge Jornada Internacional de ER - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; En el marco de la celebraci\u00f3n del D\u00eda Mundial de las Enfermedades Raras, que se celebra el 28 de febrero, la Unidad de Enfermedades Minoritarias y Sist\u00e9micas del Hospital General Universitario de Elche organiza la Jornada Internacional de las Enfermedades Raras 2018. 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