{"id":3380,"date":"2017-11-27T10:15:31","date_gmt":"2017-11-27T10:15:31","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/11\/27\/participamos-en-un-coloquio-extremeno-de-retinosis-pigmentaria\/"},"modified":"2017-11-27T10:15:31","modified_gmt":"2017-11-27T10:15:31","slug":"participamos-en-un-coloquio-extremeno-de-retinosis-pigmentaria","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/11\/27\/participamos-en-un-coloquio-extremeno-de-retinosis-pigmentaria\/","title":{"rendered":"Participamos en un coloquio extreme\u00f1o de Retinosis Pigmentaria"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

 <\/p>\n

La Asociaci\u00f3n Extreme\u00f1a de Retinosis Pigmentaria (AERP) celebra, el 2 de diciembre, un encuentro con el objetivo de hablar en un ambiente ameno y distendido sobre la situaci\u00f3n de la entidad y en el que los pacientes con esta patolog\u00eda podr\u00e1n, entre otras cosas, compartir sus experiencias.<\/p>\n

Nuestro Delegado en Extremadura, Modesto D\u00edez Sol\u00eds, estar\u00e1 presente en este encuentro con el prop\u00f3sito de acompa\u00f1ar a la entidad. Esta es una de las muchas actividades que organiza AERP con el prop\u00f3sito de mejorar la calidad de vida de las personas que conviven con Retinosis Pigmentaria en Extremadura.<\/p>\n

Informaci\u00f3n de inter\u00e9s: El evento se celebrar\u00e1 en el Hotel La Sierra (San Mart\u00edn de Trevejo, C\u00e1ceres). Para m\u00e1s informaci\u00f3n: <\/span>retinosis.extremadura@hotmail.com<\/a><\/p>\n

Sobre la Retinosis Pigmentaria<\/h3>\n

La Retinosis Pigmentaria es una distrofia (estado patol\u00f3gico que afecta a la nutrici\u00f3n y al crecimiento) hereditaria de la retina que est\u00e1 ocasionada por la p\u00e9rdida de fotorreceptores y que se caracteriza por la presencia de dep\u00f3sitos de pigmento visibles del fondo del ojo.<\/p>\n

Los s\u00edntomas iniciales m\u00e1s frecuentes son la ceguera nocturna, seguida de una p\u00e9rdida progresiva del campo visual perif\u00e9rico en el periodo nocturno. Estos s\u00edntomas desembocan en la ceguera despu\u00e9s de varias d\u00e9cadas. La progresi\u00f3n de la enfermedad depende de cada persona y en algunos casos no desemboca en la ceguera.<\/p>\n

La enfermedad, que tiene una prevalencia de 1 por cada 4.000 sujetos, comienza a desarrollarse entre la primera y la tercera d\u00e9cada de vida. En este tiempo, su progreso es lento, aunque pueden darse brotes de empeoramiento. Cuando el ojo de un paciente con Retinosis Pigmentaria se examina, pueden observarse lesiones caracter\u00edsticas denominadas esp\u00edculas \u00f3seas, atenuaci\u00f3n de los vasos sangu\u00edneos, palidez papilar o edema macular.<\/p>\n

\u00daltima actualizaci\u00f3n: 27 de octubre de 2017.<\/p>\n

 <\/p>\n

Fuente: FEDER Participamos en un coloquio extreme\u00f1o de Retinosis Pigmentaria<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra:   La Asociaci\u00f3n Extreme\u00f1a de Retinosis Pigmentaria (AERP) celebra, el 2 de diciembre, un encuentro con el objetivo de hablar en un ambiente ameno y distendido sobre la situaci\u00f3n de la entidad y en el que los pacientes con esta patolog\u00eda podr\u00e1n, entre […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3380","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nParticipamos en un coloquio extreme\u00f1o de Retinosis Pigmentaria - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/11\/27\/participamos-en-un-coloquio-extremeno-de-retinosis-pigmentaria\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Participamos en un coloquio extreme\u00f1o de Retinosis Pigmentaria - 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