{"id":3379,"date":"2017-11-27T09:20:47","date_gmt":"2017-11-27T09:20:47","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/11\/27\/creer-organiza-el-encuentro-internacional-de-acondroplasia\/"},"modified":"2017-11-27T09:20:47","modified_gmt":"2017-11-27T09:20:47","slug":"creer-organiza-el-encuentro-internacional-de-acondroplasia","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/11\/27\/creer-organiza-el-encuentro-internacional-de-acondroplasia\/","title":{"rendered":"CREER organiza el Encuentro internacional de Acondroplasia"},"content":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n

Madrid acoger\u00e1, del 1 al 3 de diciembre, el Encuentro internacional de Acondroplasia, organizado por la Asociaci\u00f3n Nacional para Problemas de Crecimiento<\/a> (CRECER). En las jornadas participar\u00e1n expertos internacionales de diversa \u00edndole con el prop\u00f3sito de tratar esta patolog\u00eda de manera multidisciplinar. Juan Carri\u00f3n, Presidente de nuestra Federaci\u00f3n y Fundaci\u00f3n participar\u00e1 en esta reuni\u00f3n, participar\u00e1 en la sesi\u00f3n inaugural.<\/p>\n

La actividad se plantea a trav\u00e9s de mesas de trabajo de intercambio de informaci\u00f3n junto a conferencias especializadas sucesivas, acompa\u00f1adas de actividades de acogida a las asociaciones participantes, donde presentar las experiencias y estrategias de las diferentes asociaciones internacionales.<\/p>\n

La investigaci\u00f3n, el tratamiento, la inclusi\u00f3n y la rehabilitaci\u00f3n de estos pacientes son algunos de los temas principales que se abordar\u00e1n en el Encuentro. Asociaciones de 13 pa\u00edses diferentes estar\u00e1n presentes.<\/p>\n

Puedes obtener toda la informaci\u00f3n relativa al Encuentro internacional de Acondroplasia aqu\u00ed<\/a>.<\/p>\n

Sobre la Acondroplasia<\/h3>\n

La Acondroplasia es una de las Patolog\u00edas del Crecimiento m\u00e1s frecuentes. Tiene una prevalencia de 1 persona por cada 15.000. Est\u00e1 caracterizada por extremidades cortas, hiperlordosis (aumento de la curvatura lumbar), manos peque\u00f1as, y macrocefalia con frente alta y nariz en silla de montar (nariz de aspecto peque\u00f1o).<\/p>\n

\u00daltima actualizaci\u00f3n: 27 de noviembre de 2017.<\/p>\n

 <\/p>\n

Fuente: FEDER CREER organiza el Encuentro internacional de Acondroplasia<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Madrid acoger\u00e1, del 1 al 3 de diciembre, el Encuentro internacional de Acondroplasia, organizado por la Asociaci\u00f3n Nacional para Problemas de Crecimiento (CRECER). En las jornadas participar\u00e1n expertos internacionales de diversa \u00edndole con el prop\u00f3sito de tratar esta patolog\u00eda de manera multidisciplinar. Juan […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3379","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"\nCREER organiza el Encuentro internacional de Acondroplasia - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/11\/27\/creer-organiza-el-encuentro-internacional-de-acondroplasia\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"CREER organiza el Encuentro internacional de Acondroplasia - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: Madrid acoger\u00e1, del 1 al 3 de diciembre, el Encuentro internacional de Acondroplasia, organizado por la Asociaci\u00f3n Nacional para Problemas de Crecimiento (CRECER). En las jornadas participar\u00e1n expertos internacionales de diversa \u00edndole con el prop\u00f3sito de tratar esta patolog\u00eda de manera multidisciplinar. 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