{"id":3532,"date":"2018-02-16T08:04:36","date_gmt":"2018-02-16T08:04:36","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/02\/16\/el-san-pedro-tendra-una-consulta-de-psicologia-para-pacientes-con-enfermedades-raras\/"},"modified":"2018-02-16T08:04:36","modified_gmt":"2018-02-16T08:04:36","slug":"el-san-pedro-tendra-una-consulta-de-psicologia-para-pacientes-con-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/02\/16\/el-san-pedro-tendra-una-consulta-de-psicologia-para-pacientes-con-enfermedades-raras\/","title":{"rendered":"El San Pedro tendr\u00e1 una consulta de Psicolog\u00eda para pacientes con enfermedades raras"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

 <\/p>\n

Fuente: La Rioja<\/a> | Los pacientes riojanos con enfermedades raras ser\u00e1n tratados en una nueva consulta de Psicolog\u00eda en el Hospital San Pedro de Logro\u00f1o, tanto a nivel individual como de manera colectiva, dijo ayer el subdirector del \u00c1rea de Salud, Carlos Piserra.<\/p>\n

Pisarra particip\u00f3 en un encuentro con miembros de la Asociaci\u00f3n Riojana de Enfermedades Raras (ARER), en el que el responsable de la l\u00ednea estrat\u00e9gica en La Rioja, Enrique Ramalle, explic\u00f3 a pacientes y familiares la situaci\u00f3n del registro de La Rioja, las conclusiones del EUROPLAN 2017 y las acciones para el 2018.<\/p>\n

La puesta en marcha de esta consulta fue una petici\u00f3n de esta asociaci\u00f3n a la Consejer\u00eda de Salud, dijo el Gobierno de La Rioja en una nota. A\u00f1adi\u00f3 que, en muchos casos, dar con el diagn\u00f3stico de una enfermedad rara supone tener que pasar por muchos especialistas, por lo que muchos enfermos no piden que les curen, porque saben que es imposible, sino una escucha activa.<\/p>\n

Ante ello, un psic\u00f3logo se constituye como la referencia o gestora de casos para hacer un seguimiento individual de cada paciente y facilitar su acceso al sistema, consider\u00f3.<\/p>\n

Durante este a\u00f1o de trabajo conjunto entre la administraci\u00f3n y la asociaci\u00f3n, se ha estudiado la mejora del registro auton\u00f3mico de casos de enfermedades raras, con el fin de disponer de informaci\u00f3n epidemiol\u00f3gica sobre ellas. Adem\u00e1s, se ha incorporado otra nueva fuente de informaci\u00f3n, la Unidad de Diagn\u00f3stico Molecular del Centro de Investigaci\u00f3n Biom\u00e9dica de La Rioja (CIBIR), que proporcionar\u00e1 casos en el momento del diagn\u00f3stico. Tambi\u00e9n se han incorporado trabajadores sociales del Hospital San Pedro como profesionales de contacto para los pacientes de La Rioja con enfermedades raras que deban acudir a consultas externas.<\/p>\n

Fuente: La Rioja<\/a>
\u00daltima actualizaci\u00f3n: 16 de febrero de 2018.<\/p>\n

 <\/p>\n

Fuente: FEDER El San Pedro tendr\u00e1 una consulta de Psicolog\u00eda para pacientes con enfermedades raras<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra:   Fuente: La Rioja | Los pacientes riojanos con enfermedades raras ser\u00e1n tratados en una nueva consulta de Psicolog\u00eda en el Hospital San Pedro de Logro\u00f1o, tanto a nivel individual como de manera colectiva, dijo ayer el subdirector del \u00c1rea de Salud, Carlos […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3532","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nEl San Pedro tendr\u00e1 una consulta de Psicolog\u00eda para pacientes con enfermedades raras - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/02\/16\/el-san-pedro-tendra-una-consulta-de-psicologia-para-pacientes-con-enfermedades-raras\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El San Pedro tendr\u00e1 una consulta de Psicolog\u00eda para pacientes con enfermedades raras - 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