{"id":3347,"date":"2017-11-14T08:10:19","date_gmt":"2017-11-14T08:10:19","guid":{"rendered":"https:\/\/sindromecharge.es\/index.php\/2017\/11\/14\/feder-se-une-a-las-familias-con-distonia-en-su-dia-europeo\/"},"modified":"2017-11-14T08:10:19","modified_gmt":"2017-11-14T08:10:19","slug":"feder-se-une-a-las-familias-con-distonia-en-su-dia-europeo","status":"publish","type":"post","link":"https:\/\/sindromecharge.es\/index.php\/2017\/11\/14\/feder-se-une-a-las-familias-con-distonia-en-su-dia-europeo\/","title":{"rendered":"FEDER se une a las familias con Diston\u00eda en su D\u00eda Europeo"},"content":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: <\/p>\n<p>&nbsp;<\/p>\n<p>El D\u00eda Europeo de la Diston\u00eda se conmemora el 15 de noviembre y desde FEDER queremos sumarnos para ayudar en la sensibilizaci\u00f3n sobre este conjunto de enfermedades neurol\u00f3gicas.<\/p>\n<p>La Diston\u00eda es un s\u00edndrome cl\u00ednico caracterizado por la existencia de contracciones musculares involuntarias, prolongadas y, en algunos casos, dolorosas. Estas contracciones provocan movimientos espasm\u00f3dicos repetitivos de torsi\u00f3n o posturas anormales.<\/p>\n<p>Estas contracciones son debidas a disfunciones del Sistema Nervioso Central y, seg\u00fan los investigadores, es muy probable que los ganglios basales sean la parte del cerebro que afecte a las Diston\u00edas. A menudo pueden estar asociadas con temblores, a veces similares al que se observa en algunos individuos ancianos o a un temblor con fuertes e irregulares contracciones y si no presenta complicaciones, no altera las funciones intelectuales, sensitivas y las relacionadas con la conciencia.<\/p>\n<p>Estas enfermedades poco frecuentes pueden clasificarse en distintos grupos. Uno de ellos es en funci\u00f3n de las regiones del cuerpo que se vean afectadas por estas contracciones; en este sentido, las Diston\u00edas pueden ser generales (termina por alcanzar todo el cuerpo) o focales (pueden darse s\u00f3lo en la mano, en las cervicales, en la laringe, en los m\u00fasculos de la parte inferior de la cara\u2026). Adem\u00e1s, tambi\u00e9n puede clasificarse por la causa que las provoca: como las heredadas o las secundarias (\u00e9stas \u00faltimas se producen debido a da\u00f1os en peque\u00f1as \u00e1reas del cerebro\u201d.<\/p>\n<p>El Presidente de nuestra Federaci\u00f3n y de Fundaci\u00f3n, Juan Carri\u00f3n, explica que \u201cen los \u00faltimos a\u00f1os han aumentado considerablemente los estudios dedicados a la investigaci\u00f3n de las Diston\u00edas con el prop\u00f3sito de lograr un tratamiento para estas enfermedades neuromusculares\u201d e \u00edndice en la importancia de que \u201cestos pacientes sean trasladados siempre a un Neur\u00f3logo con experiencia en trastornos del movimiento\u201d.<\/p>\n<p>Queremos destacar la labor que realizan por mejorar la vida de estos pacientes y de sus familiares, a trav\u00e9s de talleres y jornadas informativas, y su trabajo por fomentar la investigaci\u00f3n de las Diston\u00edas y divulgar a la ciudadan\u00eda sobre ellas a la Asociaci\u00f3n de Lucha contra la Diston\u00eda en Espa\u00f1a, la Asociaci\u00f3n de Lucha contra la Diston\u00eda en Andaluc\u00eda y la Asociaci\u00f3n de Lucha Contra la Diston\u00eda en Arag\u00f3n.<\/p>\n<p style=\"text-align: right\">\u00daltima actualizaci\u00f3n: 14\/11\/2017.<\/p>\n<p>&nbsp;<\/p>\n<p>Fuente: FEDER <a href=\"https:\/\/enfermedades-raras.org\/index.php\/actualidad\/noticias-eventos\/2-feder\/9530-feder-se-une-a-las-familias-con-diston%C3%ADa-en-su-d%C3%ADa-europeo\" target=\"_blank\">FEDER se une a las familias con Diston\u00eda en su D\u00eda Europeo<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El D\u00eda Europeo de la Diston\u00eda se conmemora el 15 de noviembre y desde FEDER queremos sumarnos para ayudar en la sensibilizaci\u00f3n sobre este conjunto de enfermedades neurol\u00f3gicas. La Diston\u00eda es un s\u00edndrome cl\u00ednico caracterizado por la existencia de contracciones musculares involuntarias, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[36],"class_list":["post-3347","post","type-post","status-publish","format-standard","hentry","category-noticias","tag-enfermedades-raras"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>FEDER se une a las familias con Diston\u00eda en su D\u00eda Europeo - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sindromecharge.es\/index.php\/2017\/11\/14\/feder-se-une-a-las-familias-con-distonia-en-su-dia-europeo\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"FEDER se une a las familias con Diston\u00eda en su D\u00eda Europeo - Asociaci\u00f3n Espa\u00f1ola S\u00edndrome de Charge\" \/>\n<meta property=\"og:description\" content=\"Leemos en FEDER la siguiente noticia que os reproducimos de forma \u00edntegra: &nbsp; El D\u00eda Europeo de la Diston\u00eda se conmemora el 15 de noviembre y desde FEDER queremos sumarnos para ayudar en la sensibilizaci\u00f3n sobre este conjunto de enfermedades neurol\u00f3gicas. 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