{"id":3527,"date":"2018-02-15T09:00:11","date_gmt":"2018-02-15T09:00:11","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/02\/15\/se-aprueba-el-plan-regional-integral-de-er-de-murcia-en-el-marco-del-dia-mundial\/"},"modified":"2018-02-15T09:00:11","modified_gmt":"2018-02-15T09:00:11","slug":"se-aprueba-el-plan-regional-integral-de-er-de-murcia-en-el-marco-del-dia-mundial","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/02\/15\/se-aprueba-el-plan-regional-integral-de-er-de-murcia-en-el-marco-del-dia-mundial\/","title":{"rendered":"Se aprueba el Plan Regional Integral de ER de Murcia en el marco del D\u00eda Mundial"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>Fuente: <span style=\"text-decoration: underline\"><a href=\"https:\/\/www.redaccionmedica.com\/autonomias\/murcia\/murcia-aprueba-su-primer-plan-regional-de-enfermedades-raras-9367\" target=\"_blank\">Redacci\u00f3n M\u00e9dica<\/a><\/span> |&nbsp;El Consejo de Gobierno ha aprobado el primer Plan Regional Integral de Enfermedades Raras de Murcia, que incluye un conjunto de medidas para avanzar en la atenci\u00f3n de las personas con estas dolencias y mejorar el conocimiento, la coordinaci\u00f3n y la investigaci\u00f3n de estas patolog\u00edas, con el objetivo de mejorar la atenci\u00f3n que reciben estos pacientes, as\u00ed como su calidad de vida y la de sus familias.<\/p>\n<p>El plan est\u00e1 estructurado en torno a diez l\u00edneas estrat\u00e9gicas que abarcan aspectos asistenciales, prevenci\u00f3n, detecci\u00f3n precoz y diagn\u00f3stico, recursos terap\u00e9uticos, coordinaci\u00f3n sociosanitaria, investigaci\u00f3n y formaci\u00f3n, entre otros. Estas l\u00edneas han sido analizadas para, de esta forma, poder identificar los avances realizados y detectar nuevas oportunidades de mejora y \u00e1reas de actuaci\u00f3n.<\/p>\n<p>Para su dise\u00f1o, una comisi\u00f3n t\u00e9cnica integrada por las consejer\u00edas de Salud, Empleo, Universidades y Empresa, y Familia e Igualdad de Oportunidades ha contado con las aportaciones de 90 expertos procedentes de los \u00e1mbitos sanitario, educativo y social, as\u00ed como de las asociaciones de pacientes y entidades locales.<\/p>\n<p>M\u00e1s de 85.000 personas afectadas en Murcia<\/p>\n<p>Las enfermedades raras son aquellas que tienen una prevalencia inferior a cinco casos por cada 10.000 habitantes, y afectan a un siete por ciento de la poblaci\u00f3n europea. En Murcia hay m\u00e1s de 85.000 personas que sufren alguna de estas dolencias, seg\u00fan datos del Sistema de Informaci\u00f3n de Enfermedades Raras de la Regi\u00f3n de Murcia (SIER-RM).<\/p>\n<p style=\"text-align: right\"><span style=\"font-style: normal;font-weight: 400\">Fuente:&nbsp;<\/span><span style=\"font-weight: 400;font-style: normal\"><a href=\"https:\/\/www.redaccionmedica.com\/autonomias\/murcia\/murcia-aprueba-su-primer-plan-regional-de-enfermedades-raras-9367\" target=\"_blank\">Redacci\u00f3n M\u00e9dica<\/a>.<\/span><\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 15\/02\/2018.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/10075-se-aprueba-el-plan-regional-integral-de-er-de-murcia-en-el-marco-del-d%C3%ADa-mundial\" target=\"_blank\">Se aprueba el Plan Regional Integral de ER de Murcia en el marco del D\u00eda Mundial<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Fuente: Redacci\u00f3n M\u00e9dica |&nbsp;El Consejo de Gobierno ha aprobado el primer Plan Regional Integral de Enfermedades Raras de Murcia, que incluye un conjunto de medidas para avanzar en la atenci\u00f3n de las personas con estas dolencias y mejorar el conocimiento, la coordinaci\u00f3n y [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3527","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - 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