{"id":3455,"date":"2018-01-08T08:14:29","date_gmt":"2018-01-08T08:14:29","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2018\/01\/08\/nuestro-2017-en-100-titulares\/"},"modified":"2018-01-08T08:14:29","modified_gmt":"2018-01-08T08:14:29","slug":"nuestro-2017-en-100-titulares","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2018\/01\/08\/nuestro-2017-en-100-titulares\/","title":{"rendered":"Nuestro 2017, en 100 titulares"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>Arranca 2018, un a\u00f1o en el que continuaremos trabajando por situar las enfermedades poco frecuentes y los casos sin diagn\u00f3stico como un desaf\u00edo social y sanitario en la agenda p\u00fablica.<\/p>\n<p>Para ello, echamos la vista atr\u00e1s y hacemos balance de todo lo que hemos conseguido durante el a\u00f1o anterior, haciendo un repaso por los 100 titulares que han marcado nuestra acci\u00f3n a lo largo de 2017.<\/p>\n<p>A trav\u00e9s de ello, analizamos los principales hitos que los medios han recogido en cada una de nuestras 7 l\u00edneas trasversales de acci\u00f3n: servicios a las personas, defensa de derechos, visibilidad, inclusi\u00f3n, participaci\u00f3n asociativa, sostenibilidad e investigaci\u00f3n y conocimiento.<\/p>\n<ul>\n<li><span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/images\/doc\/Nuestro_2017_en_100_titulares.pdf\" target=\"_blank\"><b>Accede aqu\u00ed al informe completo<\/b><\/a><\/span>.<\/li>\n<\/ul>\n<h3>Noticias relacionadas:<\/h3>\n<ul>\n<li><span style=\"text-decoration: underline\"><a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/9807-20-titulares-que-marcaron-nuestra-defensa-de-derechos-este-a%C3%B1o\" target=\"_blank\"><b>Los 20 titulares que marcaron nuestra acci\u00f3n en 2017<\/b><\/a><\/span>.<\/li>\n<\/ul>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 08\/01\/2017.<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/9864-nuestro-2017,-en-100-titulares\" target=\"_blank\">Nuestro 2017, en 100 titulares<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Arranca 2018, un a\u00f1o en el que continuaremos trabajando por situar las enfermedades poco frecuentes y los casos sin diagn\u00f3stico como un desaf\u00edo social y sanitario en la agenda p\u00fablica. Para ello, echamos la vista atr\u00e1s y hacemos balance de todo lo que [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[8],"tags":[36],"class_list":["post-3455","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Nuestro 2017, en 100 titulares - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2018\/01\/08\/nuestro-2017-en-100-titulares\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nuestro 2017, en 100 titulares - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Arranca 2018, un a\u00f1o en el que continuaremos trabajando por situar las enfermedades poco frecuentes y los casos sin diagn\u00f3stico como un desaf\u00edo social y sanitario en la agenda p\u00fablica. 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